Seeing my LLMD today to find out exactly what my treatment will be, what questions should I ask?

I would encourage you to ask for as much information about them and the protocols they use as you can. I would ask them how many Lyme patients they have healed - without them relapsing? What protocols they use​? ​Do they use any herbal preparations? What do they do when the patient plateaus, and more.

We have a really great list of suggested questions on page 2 of the "New to Lyme? Start here!" thread on the forum if you would like some more ideas. We are finding more and more doctors, even LLMD's that are giving in to the demands of their peers or the medical boards. You should kind of know where they stand before spending all kinds of money with them.

Interesting info about the back.

Regarding the returning anxiety and GI issues - I am learning more and more about bacterial issues causing many of the common GI diseases that are blamed on "unknown" sources. Of course, this is a very complicated area of study since our bodies are made up of trillions of microbes so it will be a long time before any of it is entrenched in western medicine.

So, you might have been hitting a bacterial load in the gut w/ the abx that was helping. Maybe you can ask the LLMD about this. Here is an interesting series on gut and bacteria -

www.healingwell.com/community/default.aspx?f=30&m=3640745&p=1

Hope your appt goes well!

-p

Hey there! Thanks for asking.

I think overall pretty well. I apparently made way too big of a deal in my mind of my lab results. Apart from the lyme related issues, it seems that I am very healthy.

She put me on a different multivitamin because of the gene mutation ( with iron , that is still low) and Colostrum to help my GI and boost immunity. I start those today.

Monday I will be starting the antibiotics. She said the main issues are likely to be GI related.

The one thing I am not really in agreement with is that she wants me to get on Neurotin and Trileptal as a way to protect my nervous system and help my anxiety. That thought alone gives me anxiety. I will try the antibiotics, but I don't want to be on a ton of drugs. She said that stopping them may cause seizures. I don't see why I would start something before I need it, especially when the withdrawal could be severe. I am only taking 1/4 pill of Trazadone at night for sleeping and I am off the Ativan all together.

My NP mentioned something about neurotoxins from the antibiotics and I needed to protect my brain. Is there not a natural way to do that? I have read bad things about Neurotin in particular.


I am going to start keeping a journal. I am close to starting my period ( I hope) and my anxiety has been much worse. I never had PMS prior to this, but she thinks I may need Progesterone at certain times during my cycle.

Thoughts are welcome! Thanks in advance.