Posted 9/28/2016 9:26 AM (GMT -5)
No, I have not had another SPECT scan, as I had insurance then and a doctor that was really curious - if only he hadn't left the medical field, he was on his way to learning about Lyme through me - he really wanted to learn more, but his practice partners told him he couldn't treat Lyme disease. I admired him, because when he was told that, he quickly changed my diagnosis to Fibro and CFS so he could continue to see me and help me all he could - as I was without any kind of doctor that was willing to see me at the time without him.
For what it's worth, I deal with PTSD myself. I've been working my way through each "situation" that brings it up slowly and carefully, learning to not react immediately, and process my feelings slowly, carefully - and not until after whatever "set it off" is past. I just went through one of those times last night as I was trying to get to sleep. Thoughts of being VERY close to death resurfaced (not that I any more, but still dealing with when I was) and I had to calm myself before the anxiety overwhelmed me yet again. It's a slow process doing it myself, but I honestly cannot imagine the stress of going through this on someone else's time schedule. It happens when it happens, and I can slowly work through my triggers and relearn how to deal with the feelings and panic/anxiety.