Newly diagnosed Chronic Lyme

Hi Kct, Sorry that you've been diagnosed with chronic Lyme.

Unfortunately with the current state of affairs, your question is akin to asking - Why isn't there one church incorporating the best of all religions so that you get to heaven fastest?

Hi Kct - welcome to the forum. The moderators will be along soon to officially welcome you and share important info.

I liked project's comparison! It certainly speaks to why lyme specialists lean toward different treatments and protocols - there are varied schools of thought as to which issues are most important and how to heal body systems. I think the medical industry is mostly challenged by the lack of sufficient information about lyme & co , which typically provides the foundation for disease "why's" "how to's". This lack of information is also responsible for the lack of reliable testing, too.

Unfortunately, the conditions of each of our bodies that allow the lyme & co infections to dominate our immune systems are as different as each of us. And the infections that ticks can carry are also varied from tick-to-tick, and different microbes can often be more prevalent in different regions of the country. All these factors affect which treatment approaches are most effective for us.

Hope that's helpful but continue to ask additional questions if you need to.

-p

Thankyou for the feedback all.

 

 I have a LLMD who was so sure I had CLD on my first consult he asked me if I wanted to start my antibiotics now or wait for the test to come back. I chose now and 2 weeks later it came back showing lyme Babesia, ehrlichiosis, bartonella maybe one more cannot recall.

I know its a marathon. I read so many treatments like PEMF, cyst busters etc . Are there studies that show they work ?  I started with zith, nystatin and rifampin but it increased my GI motility time for lack of a better description.  Now on Doxy and nystatin still increased GI motility time, plus slight upset stomach now.

I did add resultsrna lyme support system. colloidal silver, immune support, detox and cellular neuro.

I have tried treating the severe fatigue and brain fog with ritalin, Adderal, and Nuvigil at different times (easy for me to get  because I have ADD). just stopped the Adderal due to migraines. Thinking of going back to nuvigil. Nortriptyline helps with pain and supposedly sleep, im back on that.  

I saw online a treatment approach by Marty Ross and Tara Brooke which confirmed for me I'm on the right track. I heard that Immune support is critical if antibiotics are to work too.

My LLMD also took additional antibodies and calculated my levels were alot higher than the test showed , is that standard practice ?   He states it improves the specificity and sensitivity to 98%.

What does " DETOXING " include other than suppliments ?  infrared sauna, PEMF ? which is more of a proven treatment cant afford both.

 I'm in trouble at work for being fogetful. thinking of taking FMLA for a couple of months , IF these treatments will make a difference.  

                                            Thankyou all again  So glad I found this site!