Chronic Lyme Rant - Any hints/tips beyond Buhner?

Alright so first things first. Diagnosed first time in 4th grade in year 2000. EM rash, high fever, two weeks of antibiotics...symptoms in remission, all is well right? I guess not....

During high school starting getting headaches, upset stomach, TMJ, anxiety, depression, just an overall feeling of declining health. Everybody says im a hypochondriac, yeah yeah yeah, still pretty healthy "looking" play school sports, all that good stuff.

Freshman year of college - diagnosed with major depression, given plentiful amounts of prozac and klonipin, so thats my problem right? Just slap more drugs on it and make it go away for a while.

Junior Year - Diagnosed with Lyme disease for the second time, starting to get suspicious but I take the two weeks of antibiotics and feel a bit better. On with life, and taking prozac, lots of prozac.

Graduated 2012 - Still dealing with depression,it gets worse....more Prozac!

2015 - Diagnosed with Lyme Disease - went to IDSA - well thats one mistake i suppose haha. They tell me its a false positive, well the test says postive, but your false positive, ohh whats that IgG and IgM both say 41,23 kDa - nope, false positive, maybe you need to switch anti-depressants. Hmmmm, maybe I do....

2016 - Feeling very sick as of July 1st, Sick through entire month, very tired, nausea in morning, achy, depressed, ohh yeah and I have like 40 floaters in each eye....life is tough man. Go to ER because im at work like "*** mate" and my boss is like dude "*** man" They say, no your healthy, you need to take more pills son.

A few days later- WB comes back positive, same bands 41,23 kda. Dude *** - Well obviously two weeks isnt long enough, so doc says, no two weeks is totally cool. I say, "eh" im going to see a specialist. Doctor looks at me like your nuts dude, its all in yer head...

Lyme Specialist ILADS, all that cool "conspiracy against the CDC (who sucks with lyme fyi) stuff" says - "its pretty obvious you have chronic lyme, lets put you on 6 months to a year of 2 antibiotics (Cefuroxmine Xetil) a day. I'm thinking, ok....so like what am I supposed to do, Im 26 and look fine, people are gonna call me a hypooooochooooondriaaaaac again...I start treatment.

Herxin Herxin Herxin - at least i think so, cause I feel kind of like how I feel death would feel. But ok lets not get too bumbed....lifes hard right?

Second Appointment with specialist - CD57 tests came back. I score a 34, your supposed to be in between 60 and 360, and at my age like 200. Well better than zero anyways.

So my question is.....ohh god I have lots of them, but for starters, I am reading Stephen Buhners newest big fat book right, and doing the core protocol about to start supplements for eye floaters as well... Is there anything else that I should do, or not do, (im also avoiding added sugar, gluten, and un-fermented dairy) to get rid of this lyme thing once and for all. Who knows, maybe I'll be able to get off this prozac eventually, maybe....lets not get too far ahead of ourselves here...

Thanks all who read :)

Hey thanks! Tired of Lyme has been a great resource for me. I would highly recommend it to anyone looking for support while going through a herx as well!

Welcome! Lots of knowledge out here, and you're not crazy at all!!

If you haven't started your herbs yet...start low and titrate up slowly.

When we say 'low' - we mean drops i.e.: one drop at first.

Girlie said...
Hi goldengoose - welcome to our community!

Yup, you were under treated in year 2000.

But, I'm glad you're on the right track now.

what else should you do besides the antibiotics and Buhner's herbs?

Detox.

Here is a link to a website with a lot of good detox ideas:

www.tiredoflyme.com/detox-methods.html


You could start right away with:
- Drinking at least 8 glasses of water daily
- Squeeze some fresh lemon juice into some glasses
- Take liver support supplement (milk thistle extract)
- Take probiotics.


Every few days you can add in another detox. Some examples of what I do:

- warm epsom salt baths
- dry brush your skin before the baths
- light exercise to increase your circulation
- Take alka seltzer gold (you can get them online - Amazon or iHerb)
- Take a binder - eg: Activated charcoal


We suggest all new members take a look through the thread at the top of the page titled: "New to Lyme?..Start Here!" Its' packed full of useful information.

what does the gold thing do please? thats a new one from me, i looked it up and its an tummy tablet?

waterbee said...

Girlie said...
Hi goldengoose - welcome to our community!

Yup, you were under treated in year 2000.

But, I'm glad you're on the right track now.

what else should you do besides the antibiotics and Buhner's herbs?

Detox.

Here is a link to a website with a lot of good detox ideas:

www.tiredoflyme.com/detox-methods.html


You could start right away with:
- Drinking at least 8 glasses of water daily
- Squeeze some fresh lemon juice into some glasses
- Take liver support supplement (milk thistle extract)
- Take probiotics.


Every few days you can add in another detox. Some examples of what I do:

- warm epsom salt baths
- dry brush your skin before the baths
- light exercise to increase your circulation
- Take alka seltzer gold (you can get them online - Amazon or iHerb)
- Take a binder - eg: Activated charcoal


We suggest all new members take a look through the thread at the top of the page titled: "New to Lyme?..Start Here!" Its' packed full of useful information.

what does the gold thing do please? thats a new one from me, i looked it up and its an tummy tablet?

The Alka Seltzer gold - changes our ph from acidic to alkaline.

I don't know what the 'gold' in particular is...and how it differs from 'regular' alka seltzer.