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Scared antibiotic route not working--what to do

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Posted 5/29/2016 2:29 PM (GMT -5)
Holy basil tea for anxiety,fire tree bark for candida and prayer!..consider treatment delay , nystatin syrup is sweet ? rebuild gut with yougurt ,kefir and sourkrout for a while, then research rife .with plasma tube...it can treat if she is in the room...i too know the feeling of that daily choice of life ...i have worked with people with dd and sometimes reassurance and bargaining may not be enough...try to sooth with touch. Rebuild trust and move forward.prayers to you laura.
Posted 5/29/2016 3:10 PM (GMT -5)
That's a great idea Peteza. Another idea would be to buy a diffuser for her room (i have one by NOW). You could diffuse the lavender or some of the lyme/immune support oils (clove, tea tree, cinnamon, etc).
Posted 5/29/2016 3:19 PM (GMT -5)
Good idea PeteZa.

K07--anyone who has chemical sensitivities (like me and likely Laura's sister) is going to react to diffusers. I have missed my diffusers so much and tried pure lavender the other day, and while it was lovely and calming, it gave me stabbing pains in my brain and burned my nose mucus... So I think oils that you can gently rub on the skin are probably better, unless her skin is sensitive.

I'm really hoping Laura and her family can just wait this out until her sister's body can detox more, which could take awhile. It's also not a simple solution to go to the ER for emergency care because they won't know what to do and their typical protocol will likely cause more problems and trauma.

Laura - please check in and let us know how things are going... we're all thinking of you and your family.

-p
Posted 5/30/2016 2:12 PM (GMT -5)
Oh your poor sister! I've been to that point - if I don't eat/drink I don't have to move to go to the bathroom. That's really hard to get through.

Whatever you choose to do, please go very slowly. Abx are kind of the "big guns" of treatment, there's lots of us that just can't handle that kind of devastation.

I kind of like the idea of EO's for her, as she won't be ingesting them - at least not at first, since you can put them on the bottom of her feet. She might not equate that with it hitting her like the abx did?

Don't give up, though. There are many means to heal from these infections. You just have to find one that's gentle enough to not freak her out and effective enough to reduce her symptoms. Once she can equate her feeling better with something that she's doing, it might help change things for you and her.

Best of luck!
Posted 6/5/2016 6:14 AM (GMT -5)
Things are not looking good. My sister has lost her will to live. She tells us over and over that she wants to die. It's the ear that's driving her crazy. It got so much louder after the trauma of the blood work and has made life unbearable. The only relief she gets is from being in the car with the radio. She basically lives in the car now--my 77 year old mother and I spend the entire day driving her around and parking in the shade with the car running. My sister is afraid to go in our house b/c the noise gets so loud. She no longer goes to the bathroom in our house. We have a commode set up in the garage, so we just pull in there and let her go. But as soon as she's out of the car, you can tell she's in tremendous distress and has us hold her ear. She no longer sleeps in our house. We just sleep in the car in the driveway with a radio playing loud music. Last week she asked my mother and I to kill her. We have been struggling every day since my last post to get food and water in. We have to beg her each time. We thought we had a breakthrough last Monday, when she finally had a bit of solid food, but nothing since then. All I'm able to get in her is 3 juices loaded with nutrients and drops, a bit of water, a few spoonfuls of applesauce with pills, and a few spoonfuls of yogurt. She woke up this morning crying as usual and in tremendous distress from the ear. Again telling me she wants to die and that she wants us to stop begging her to keep trying. We honestly don't know what to do. I know that people with noise in the ear and head want to blow their heads off b/c it's so unbearable (my grandmother had a friend with this problem and that's what he did). We don't want to see her suffer any more. We just don't know what to do. The noise in her ear is just too much to bear.
Posted 6/5/2016 8:33 AM (GMT -5)
After answering your last topic I came back to read this one.

Before bartonella treatment K had IBS and cramping that would put her on the floor. Diarrhea would happen several times a week and cramping 4-5x daily. Bartonella treatment resolved it completely.

We also use a near-ir sauna (really cheap - red heat lamps) to help with NO-ONOO/BH4 difficulties which can be the result of her MTHFR mutation.

Bottom of this page:
/saunaspace.com/sauna-day-keeps-doctor-away/

With the herbs you are using now, you are not treating bartonella, and I would say that if your sister has any type of psychological/neurological symptoms (especially those of brain inflammation - light/sound sensitivity, stiff neck at the base of the skull), they would most likely be caused by bartonella and not necessarily lyme.

Most of the herbs used to treat bartonella and lyme can be found in tincture form, although they are more expensive than dried herbs for infusion (tea) or tablets. They are easy to use at low dosage and can be hidden in juices. Daily probiotics are a must and acid resistant strains can be opened and added to smoothies.
Posted 6/5/2016 8:39 AM (GMT -5)
I'm probably going to suggest things that you have already tried, but I feel the need to make sure - who knows? It might actually be helpful!

What about buying her a headset (one that she can easily use) and either an MP3 player or the like so she can have her music anywhere, any time?

What about getting her onto antidepressants? Depression is a fairly common symptom with these infections. It's hard to go through this stuff time and again and have treatments fail. I bet the right doctor could get her the right meds in liquid form if need be so you can get her to take it - or mix it in with food or whatever is needed.

The noise in her ear is tinnitus - and it can get quite severe at times, as you noted. I live with it too. This is usually due to myelin sheath destruction caused by these infections. There is something you can do about it, but it's not a quick fix, and she has to take more meds for it. It's called Lion's mane. Here are two articles about it so you can read on it and see if it's something you wish to try to get her to take:



Lion's Mane extract has been shown scientifically to repair the myelin sheath.

www.ncbi.nlm.nih.gov/pubmed/12675022

www.livestrong.com/article/509385-lions-mane-mushroom-for-nerve-damage/
Posted 6/5/2016 8:46 AM (GMT -5)
We use lions mane mushroom as well although I didn't start it until my tinnitus had resolved, so for me it wasn't the nerve sheaths (although it may be for your sister), it was likely the metal accumulation (mercury and aluminum from yearly flu vaccinations) and lack of microcirculation that was our problem.

K gets phosphatidyl choline and pastured egg yolk daily for myelin sheath repair.
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