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Epstein Barr Virus, Lyme and co's

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Posted 5/10/2016 12:59 PM (GMT -5)
I have read (and my doctor agrees) that active and high EBV titers have been mistaken for Lyme or at minimum MANY of the symptoms of EBV also cross with Lyme and co's. I know that in my case the thinking was that my symptoms were from my extremely high EBV titers. Also they say that EBV is a common co-infection.

So I guess my question is other than cat's claw what if anything are you doing, if anything for EBV?
Posted 5/10/2016 1:14 PM (GMT -5)
Krimpet- did you have EBV before?
Posted 5/10/2016 1:22 PM (GMT -5)
My doctors told me that 95% of people have it and that most people encounter it during their childhood through teen years BUT for most their body handles it and you are mainly unaware. I was told that when the immune system is disturbed it typically jumps on board with whatever else is going on. So yes this is the first time that I am knowingly dealing with it.
Posted 5/10/2016 1:27 PM (GMT -5)
I understand that monolaurin is effective for EBV. I took monolaurin for Lyme a few months back which I hoped that it would also impact my high EBV numbers.

I ran out of the product before I got tested again so I cannot say for sure if it does bring those numbers down.
Posted 5/10/2016 1:57 PM (GMT -5)
Unfortunately I can't take that because of coconut allergies. I'm going to be given monastery of herbs and a homeopathic remedy. I'll let you guys know how it goes. I really think it is a part of why I feel so awful.
Posted 5/10/2016 2:05 PM (GMT -5)
I happen to disagree that EBV and Lyme are often confused. My very first 'chronic' diagnosis was EBV, based on symptoms and tests. I tried all sorts of antivirals and they did nothing for the majority of my symptoms - but I had been infected for a very long time by then.

Check into Lysine. I've used it for many years now to control recurrence of EBV. It works really well for me.
umm.edu/health/medical/altmed/supplement/lysine

This site is a bit of a pain with their pop-up adds, but has good info: danielbeckworth.com/lysine-dose-for-herpes-outbreak/

You can find a lot of other sites with information on Lysine for EBV also.
Posted 5/10/2016 9:28 PM (GMT -5)
It's interesting how the herpes viruses aren't talk about more. A vast majority of people have H1 and H4 and you can get them from kissing or sharing utensil. So pretty much being a human.

I love the CDC website (sarcastically). You can "avoid" EBV by simply not kissing someone that has EBV. Oh do you mean the 90% of the people that have EBV!?! That's realistic.
Posted 5/10/2016 9:44 PM (GMT -5)

dacarte3 said...


I love the CDC website (sarcastically). You can "avoid" EBV by simply not kissing someone that has EBV. Oh do you mean the 90% of the people that have EBV!?! That's realistic.

....and how do you know who has it? ...you're supposed to ask them..."I'd like to kiss you...but do you have EBV?.." - that would go over well, wouldn't it? haha
Posted 5/10/2016 9:47 PM (GMT -5)

Girlie said...

dacarte3 said...


I love the CDC website (sarcastically). You can "avoid" EBV by simply not kissing someone that has EBV. Oh do you mean the 90% of the people that have EBV!?! That's realistic.

....and how do you know who has it? ...you're supposed to ask them..."I'd like to kiss you...but do you have EBV?.." - that would go over well, wouldn't it? haha

lol, it's like a 12 year old writes for the CDC. I never go to their site for sophisticated medical information.

Sorry don't mean to thread-jack. Back to Krimpet's question.
Posted 5/10/2016 11:16 PM (GMT -5)
Hi Krimpet,

I also suddenly found out that I had high EBV antibodies in recent blood tests. But just prior to that it was detected while having an EDS (Electro-Dermal Scan) done by a very good technician near Dallas. Another subject, if you've never heard of EDS. She is also an expert in Homeopathics and Herbals, and she recommended "EBV/CFS PLUS" by DesBio. You start with only a drop twice a day and build up to 10 drops/ twice a day which is where I'm at now. I feel like there's been improvement, but I haven't had the follow-up blood work done yet.

I also have had Lyme for a few years and never had Mono or EBV before that I know of. I was told the same thing about how common it is. The EDS scanning showed that I had EBV in my heart and in my thyroid which might explain some things. I developed Hashimoto's several months ago and I have also been dealing with heart arrhythmia and palpitations. The palpitations have gotten much less frequent since I've been on the combination of the Des Bio drops for EBV along with the Des Bio drops for Borrelia/Babesia.

I hope this helps. It's all so crazy to me. To be healthy for so long, then get bit by some ticks and your whole system goes haywire!

Hang in there!

-Keylyme
Posted 5/11/2016 6:44 AM (GMT -5)
Thanks keylyme. Yes I feel as though my whole body has been hijacked by microscopic aliens. To your point about improvements in how you feel, I did hear that getting those EBV numbers down can help you feel better. What is soooooo interesting is how the HHV's and Lyme can just wreak have on the endocrine system. I love to read the stories of those that find those things improving once they are effectively being treated. I was dx with Graves about 10 years ago but now some doctors are thinking it was probably Hashi's. Anyway I would get awful pain in my thyroid area where I could barely turn my neck. Long story short, I had RAI 2 years ago. Nothing got better, in fact only worse. I think it's what brought the EBV and Lyme to the forefront. EBV is notorious for hijacking the thyroid (now finding out). I was only dx in March with EBV and only 3 weeks ago with Lyme. I don't know when Lyme came into the picture, but obviously EBV has been there all along. i also notice that I need more thyroid hormone now because of the Lyme. So hopefully with taming things, my body can go back to converting the thyroid hormone that I am feeding it. I have a few markers that I will be looking at to monitor my treatment progress.
Posted 5/11/2016 7:41 AM (GMT -5)
Interesting topic - before I figured out I had lyme, I explored EBV, got tested for it, but it only showed that i had it in the past, no sign of active infection. But I have read that Lyme can bring EBV out, and that one or the other can cause a false positive test result - not sure how true that is though.

Traveler, what did you mean when you said "I happen to disagree that EBV and Lyme are often confused." I thought the symptoms were very similar?
Posted 5/11/2016 8:53 AM (GMT -5)
Yes Chapelle I agree that the symptoms are similar. My doctors told me that often when people present they often think EBV or Lyme (based on symptoms) and once they test and find current, active and especially high titers along with c4a they will test for Lyme. Their experience is that often these patient have Lyme and/or co-infections, mold toxicity, etc. Since there are similarities in symptoms and if doctors only focus on EBV they don't get better. That's how I started. Only treating for EBV, but feeling like I was getting worse which is why I pursued it further feeling as though something else was missing from the puzzle. In fact I thought like you. Whoa, if EBV is active and high, something triggered it. Which is often the case.
Posted 5/11/2016 10:22 AM (GMT -5)

Chapelle said...
raveler, what did you mean when you said "I happen to disagree that EBV and Lyme are often confused." I thought the symptoms were very similar?

Only some of the symptoms are the same. My first chronic infection to be diagnosed was EBV, with titers so high that the doctor, terribly concerned, told me I would likely never work again. I was a single mother of 2, so that wasn't going to work out so well. It's not like you could get disability for EBV back in the mid 1980's - I tried.

EBV doesn't cause as many symptoms as Lyme. EBV won't cause migrating joint pains, or migrating symptoms of any kind, not like Lyme and company. And there are other differences that my groggy brain can't come up with yet- but a quick comparison of a couple of reliable symptom charts will show this.

And on the tests, if a person has Lyme specific band show up, then the ONLY thing that can turn the Lyme specific bands positive is 2 (out of over 100 possible strains) strains of Borrelia. Borrelia burgdorferi and Borrelia mayonii. You must have one of those two strains in order to have the Lyme specific bands turn positive or IND.

EBV may cause other non-Lyme specific band to be positive, but that's not been proven either.
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