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smorgasbord protocal plus the kitchen sink( modifried cycle therapy )

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Posted 8/22/2016 12:46 AM (GMT -5)
Ok i am sick and real sick of this ...it is effecting my lower motor neurons ...spirochetes are hiding in my rbc , have lyme ,bart and toxo/proto) hh6,ebv cmv cpn ,had giardia and ascaris ...
i have wussyfooted with bvt and iv abx and herbs but now im mad i want to live and have a quality of life again...

here it is ..mind you nystatin powder ,pbx 100 bil and some specialty things like iv mag ,glutithione ,iv curcumin ,ozone ,silver ,ala ,phosphytadlecholine , high dose efa ,royal jelly ,high dose biotin and collegen,adrenal and thyroid support ,t creme , will be in the mix .

So week 1 n 2
sun-zith ,rifampin
mon- bvt ,herbs (houttynia,teasel red root ,jk, chinese cats claw ,andrographis ,smilax ,paloazul, tcm)
Tue-zith,rifampin
wed-bvt ,herbs
Thurs -rifampin ,iv silver
fri-bvt ,herbs ,iv rocephin,iv zith
sat-roceph,zith

week3
sun-tinidazole herbs
mon-tini, ,bvt
tue- tini,herbs
Wed -alinia ,bvt
thurs -alinia ,herbs
Fri -alinia ,bvt
sat-iv h202,

week 4 take break?(parasite tx)artminisin) build ...bvt on wed , friday with iv glutthione

What do you think ? Too much not enough ...i have a llmd she will test blood panels but she doesnt want me on rifampin more than 4 months and i think thats at full dose to the wall so liver permitting h ..oh also i will be rifing for virus taking l lysine and propolis ,and a little essential oils/ dmso...maybe cordylisis and tramadol for pain and for detox ak gold ,lemon water, bw detox 2 ,epson salts baths ,ozone saunas, ir sauna and nac ,plus q10 and hawthorn for heart ...

Post Edited (bluelyme) : 8/21/2016 11:54:04 PM (GMT-6)

Posted 8/22/2016 6:53 AM (GMT -5)
That seems like quite the heavy-duty protocol, bluelyme.

And, I don't know enough about certain treatments to comment.

However, I believe I've read that BVT should be done when the person is not taking abx (not sure about herbs).

And, I know Buhner says that herbs shouldn't be pulsed and people who pulsed their herbs often relapsed.

Do you think it's possible your body is overloaded with toxins and that is what contributes significantly to your symptoms?

What exactly does your LLMD have to say about it all?

Slow and steady wins this lousy race.
Posted 8/22/2016 12:34 PM (GMT -5)
I would have to agree with CD on this. That's a really heavy protocol and you could make yourself worse with it, not better - so please do be careful and don't be slow to stop things if you seem to not be able to pull out of the herx that will most likely set in. We sure don't want to hear that you are in the hospital because of this!!
Posted 8/22/2016 5:02 PM (GMT -5)
Thank you ,cd and trav .My apitherapist was asking about my metal burden today...but i know that i know that bart or myco is what is eating my nerves ....others abx load are much heavier ...dr j and dr h use much much more ? Dave martz used 4 grams a day of rocephin to pull him self out and needs abx or relapses...

So try with all my might ..or wither away...
the twitch subsided when i did iv abx 4 and 3 days a week ,stung 3x aweek and supported liver ?
i wish i could trust that herbs and bvt were gunna do it but 9 months in i chose to get a port .i have a daughter and a fiance. I believed in the chronic tonic and still do i just think my case call for more drastic measure ...

btw the 3 er visits when i had chest pain and vertigo were of no help except to say i have a partial rbbb block, which lets me know the nerves of the heart are affected .
we are left to ask strangers who also are ill ,self treat ,be guinea pigs ,and live or die trying ...i am not going to go out on a cpap with a trachiotomy ,gasping
for air . My livedo is a little better and i will stop and or reverse this muscle wasting ...so i was hoping for some confirmation in this uncharted territory but idk ...maybe a try houttynia for another month before adding rifampin ? or stick with the iv stuff or something, try vanco and gentimycin ...notjing ventured nothing gained and other cliches
"better to burn out than fade away"
Posted 8/22/2016 5:23 PM (GMT -5)
It's not just the amount of abx that you are using that made me say that, it's all the different therapies that you would be using throughout it. I know very little about the abx that are used, so I usually don't even try to comment on them.

I do understand - I was willing to use whatever I needed to as well to find some improvements in my quality of life at least - but I was surprised with healing the first time around. I guess I'm one of the "lucky ones". And I don't think there are 'more drastic measures' required - just different depending on exactly what's going on with the body and the number of infections a person has. We are all so very unique and Lyme proves this.

If you were to slowly add in each thing, monitoring yourself closely, you might be able to work in each thing - of course, and as I'm sure you know, you also have to make sure you are detoxing well and supporting as many aspects of bodily functions as may be struggling.

I'm sure I speak for CD as well when I say, we are just concerned for your safety with all of that all at once.
Posted 8/22/2016 5:30 PM (GMT -5)
I don't know anything about bvt and very little about antibiotics.

I do know about herbs and when I missed a dose it was detrimental to my healing. I missed it once and was set back.

I am not in agreement with pulsing herbs. They are meant to work in synergy and a break in that synergistic rhythm is not how they are designed to work.

Just my opinion..... And we all have to find our own way.

Please let us know how it goes.
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