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Lyme Disease
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QueenFrostine
Regular Member
Joined : May 2016
Posts : 23
Posted 6/5/2016 8:33 AM (GMT -5)
Hey Everyone,
Just checking in to see if any of you have experience this.
My second toe is still twitching intermittently. It twitches when I am at rest. It has been going on for a week. I went to the chiropractor who said my metatarsal has dropped and she thought that was the reason why it was twitching, but that was Friday and still is has not stopped.
The other thing that has happened is in the past few days I am increasingly week in my arms and legs, but it feels like I have the flu. I started all three antibiotics this past week. Did any of you have that reaction?
I was totally fine strength wise a week ago.
I am having panic attacks daily still over ALS fears. I know at 34 and with a Lyme diagnosis that it's unlikely for me to have it. My fears are taking over my life and now my body is aching all over.
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 6/5/2016 8:53 AM (GMT -5)
This seems to be part of a herx for you. The timing is right and those are common issues when a person is herxing.
How's your detoxing? What all are you doing for detoxing? As the abx work on the bacteria, of course the bacteria die, but when they die they release toxins and cause us to herx. Herxing can be increased severity of the symptoms we already have or new symptoms, but detoxing will help our bodies lower the amount of toxins we have in us, and so the severity of our symptoms calms down and some new symptoms may go away with enough detoxing.
PeteZa
Veteran Member
Joined : Jul 2015
Posts : 9729
Posted 6/5/2016 9:58 AM (GMT -5)
This sure sounds like a herx to me also.
Here is a the site for detoxing and that is the only helper I know for herxing.
www.tiredoflyme.com/detox-methods.html
Laker7491
Regular Member
Joined : Aug 2015
Posts : 262
Posted 6/5/2016 10:02 AM (GMT -5)
I agree with Traveler. I sometimes twitch all the time all over my body. I seem to notice more when I'm trying to go to sleep. Are you taking enough magnesium? You may want to up it a little bit more and see if that helps. I understand that all these symptoms are scary but it makes it even more so if you start thinking about
all the horrible diseases that lyme can mimic. Everything you described sounds like it could be a symptom of lyme or co-infections so you just need to up your magnesium or try detoxing more. I have massive panic attacks out of the blue, which is also a symptom. My doc prescribed klonopin, but I know there are tons of herbal ones out there too. I was up all night so I can't more than that, sorry.
I watched a great youtube video made by a famous musician. I wish I could remember what it was called. Something like "How it works" and he said something that has really helped me, It was "Don't listen to your lyme brain, it plays dirty tricks on you"
Did you have a western blot done by Igenix? Even if you did have one and it came out negative you still may have lyme and co-infections. My test came back from igenix and it was negative. I only had one bar on several of the areas. But I had so many symptoms. That's why IMHO, that's it's so important to have a LLMD diagnose you. Hang in there. It will get better slowly. Remember it's marathon not a race.
jennysetter
Regular Member
Joined : Mar 2015
Posts : 228
Posted 6/5/2016 10:27 AM (GMT -5)
I had "disco finger" for a while....at night only, I'd be laying in bed and it was dancing all over the place. Just one finger, that's all...just one, in time to Saturday Night Fever. I don't know why but eventually it stopped and has not returned. The first time it happened it woke me up from a sound sleep and I thought it was my dog's tail wagging until I realized it was attached to my hand! Whoa! Weird!
Yes, the weakness and muscle fatigue hit me hard too. I was barely able to move - I felt like I was dragging 3 dead bodies around with me. With treatment that has gotten better too. I still have bad days, but more good than bad.
My main attacker has always been Bartonella - is that what you're treating for? All kinds of wacky ticks and twitches come with this one. I also got hit pretty hard with anxiety and life changing depression that would just come over me suddenly that I called the "cloak of darkness"....it would stay for a few hours or half a day and then life just as suddenly. That has also gotten WAY better with treatment. During those times I would just tell myself that it was the Lyme, not me, making me feel that way and that it would get better...and it did. It helped me through those periods to removed the feelings from myself and think of them like a bad smell that would eventually go away.
I do a foot soak in a 5 gallon bucket of water with hydrogen peroxide and epsome salts and will add a drop or two of peppermint oil. I believe that does help my twitches and ticks - maybe try that and see what kind of results you get? Because of the peppermint oil, I always feel invigorated afterwards, so don't do it at bedtime :)
Good luck in getting your disco toe to calm down.
Jenny
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 6/5/2016 10:28 AM (GMT -5)
"Disco finger" Ha ha ha! Thank you for the giggle this morning, Jenny!! I needed that!
bluelyme
Veteran Member
Joined : Nov 2015
Posts : 6219
Posted 6/5/2016 11:25 AM (GMT -5)
Queen frost ..the bugs are hitting the nerves ..lack of magnesium or both...you are fighting for your life ...als is just a descript
ion of whats happening ..i am losing muscle from motor nueron death...every morning my circulation and stamina decrease ....keep trying ..the fear feeds it and does nothing ..i thought a yr ago i was dying...i very wellay be but i am not going with out a fight ...i found bartonella and toxo like parasite at root with borreliosis btw... asulfa drug chased bugs 1 yr ago into recesses of nerves and brain .use all modalities ...you are mag deficient, b vits and likely iron...abx destroy nutrient absorption it is a real catch 22
bluelyme
Veteran Member
Joined : Nov 2015
Posts : 6219
Posted 6/5/2016 11:28 AM (GMT -5)
Watch for porphia also i think bugs hide in liver ...just a guess...use alopathic for diagnostic, testing and use art testing ,kinesiologist, chi ,to find what they cant ,trust your body ,even though it has betrayed you ...you know best.do it all throw everything in the book at it ..
k07
Veteran Member
Joined : Sep 2015
Posts : 3470
Posted 6/5/2016 12:19 PM (GMT -5)
I can tell you that Lyme will totally mimic ALS. I know of someone who has speech and swallowing issues from an untreated bulls eye rash 2 years ago. It took 18 months after the bite to present with these symptoms.
Hopefully, in a week or so this will be a thing of the past for you.
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