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About to start CBD Oil and I thought I would post what I know but will take input on dosage

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Lyme Disease
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Posted 10/15/2016 10:31 PM (GMT -5)
So I went to see Dr Jemsek on the Oct 4th. Pain is one of my big symptoms. I am taking LDN 4.5mg once daily. That is great at taking care of my muscle pain. Im taking Plaquenil twice daily originally for joint pain. That is what led me to the Lyme diagnosis. Plaquenil is an anti malarial and changed some of my symptoms (sweating, joint pain, etc) that are consistent with Babesia.

So the pain that isn't controlled is headache pain, the ice pick thru the eye pain and the pain that radiates from the base of the skull down the shoulders U up the back of the head.

So at the appointment Dr J said pain comes in two types. One is the muscle pain that the LDN seems to be taking care of. The other is what he called "don't touch me pain". I was surprised because that is exactly how I would describe it but I've never heard anyone call it that. He said its basically the CNS run amok. So he added another anti seizure med Lamictal. Im working up to the full dose of 4 tabs twice daily.

He also recommended CBD oil to help with the pain. They think pain has to be well controlled for the Lyme treatment to be effective. But he gave me no direction on the dosage for the CBD oil.

I found this thread from Jan 2015.

https://www.healingwell.com/community/default.aspx?f=30&m=3294775

One thing I can tell you is that the Bluebird Botanicals (one of the brands Dr J recommended) "Bulletproof" formula is now called Signature. The thread indicates that Bulletproof was the one recommended. They have a 6x version so you can get a larger dose in fewer drops but I'm going to start with the standard. The standard is 4.2 mg for 15 drops.

I'm thinking I will start with standards at about 3-4 drops twice daily then add another drop every three days until I get to 25mg twice daily which seems to be the max dose (15 drops of 6x strength twice daily).

Any advice would be much appreciated.
Posted 10/15/2016 10:54 PM (GMT -5)
When I was taking it, it was in paste form and came in a syringe (without the needle)

The recommended amount for Lyme was 1 grain of rice twice daily.
So I don't know how this translates to the brand you are taking.

I will try and find more information on it.

But good idea to start low and slowly increase.

Don't be surprised if you herx on it before you get relief from it.
Posted 10/15/2016 10:55 PM (GMT -5)
If pain has to be well controlled to heal...then I'm hooped.
Posted 10/15/2016 11:34 PM (GMT -5)
I don't know if that is what all docs think that's just what they said to me.

I also forgot to say that the CBD oil contains only traces of THC which is the psychoactive parts of marijuana (CBD comes from hemp not marijuana).

But Dr J also prescribed Marinol on an as needed basis. It is the synthesized version of THC. Luckily it works to take away the really bad pain but I'll be limited in the amount I can take. It also shows up in the bloodstream for weeks after you take it. So if you are taking it and get pulled over by the cops and they eventually request a blood sample then you need to mention that you have the script right away. Then you have to show proof of the script.
Posted 10/15/2016 11:46 PM (GMT -5)
I wonder if Marinol is the same as Nabilone...sounds like it.

I should just get a prescription for marijuana - don't have to smoke it - can get edibles.
Posted 10/16/2016 12:04 AM (GMT -5)
I'm on Bluebird's CBD oil for pain. I take a full dropper full 2x day. I've been on it a few months and it's done absolutely nothing for my pain. I won't be buying again, but I hope you have much better luck with it than I did.
Posted 10/16/2016 1:31 AM (GMT -5)
I got mine from Holistic Hope as recommended by Dr Murakami then found a supplier in UK much cheaper as postage from Florida was very expensive. Mine were always in paste form and like Girlie I was advised to take the equivalent of a grain of rice sublingually twice a day. I definitely improved while taking it for four months but plateaued as needed to increase the dosage. This wasn't possible as would not have been able to afford the Buhner protocol as well.

Only stopped due to financial reasons and really hope to add it in again once funds permit !

It helped with the pain and the anxiety symptoms.
Posted 10/16/2016 9:55 AM (GMT -5)
I've been on CBD for about 2 1/2 weeks now and am really happy I chose to try this. My pain is greatly reduced, nausea is completely gone, I have better energy and stamina, am sleeping better, I can actually get up and move in the mornings, my chronic pain my thumb joint is reducing (not gone yet, but better), and feel as though I am actually healing. There are more pluses I'm sure, but these are the ones that come to me right off. I take about 20-25 mg per day, depending on the day I take an extra "shot". I just ordered a concentrate that's 50 mg per dose and feel comfortable amping up to that now. This is great stuff and I feel that I am at the right point in my treatment to do this and be successful. I really do feel as though it is gently healing me, not just making me feel better. I'm very excited for the future and I suggest you give it a try and see how it goes. The cost is about what I'm paying for my supplements now and I'm weaning off of them as I work up on the CBD. I do find that I need to take the magnesium daily still or else I get cramping, but other than that, I haven't noticed a problem with not taking the other million supplements. I am using the Kannaway brand because of the way it's grown and processed. I believe it's more expensive than Bluebird, but this is the brand that I feel comfortable with.

Good luck!

Jenny
Posted 10/16/2016 7:39 PM (GMT -5)
OptimisTick, sorry it didn't help. I have read tho that some people have to take it over months before seeing a benefits.

Girlie, yeah Marinol is the brand name for Nabilone. I live in NC so no chance of ever getting medical marijuana script. Its possible to inhale CBD oil. They make a version that can be vaporized. I just am not the smoking (or vaping) kind. I've never had a cigarette but many smokers in my family turned me off to it. Never even tried marijuana when I was a youngster.

suzee, jennysetter, Thanks.
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