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Progressing to Neuro Lyme?

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Posted 8/6/2016 2:30 PM (GMT -5)
Hi I am sorry to bug you all again with questions, I seem to be having a horrible week here :(

My heart palpitations have let up, only to be greeted the next day with a tingling patch on my left shin, and some tingling in my wrists and hands too.

I am terrified, for the past 7 months I have dealt with muscle and joint pain, some twitching but no real neuro lyme symptoms.

My muscle and joint pains have improved, but now this? Does this mean I getting worse? Is this the disease progressing when I had just felt better for 2 months?

What constitutes neurological lyme disease?

I am afraid I am going to die of this infection, I'm so scared.
Posted 8/6/2016 2:55 PM (GMT -5)
Evianangel,
Your questions are NOT bugging us!! That's part of the reason we are here!! :-)

What are you doing for treatments again? And your detoxing, how's that going? What all have you incorporated so far?

It sounds like you are either herxing or need more treatment - or it could be that you have uncovered a Bartonella infection, as when Bartonella and Lyme come together in the same body, often it results in more severe neuro issues. But first, we need to be sure you are getting adequate treatment and then detoxing well enough.

Have you started anything new recently? Have you raised the dose of anything recently?

Oddly, knowing that these infections rarely kill a person quickly is a benefit. Try to not allow this to scare you so much as it only adds more stress, and makes us feel worse.
Posted 8/6/2016 2:59 PM (GMT -5)
The crazy M.O. of this thing is how the issues can change & migrate. Good to hear your heart calmed down (the name "anxiety" re the fright or flight heart effect barely covers how intense it can be).

Start keeping a journal, if you can. It will help you sort thru what is going on & later remind you if how far you've come. Right now, I know it feels like you are dying, but it will get better. Hang in there. Hugs
Posted 8/6/2016 3:01 PM (GMT -5)
hey traveler :) thank you :)

I am taking LB Core protcol from green dragon (cats claw, knotweed, eulthero, sarispirlla, dandelion). I am only on 3 capsules a day thus far.

I had only been taking cats claw, knotweed and eulthereo prior to that and it was helping. So I decided to order the condensed protocol and teasel. After about a week or two on this, these new symptoms have cropped up, along with a bad herx.

I take epsom baths, supplements for detox, tea, I was in the infared sauna last night, trying to sweat it out a lot etc..

I am watching videos about MS and neuro Lyme and I am just scared stiff, now this tingling patch on my leg.

I never thought about Bart before, because I never had any Bart symptoms before. This tingling is new, hence why I'm scared about having Neuro lyme as that seems to be portrayed as the most deadly and scary.
Posted 8/6/2016 3:11 PM (GMT -5)
It can be deadly for some, but the other side of it is that I've lived with it for 40 years.

Unless you were on full doses of the cats claw, knotweed and eleuthero before starting the Green dragon protocol - that's the culprit. You've added in new herbs and maybe at a higher dose of even the ones you were taking previously.

I would encourage you to increase your detoxing though - just be sure to do it slowly. You need to see how you feel after adding in a new detoxing protocol as you don't want to detox too fast and create an overload of toxins in the bloodstream - which is why we herx.

And, if it helps any, I had a doctor that was so convinced I had MS that when I refused to start MS treatments immediately, he yelled at me at the top of his lungs "If you don't start treatments for MS today, you will die soon!!!" I just wasn't convinced I had MS (I had already survived much too long without any MS treatments), so I just gathered my things and walked out - with everyone's mouths gaping open.

And Happyjo's suggestion of a symptom journal is a good one for many reasons.
Posted 8/6/2016 3:11 PM (GMT -5)
It sounds like you did overdo the teasel. So many here can attest to thinking they had or they were misdiagnosed with MS. That is only a label that underlying cause is forever w/o true understanding. It is very scary, but try not to go "there." When is your doctor appt?
Posted 8/6/2016 6:48 PM (GMT -5)
Happyjo - Yes I used to keep track of my symptoms, I should start doing that again. It can be depressing writing down all these bad things but it is definitely helpful for reference uses! I don't have a doctor. I used to see an LLND but he up and moved and didn't even tell me he was going. He didn't do much for me anyway. Other than order the Igenex test. Maybe I'll find a new one sometime, but I cannot afford to go see one atm, so I'm self treating.

I read an article on a Lyme website that said "MS is Lyme Disease". I thought that was kind of an inaccurate statement, does that mean we all have MS if we have lyme?

And yes once you start looking into other diseases that overlap with Lyme it can really scare you, then I go back to Lyme and I still feel scared knowing that I have it.

Traveler - In my mind I figured the LB Core Protocol was the same as the Knotweed and Catsclaw, I didn't notice the Saraspirlla in there, and you are right the doses are probably larger. I hadn't worked up to a very high dose prior to taking this new combined herb, along with that and the Teasel I guess it just flooded me with toxins.

I feel weird about detoxing, I know it is beneficial but sometimes I feel like it is doing nothing for me. What do you think is the best detox method?

Posted 8/6/2016 7:08 PM (GMT -5)
"I read an article on a Lyme website that said "MS is Lyme Disease". I thought that was kind of an inaccurate statement, does that mean we all have MS if we have lyme? "

That statement means that MS is really Lyme Disease. (It's misdiagnosed as MS...but is Lyme) That doesn't mean everyone who has lyme disease has MS symptoms.
Posted 8/6/2016 7:21 PM (GMT -5)
Girlie - Do you think that people with MS just have a very late stage neuro lyme then?

Personally I don't think all cases of MS are due to Lyme, because MS is thought to be autoimmune in nature, but I didn't read that article either. I would have to research it a bit more. I did read that researches found spirochetes in the brains of people that MS.
Posted 8/6/2016 7:45 PM (GMT -5)
I don't know if all MS cases are due to neuro lyme. I wouldn't be surprised if that was the case, though....if anyone I knew were diagnosed with MS...I'd talk to them about LD.

They don't know what causes MS...and there's no effective treatment that gets patients to symptom free...so what have you got to lose..by investigating Lyme Disease? nothing.
Posted 8/6/2016 7:54 PM (GMT -5)
I know of a lady who has MS in my apartment building, I would like to share with her. I sort of did in the past, but it seems her Neuro Doc already got to her, saying Igenex pulled out all sorts of "positive" tests and it was a scam lab.
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