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Posted 7/2/2016 9:21 PM (GMT -5)
Has anyone on here had tmj and Trigeminal Neuralgia? I thought my treatment was helping the random nerve pain I was getting near my jaw/ear. However lately it seems worse. I just started grapefruit seed extract and was herxing with it. But I am worried it feels worse now.
Posted 7/2/2016 9:44 PM (GMT -5)
Shanna I had a very stressful job and chewed gum all day long and got TMJ. It hurt so bad. This was way before I ever got lyme.

I had to quit chopping so hard with my jaw and take ibuprofen. That cured the TMJ, but it also took a long time for me to quit my bad habits that caused the TMJ.

My dentist thought maybe I was grinding my teeth in the night and he made me a night guard.

I really had to find what was causing my TMJ and quit doing the repetitive motion that caused it.
Posted 7/3/2016 9:36 AM (GMT -5)

shanna j said...
Has anyone on here had tmj and Trigeminal Neuralgia? I thought my treatment was helping the random nerve pain I was getting near my jaw/ear. However lately it seems worse. I just started grapefruit seed extract and was herxing with it. But I am worried it feels worse now.

Jaw pain (like TMJ), clicking when chewing, etc., were happening in the very early days of my symptoms early last year. I had no idea what was going on. After visiting with numerous doctors, I started treating for things like ( bacterial overgrowth), etc., that I now know were a result of Lyme and/or co's. When I started taking herbs, such as GSE, berberine, olive leaf extract.....it went away. I haven't had that symptom return, but other symptoms took its place.
Posted 7/3/2016 10:19 AM (GMT -5)
Shanna that was one of my first symptoms and it was a very sudden onset 5 and a half years ago. That and facial pain were intermittent for about a year. I hoped those symptoms would never return but think I had a herx from Houttuynia a couple of weeks ago and TMJ and Trigeminal Neuralgia returned with avengance. I was in agony and couldn't close my mouth properly, pain radiated from each ear up into my head and down into my jaw. I couldn't sleep for a few nights at all, as each side of my head felt like I was lying on broken glass. It was the most painful episode since getting lyme. I stopped all herbs and took 500mg Erythromycin X 4 per day. Thank goodness it subsided and I am know back on my herbs but still minus Houttuynia, will leave that for a few weeks before introducing again.

I am so sorry you are suffering with this too, it is so painful. As well as the ABX I was taking quite a lot of ibuprofen for the pain. The turmeric, boswellia and other anti inflammatory supplements I usually take didn't do anything to alleviate the pain or inflammation - the only relief was with the pharma painkillers.

I hope you get relief from this very soon.
Posted 7/3/2016 10:23 AM (GMT -5)
http://www.globalhealingcenter.com/natural-health/benefits-of-grapefruit-seed-extract/

It's an immune stimulator, and that's likely why you are herxing, Shanna. I would really encourage you to increase what you are doing for detoxing.
Posted 7/3/2016 10:42 AM (GMT -5)
TMJ plagued me as a kid and all the way through h.s. And college. Went away and came back when I contracted Lyme & co. It is a beast.

Sorry -I know this is painful. Agree with Traveler that when you start any new antimicrobials, you gotta be prepared for a herx and be ready to ramp up the detox. Also, for joint pain like that you might get some relief with anti inflammatory - Japanese knotweed might help (although start very slowly) or Wobenzyme might help.

Hope you get some relief!!

-p
Posted 7/3/2016 11:48 AM (GMT -5)
Thank you guys! The tmj was one of my first symptoms too. I would get random nerve pain around my ear. One neurologist said it wasn't tn but a rheumatologist I saw thought it was. I was doing okay until I took the Gse. I am hoping I am just busting cysts lol at least that's what I tel myself. It's scary how the herx can actually make our old symptoms worse. I didn't realize this was possible. I feel like we get retraumatized during herxes. Just when we think we have conquered something it comes back to bite us. This is so hard!
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