Struggling with Worst Case Fears ....Again

Yes twitching is a symptom that comes and goes with me. How are your magnesium levels? That can be a sign of low magnesium. Before being clinically dx, I had a lot of twitching and my then ND told me to increase my magnesium. I did and it stopped. Also you did say you hiked to the top of a mountain, so that could result in twitching/muscle soreness. There are a lot of nerves in the feet.

I remember the anxiety of each new symptom.

Once I figured out that the anxiety was also a symptom, I handled it better.

I think it takes a long time to "get used" to the symptoms of lyme. They are so ever-changing and new that we continue to second guess them even when we know they are a lyme symptom.

Unfortunately, I have to agree with Antonio - you get used to it.

Muscle twitching, cramping and massive spasms have all happened to me, yet I did not have any that one year I was healed. I have minor muscle issues this time around.

Something that may or may not help, is to keep a printed out list of Lyme symptoms near you. When a symptom pops up, look on the list - is it there? Then it's likely "just Lyme" - but if it's getting serious, then I would encourage you to ask either here or a doctor. We can be your first place to ask about symptoms if that helps, as not everything is Lyme, but when you have Lyme, you have to be prepared for many symptoms, some are bizarre.

With the muscle wasting i was sure i had als ...the twiching didnt start until 6 month ago...chinese cats claw ,bart tx and iv magnisum helped ...also phentonal but that was for port surgery...i cryed today wondering ifnit was to be my last fill in the blank...i feel like that anxiety every day... holy basil helped then baby doses xanax ...i have a daughter and a fiancee and miss my life

Hi Queen,

I've replied to your posts before and wanted to again show some support. I know EXACTLY what you're going through. I previously mentioned that our stories are nearly identical, as well as our symptoms.

However I've only been going through this since January with muscle twitching being one of my more pronounced symptoms. I had nearly 24x7 muscle twitching (painful) in my left calf which then spread to mostly every other muscle in my body. I still have muscle twitching all day long but it's not as bad as it used to be and no longer painful. Along with that I have clear muscle wasting in my legs which have really thinned out, especially my left calf where it had all started - it's about 3/4 inch smaller than the right and noticeable to others. I don't have any real weakness in either leg though, I can still get around just fine. It's been nearly 5 months of this agony and some days I'm 100% positive this is Lyme and I'm getting better and then on my bad days I'm 100% positive it's ALS and this is the beginning of the end. Most days are somewhere in between, but believe me the average day it's about all I can think about. I'm going on week 6 of my treatment and I feel maybe 25-50% better physically but mentally it's still draining not being 100% positive what's going on inside.

I know positivity is the key to healing ourselves of this, so we just need to stay strong. I know how you feel so keep your head up and once a negative thought comes into your mind immediately squash it with something positive and move on with your day. A doctor explained to me that it's actually the inflammation in the brain cause by Lyme that causes depression and anxiety.