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Doctors who treat MCAD/Lyme?

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Posted 7/8/2016 3:46 AM (GMT -5)
Hi guys,

I've been reading a lot about MCAD recently and I definitely think it is at the root of my inability to tolerate herbs and antibiotics. I've been getting increasingly worse reactions to buhner's herbs that I've been taking for almost a year. Does anyone have a list of doctors who treat MCAD/Lyme? I did a google search but came up pretty empty. Please help, I'm pretty desperate. I really wish I just had a prescription notepad so I could write these scripts myself, I know exactly what I want to treat the MCAD with...
Posted 7/8/2016 7:51 AM (GMT -5)
I'm so sorry that you too are experiencing this, Dazed Pete, but if you would send me an email with the area you live in, I may be of some help. I've helped find a MCAD doctor for another person, and I saved the sites I looked on. I have to go to a doctor's appt with hubby this morning, but I'll be back this afternoon and can look then for you and send you a list (hopefully).

By that time, someone else with the information may be able to be of help, but if I can be of help, I'd love to try.
Posted 7/9/2016 8:24 AM (GMT -5)
Dazed Pete, I am also dealing with the same thing. I can't tolerate most supplements, herbals or abx. Anything that modulates the immune system sets off a flare which causes joint damage. I am currently taking zantac 150 X2 and desloratadine 5 mg X3. I am in Canada and the wait to see an allergist/hematologist is 12-16 months. I did get my GP to prescribe ketotifen, doxepin and I am getting ready to start cromolyn. It's not easy to deal with on top of Lyme. There are a few facebook sites that are useful....Mast Movement is one. Apparently the symptoms of MCAD and Lyme are identical. Dr Afrin told me that all cases he saw were not Lyme but misdiagnosed MCAD. Not sure how you can tell the difference. Dr McS in NY has only treated one case of MCAD and Lyme.
Posted 7/9/2016 12:23 PM (GMT -5)
You might find this helpful - it's an article about MCAD and in table 5 in the article, it gives treatment options:
www.ncbi.nlm.nih.gov/pmc/articles/PMC3069946/

It also has a listing of differential diagnoses, which may help you explore other possible issues, or rule them out.

I have been using one of the meds often used in MCAD and it's been pretty helpful. It's Quercetin. Only I take it at low levels since it helps not only with inflammation, but digestion and can be overused.
Posted 2/16/2017 11:13 AM (GMT -5)
DazedPete1, just wondering if you found someone to treat Lyme and MCAD.
Posted 2/16/2017 2:32 PM (GMT -5)
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