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New here - could this be Lyme?

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Posted 7/3/2016 2:35 PM (GMT -5)
Hi I was bitten by something two years ago on my stomach a little itchy at the time I then developed very bad flu like symptoms for about a week stiff neck light sensitive then a bulls eye mark appeared where the bit was this got bigger and smaller bulls eyes started to spread over my body bloods where taken but came back neg in the last two years my health has gone down hill headaches swallow glands for weeks little growths like hard skin lack of motivation tired joint pain really starting to get bad in hands and fingers depressed finding it hard to retain information often feel like when I swallow something is struck areas of my body feel like their getting hot like prickle heat could this be lymes white cell count is also borderline
Thanks
Shazer

Post Edited By Moderator (Girlie) : 7/3/2016 2:28:48 PM (GMT-6)

Posted 7/3/2016 2:47 PM (GMT -5)
Shazer,

First I would like to welcome you to our forum and suggest to you that you read through the first post "New to Lyme start here". There is so much information that will help you.

Second, if you did not test through Igenix I would say it is not reliable. Igenix specializes in Lyme. And often tests will be a false negative. My first two were.

It certainly sounds like Lyme and if you had the bullseye it is. Your symptoms all sound like Lyme as well.

You will want to find a LLMD (Lyme Literate Medical Doctor) trained by ILADS. You can post on here asking for information for your state...ex. Looking for LLMD in Iowa.

It is important that you treat for this. I am so sorry that you are dealing with it, I know it is difficult. But you came to the right place. There are so many people that really want to help. Why? Because so few people, even Doctors, understand Lyme and can sympathize with what you are dealing with. So we are a unique bunch of people who care about our fellow Lymies! =)
Posted 7/3/2016 2:52 PM (GMT -5)
Denikeef gave you very good information, I just wanted to welcome you.
Posted 7/3/2016 3:28 PM (GMT -5)
Hi Shazer - welcome to our community!

I'm sorry that you have Lyme disease - as Denikeef pointed out - a bulls-eye rash is Lyme Disease.

But, I am so glad you found your way here. This is a great group of people - knowledgeable and supportive.
We know first-hand what it feels like - that helpless feeling when you know you're sick...but don't have a diagnosis.

If you would like help finding a LLMD, start a new thread on here with the title that Denikeef suggested.

You can also contact the ILADS Physician Referral (International Lyme and Associated Diseases Society) -
here's the link:



ilads.org/ilads_media/physician-referral/
Posted 7/3/2016 3:29 PM (GMT -5)
I edited your post...only to give it a title.
Posted 7/3/2016 3:51 PM (GMT -5)
Hello -
Also wanted to welcome you. Sorry you are here but this forum is full of valuable resources. As suggested, at this stage it's imperative to get to an LLMD/ND for diagnosis and treatment. While you're waiting to be seen, you can read up on Lyme as much as possible to help you prepare for your appts, which is also very important to help you make the most of your appt.

Also, you can start a detox protocol while you're waiting to help your body prepare for treatment. You can find a lot of info about detoxing here in the forum - do a search. Treatment with antimicrobials requires help with detoxing everything you are killing. Sometimes Lyme specialists don't always provide sufficient info to patients about detoxing but you can find it here.

And please ask any questions you may have. Hang in there - we're here to help!

-p
Posted 7/3/2016 8:05 PM (GMT -5)
Welcome Shazer. Just wanted to welcome you. I hope you find the forum very helpful in your journey. You will find a great group of people here who are always willing to help.
Posted 7/4/2016 8:59 AM (GMT -5)
Thank you all so much for your positive feed back I don't feel quite mad now. I'm living in Dublin Ireland I will look to see if I can find a place to be retested.

Thank all
Shazer
Posted 7/4/2016 9:15 AM (GMT -5)
Hi Sahzer!
Welcome to our community! I'm so glad you found us.

There is a resource you may find very helpful: www.ticktalkireland.org/

Testing for these infections is actually not very good, as the Lyme bacteria lowers our immune function. And since the usual testing is antibody testing, it takes a normal immune function to produce those antibodies. Even DNA and other testing that is currently available is poor since the Lyme bacteria doesn't live in the blood stream, but lives, instead, in tissues, organs and other places in the body, only going into the blood stream for reproduction. So there are a very high number of seronegative (false negative) Lyme patients. But, since it's the only testing we have available, many still try to use it to get a positive test for insurance purposes or for peace of mind. It's understandable, just not always possible.

I would, however encourage you to get a Western Blot as one of the tests, as it will show specific "bands", and if you have an IND or positive on what is known as a Lyme specific band, then we know you have Lyme disease.
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