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Low Dose Naltrexone and Dietary Changes for the Treatment of Autoimmune Diseases

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Posted 7/4/2016 10:02 PM (GMT -5)
Dr. Mercola has posted another blockbuster article. I 'm not a big advocate of pharma, but LDN seems harmless enough in low doses. Read the article and see if the recommendations apply to your situation.

The major point made is that the combination of the special diet and the LDn gave much better results than either of the methods alone.

http://articles.mercola.com/sites/articles/archive/2016/07/03/low-dose-naltrexone-for-autoimmune-disease.aspx


Don

Post Edited (Heathersdad) : 7/4/2016 9:19:45 PM (GMT-6)

Posted 7/5/2016 1:52 AM (GMT -5)
My nurse just sent me that article ...i have a friend who is taking it and says she cannot stop or weird new pain begins ...i have a script eyeballin me ..maybe it will help vasculitis. .i like endorphins
Posted 7/5/2016 5:10 PM (GMT 0)
I have been using it pretty successfully since I started tx. It has many benifits and an important part of my protocol but it is very tough for some people to get started on... Takes a lot of patience.

-p
Posted 7/8/2016 4:25 AM (GMT -5)
My LLMS just put me LDN so I'm interested in how it works to see how it works for my neuropathy and burning feet. I hope it helps.
Posted 7/8/2016 11:17 AM (GMT -5)
Laker - keep us posted - i'd like to know if it helps the burning nerve pain, too.


I may give the LDN another try.
Posted 7/8/2016 3:15 PM (GMT -5)
I am so much afraid of this treatment, I don't know why.
My LLMD wanted that I start with it, but I refused. I am afraid it will mess my immune system even more, and I am already messed up.
Posted 7/8/2016 4:35 PM (GMT -5)
Blueberrymuffin, I hear you. One of my previous doctors wanted me to start that as well. I got the script filled, but it's been in the bag ever since. My current doctor told me to hold off (glad he agreed with what I was thinking/feeling).
Posted 7/8/2016 4:48 PM (GMT -5)
Cool, didn't notice this thread before. A well met coincidence, considering my recent union with LDN.
Posted 7/8/2016 4:51 PM (GMT -5)
I have done the same with several Meds.

My LLND prescribed Propranolol to see if it helped my shivers...I never got the script filled. It's a BP lowering med.
Then the next appt he asked me if it was working...and I told him I hadn't started it yet...he wants me to do a trial of it.

I don't know what to say at next appt. I am contemplating lying and saying I did try it but it didn't work.
I don't want to get on his bad side....lol.

I also haven't started the Pregnenalone yet...not sure about that either.

I just don't like taking Pharmaceuticals - other than the truckload of abx I've taken....lol
Posted 7/8/2016 5:42 PM (GMT -5)
Girlie you're funny. As far as the propranolol, I have a low dose-10mg. It was prescribed for palpitations and high heart rate. Now you know I already have low bp so I was to enthused to use it. I used a pill cutter and took like 1/4th. It helped. I don't use it now, since I've been doing the hawthorn. And it was given to me to use as needed.

The Pregnenolone I'm doing 2 drops a day (just started again). It's by biomatrix.

After what I've been through with the thyroid and then the SIBO abx, I don't want to take any big pharma unless I most absolutely have to.
Posted 7/8/2016 6:08 PM (GMT -5)
Wow...so you're on two meds that Im chicken to take.

Did you mean you weren't enthused to use it becuz of your low BP?
Mine is anywhere from 110/75 to 105/68 - I don't really want to lower it.

I can't remember the dose of the propranolol. Mine is for shivers...and he wants me to try it to break the cycle - just for 30 days..but I wonder if there we'd be withdrawal symptoms.
You didn't have nervous system vibes or shivers that it helped, did you?

I didn't know you could get Pregnenalone without a script.
Mine is 25 mg pills...I think I would want to start at 5 mg.


What was your Pregnenalone prescribed for?
Mine was for my low female hormones...but I also was prescribed bioidentical progesterone cream.
It's sitting on my counter...haven't started it yet either.
Tried it once before...didn't seem to help..but I may try it again.
After I get my ferritin levels up - I don't like doing too many new things at a time.
Posted 7/8/2016 7:50 PM (GMT -5)
Girlie - Like you say, your BP is pretty low. Propranolol works for tremors - Ive had that in the hands for years, but it was worse with high detox levels and lyme anxiety. It comes in extended release to, so no up and down effect.

I associate "shivers" with being cold. Do you really mean tremors? Because Propranerolo did nothing for my winter time shivers, which I can get HOURS after a cold day, even after a warm meal.

Hashimoto can mess with body temp and create tremors too, in my case I think that's whats going on. I think I can get by on less/ lower dose prop now that the real bad lyme anxiety has left.
Posted 7/8/2016 8:23 PM (GMT -5)
No, I don't mean tremors - they are internal can't be seen by anyone.
So it's like if a really good song comes on, I get these shivers down my spine and legs....or if something on t.v. is exciting me...it's instant.
It's often happening before my brain has even registered that there's something stimulating going on...if that makes sense.

Sometimes when I rub the back of my head against the back of the recliner I get them

I seem to get them more when I'm cold.

It's really strange and they really bother me - not a pleasant sensation to have throughout the day.
I don't know why being cold makes them worse.

I think it's autonomic nervous system run amok.

My LLND keeps asking about my anxiety...but I don't have anxiety..it just happens...

I thought it might be chills from Babesis...but like I said it also happens when I'm not really cold...

My thyroid labs are all good - I had them done three times - several months apart.
TSH < 1. FT3 and FT4 upper end of range.


And they're not quite the same as my vibrations....
Posted 7/8/2016 8:24 PM (GMT -5)
Girlie don't lie unless your doc will be angry. If he is a good guy be honest and tell him your concerns and your fears. They're rational and fears don't need to be rational. He may or may not have logical responses. Either way you open up dialog. He may have an alternative that might not give you the same concerns.

Don-A huge thanks for continuing to post such great links.
Posted 7/8/2016 8:34 PM (GMT -5)
Somebody I'm emailing with said they could be glutamate surges which is common with Bartonella.

He also said that IV glutathione helps them...I haven't tried that yet.
Posted 7/9/2016 1:12 AM (GMT -5)
Interesting girlie .in that they say als is glutimate toxicity and rocephin blocks it some..i also get those shivers when i need number 1 . I know bart is my biggest b..and on the ldn it just is staring at me...i had bad feeling since the bactrim that messed me up...didnt take the colchicine. Didnt take the ketoconzole. Did not take the pregnelaone until recently...and didnt take the buprion didnt take tramadol much ..didnt take the gabapentin .didnt take doxy . Didnt take the h-pac havent taken the rifampin yet ....i not a good patient
Posted 7/9/2016 1:20 AM (GMT -5)
bluelyme - you mentioned pregnenalone - would you mind sharing what it was for in your case?
Did you have a hormone panel done...and you were low?


Did you notice any change with the pregnenalone...and how much do you take?
Posted 7/9/2016 1:02 PM (GMT -5)

Girlie said...
Wow...so you're on two meds that Im chicken to take.

Did you mean you weren't enthused to use it becuz of your low BP?
Mine is anywhere from 110/75 to 105/68 - I don't really want to lower it.

I can't remember the dose of the propranolol. Mine is for shivers...and he wants me to try it to break the cycle - just for 30 days..but I wonder if there we'd be withdrawal symptoms.
You didn't have nervous system vibes or shivers that it helped, did you?

I didn't know you could get Pregnenalone without a script.
Mine is 25 mg pills...I think I would want to start at 5 mg.

What was your Pregnenalone prescribed for?
Mine was for my low female hormones...but I also was prescribed bioidentical progesterone cream.
It's sitting on my counter...haven't started it yet either.
Tried it once before...didn't seem to help..but I may try it again.
After I get my ferritin levels up - I don't like doing too many new things at a time.

Yes wasn't enthused because of low BP and just the fact that I didn't want another med. I didn't have shivers/tremors....at least known that I remember (lol).

My nutritionist used the biometrix brand with many of her patients who did very well with it. Yes, it is for low hormone levels. As far as the bioidentical cream...she preferred the preg, but my doctor says perhaps Prog cream in the future. Don't really want that so hopefully this preg will work.

I'm with you....not too many new things at a time
Posted 7/9/2016 1:15 PM (GMT -5)
Krimpet -

Interesting - I feel better doing the progesterone cream than the pregnenalone...lol.


Do you know how much 2 drops of pregnenalone works out to be in mg? I'm thinking a very minute amount.

If I do it, I will be opening up the caps and taking 1/4 dose of it...I guess I will sandwich it in food...not sure if it's hard on the esophagus going down.
Posted 7/9/2016 1:22 PM (GMT -5)
The 2 drops equal 5 mg.
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