NEED HELP: Herx, Behavior, Feelings of Derealization

I've posted here in the past and I'm still on my initial antibiotic/herbal protocol. Over the past few weeks I have had a consistent Herx from monolaurin and minocycline. I take minocycline twice a day, so throughout the whole day I feel unfocused, spacey, overstimulated and slightly psychotic.

A half a year ago before I knew I had Lyme, babesia and bart I always hung out with my friends, went to parties and was markedly extroverted and fun to be around. My friends still want to hang out with me and occasionally we do hang but as of recent I'm unable to hang for even a half hour before I feel like ALL of my energy is drained and I just want them to go home, before I start to feel this impending doom.

At first I thought this may be psychological; GAD, maybe social anxiety but I get it alone too. A half hour after I take my monocycline and/or MONOLAURIN I begin to become derealized. It feels as if my depth perception becomes slightly distorted and I'm unable to focus my eyes on anything. It feels as if I have to inhibit my behavior like I'm going to spasm out or twitch. Just this inner restlessness and irritability, not to mention the terrible joint and deep muscle pain.

I'm 21 years of age and I'm suppose to be active and worry free but it seems that Lyme has taken me over or at least the herx has. Sometimes it feels like the herx can change my behavior and it torments me! What should I do? I can't keep feeling like I'm crazy.

A few months ago my neurologist also had another Lyme patient who had low-functioning autism and bouts of psychotic episodes and hallucinations. After a year of treatment his autism almost, if not completely vanished and so did his psychotic episodes. He's becoming a lawyer and can talk fine with people now. It feels as if I'm unable to talk to people anymore, like I slur my words or have trouble speaking what I want to say, trouble moving how I want to move, trouble seeing; feels like my motor coordination has been obliterated.

I don't know if Lyme, herx reaction, babesia, bartonella can mimic psychosis, derealization, anxiety, Aspergers, etc. I just want some credence that maybe these things are possibly related because I have never felt anything like this before.

Also, would any LLMD prescribe IV Daptomycin, Rocehpin and Doxy. in combination these can eradicate most of the Lyme in all of its forms, in vitro of course.

Post Edited (birthdaysuit) : 7/4/2016 6:59:40 PM (GMT-6)

Denikeef said...
Hi Birthday Suit,

I am so sorry you are dealing with this. Being so young, I wish for you to be able to have fun too. I feel confident that you will eventually again, so hang in there!

I can't answer the questions about the LLMD. I haven't seen one yet. But I do know that a lot of us Lymies do deal with all of the things you are talking about.

I am sorry that I can't remember, but are you seeing a medical doctor but not a LLMD? If so I would definitely look into seeing one as soon as possible. There are different ways to treat your symptoms and a LLMD would help you to decipher that.

Also, are you detoxing? That is so important to keep those Herx at a minimum.


[www.tiredoflyme.com/detox-methods.html]

Yes, I'm seeing an LLMD and I'm on a herbal/antibiotic protocol. I defiantly need to detox more, what are easy detox supplements/foods/lifestyle that won't drain me of any energy that I have left?

I'm taking r-Alpha Lipoic Acid, Milk Thistle and trying to bump my glutathione levels. Also, take occasionally Epson salt baths and try to exercise.

Herx can cause a lot of the symptoms you described. Or a worsening of them.

Here are some of the methods I use. Don't start all at once. Ramp up slowly and then on the days you are herxing or feeling extra bad add in extras to be sure and get rid of those toxins.

Skin brushing before showers
oil pulling-I use coconut oil (I love this one, but it took some getting used to)
Alka-seltzer Gold (make sure it is gold) Amazon carries it.
Detox tea I use Yogi
Turmeric
Activated Charcoal (two hours away from everything) I do mine late at night.

Also, with the exercise, you do not want to do cardio until you are well. It is not good with Lyme, and will definitely wear you down.

For the fatigue and lack of energy,
Are you taking Eleuthero root? I started it a couple of months ago and it has made a world of difference for me. I use the tincture and started out slowly.

And if you are dealing with insomnia and not using anything to combat that, you will want to look into herbs for that. I use Ashwaganda, but it doesn't work for everyone. Others could suggest some other things for that. The more sleep you can get the better. Take naps if it is possible.

Now is the time to give your self a break if you can, but find what works for you. It is so essential to healing.