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Lyme and rapid weight loss.

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Posted 8/2/2016 12:12 PM (GMT -5)
Hello everyone. Has anyone experienced rapid weight loss while on abx? I feel like my muscles are wasting away. I have lost quite a bit of weight since dieting and abx protocol but it almost seems like an unhealthy amount.

I'm unable to do physical activities to build muscle. I dream of being to exercise again. I need to find a swimming pool nearby.
Posted 8/2/2016 12:21 PM (GMT -5)
Hi azerela,

welcome ..this is my most disconcerting symptom...there is a thread i will find for you where many of us are expueriencing this ..my feet and hands have shown serious loss..of mass and muscle ..i believe it is mitochondrial and nerve related ...treating giardia ascaris and bartonella mycoplasm has slowed the progression down ...i am using bvt and iv abx but some hadnit come right back after 5 months and others are bags of skin and bones ..i dont know what makes the differenc . .it seems like some kindbof vasculitis and a lower moter nueron thing ..high fats , lions mane ,rife i will post link to other thread has a study and other valuable links ...sorry not more help
Posted 8/2/2016 2:35 PM (GMT -5)
http://www.healingwifell.com/community/default.aspx?f=30&m=3654988&p=2

i bumped other thread for you too
Posted 8/2/2016 3:19 PM (GMT -5)
As bluelyme has stated, there have been several discussions on this topic. I have had considerable weight loss since dealing with these bacteria and viruses. It would stop and then start back up. The only thing that I've done this far that actually started helping me gain weight were IV ozone treatments. I stopped in June but will be starting again this month.
Posted 8/2/2016 3:22 PM (GMT -5)
Azerila, Welcome to Healing Well-Lyme. I am so glad you have found us.

Muscle wasting is a symptom that many get. I have heard many say that once the Lyme and co's get under control you will gain back the muscle.

I have lost a lot of weight as well as muscle since January. My hands, arms and feet...everything has gotten so bony. I eat well and yet cannot gain weight. I haven't seem my LLMD yet but hopefully she will advise me.

When you say diet are you talking about changing your diet to eat healthy? I just ask because you don't want to diet per-say as I am not sure that would be good with Lyme.
Posted 8/2/2016 4:12 PM (GMT -5)
I went from 138 lbs to 124 in a matter of weeks when my first symptoms of lyme hit.
I was eating all I could, but nothing worked. My digestion was not working properly - I had undigested food in my p--p (sorry for TMI).

My body was frail looking...muscles just soft and hanging off me. I couldn't flex them.

A year later it was the same (I did stop losing...but didn't get muscle back)...then I started treatment...and I started to gain my weight back, and slowly, ever so slowly I am getting my muscle tone back.

My lyme journey started in April, 2013...diagnosed July, 2014.
Posted 8/2/2016 5:56 PM (GMT -5)
Girlie I would love to be 124 lbs. Hopefully I'll get there.
Posted 8/2/2016 8:27 PM (GMT -5)
Wow. Thanks for the response everyone. I really appreciate it. girlie I know exactly what you mean. Frail muscle tone with weak strength to back it up.
Posted 8/2/2016 8:44 PM (GMT -5)
yup - weight loss - but not the anti-biotic route. I figure with treatment things will improve, and as long as I am eating really well, and all the supplements I am taking, well, it can only get better with trial and error. You might want to track calories. It can be hard to get the calories you need when on a nutritional protocol that makes your body an unhappy place for bacteria. I don't think I was getting enough calories, and started to add healthy oil (coconut oil, olive oil) to more stuff. Livestrong has a great free resource to track calories. You can also journal H20 intake, exercise and such. I am a dancer and have learned to love my body all shapes. 10 lbs. is a lot for me to lose. I am up from 93 lbs. to 97 lbs.
Posted 8/2/2016 9:28 PM (GMT -5)
http://www.ncbi.nlm.nih.gov/pubmed/24397499

I think when we make it in hospitable for the bugs they dive into cells ..causing apitopsis and use things like iron and mg that our cells ,muscles really need ...it infects white blood cells too .at lrast that what i am seeing under thw microscope ...i have to figure this out it is driving me mad ....it seem to treat hard but not to hard as to kill more nerves ... i am still wishing for a few star trek items like a triquarter and a transporter
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