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For newbies, a great article on effective protocol

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Posted 10/20/2016 9:22 AM (GMT -5)
My doctor follows Marty Ross' work closely. Here is a great article that explains the hows and whys of treatment, with both pharmaceutical and herbal components. Interesting, he thinks post lyme syndrome is potentially cytokines produced by candida overgrowth, which can cause some of the same herx symptoms and damage as lyme.

http://www.treatlyme.net/lyme-disease-treatment-guidelines/
Posted 10/20/2016 9:38 AM (GMT -5)
I think it is a great article, but it doesn't tell people that they may not be able to take some of the things. It immediately says Doxy. It was summer when I was diagnosed and my llmd automatically prescribed this for me. I was fortunate to know Doxy's properties and said to my doctor, "I am in the sun for hours in the day." He ordered Ceftin.

I just hope that new people that read it remember that if this was "the cure" for lyme, everyone would already be doing it.

Lyme is complicated and even more complicated by co-infections and not everyone can do the protocol that is listed because of either other meds they are taking or allergic reactions to those listed.

I also get nervous about people reading this and then ordering online some of the drugs without being aware of the side effects - like Ambien - depression can be intensified and lack of balance.

It is a great resource, with some awesome facts, but I think it should be approached like a smorgasbord - take what you can use and leave the rest.
Posted 10/20/2016 9:47 AM (GMT -5)
As someone who is trying to wean off Xanax, please, please do not take Kolonpin unless absolutely necessary (especially on a regular basis). I had no idea what Xanax was when I was put on it long before I was diagnosed with Lyme.
Posted 10/20/2016 6:34 PM (GMT 0)
I agree, Peteza, but people have to start somewhere.

Sissy63 - I'm sorry you are having issues. I was on both klonopin and Xanax at various points and found both very easy to get off, so I guess that illustrates Peteza's point exactly! Bio-chemically we are all so different. That's what makes this such a hard disease to conquer.
Posted 10/20/2016 1:44 PM (GMT -5)
I have a subscription to the "TreatLyme" online 'book' and there are a lot of options he provides for treatment of lyme, bart, and babs.

I often refer to it when checking dosages...etc.
Posted 10/20/2016 3:32 PM (GMT -5)

cr3ativegirl said...
I agree, Peteza, but people have to start somewhere.

Sissy63 - I'm sorry you are having issues. I was on both klonopin and Xanax at various points and found both very easy to get off, so I guess that illustrates Peteza's point exactly! Bio-chemically we are all so different. That's what makes this such a hard disease to conquer.

How did you get off Xanax and Klonopin? Did you get off them after your Lyme treatment? Did you take any supplements to help to get off? Any suggestions would be greatly appreciated. As long as I go super slow, I don't have too many issues.
Posted 10/20/2016 7:32 PM (GMT -5)
I wasn't on very high doses; maybe that makes a difference. I don't know what you are on. The klonopin I just stopped cold turkey and nothing happened. That was about 5-6 years ago, way before Lyme issues. The Xanax, I just kept cutting them in half and taking less and less, very slowly. Sounds like you are doing the same. I will say, that until I got my Lyme/Bart/Babesia under control more, my anxiety was beyond ridiculous. And I refuse to feel bad about taking something to help with it. Taking Xanax kept me from a very dark place - perimenopause issues worsened by undiagnosed Lyme. When I decided to quit, I took a lot of magnesium and B-vitamins, all of which help with the nervous system, plus melatonin. In my case, I just decided I didn't want to be on them, so I just worked on living without them and stuck to my plan. I wish you well, I really do!! Just be kind to yourself. The last thing you want to do is judge yourself and cause yourself more guilt and suffering. We've been through enough of that.

Recently, I started an herb called Motherwort which is very helpful. Maybe check it out?
Posted 10/20/2016 7:43 PM (GMT -5)

cr3ativegirl said...
I wasn't on very high doses; maybe that makes a difference. I don't know what you are on. The klonopin I just stopped cold turkey and nothing happened. That was about 5-6 years ago, way before Lyme issues. The Xanax, I just kept cutting them in half and taking less and less, very slowly. Sounds like you are doing the same. I will say, that until I got my Lyme/Bart/Babesia under control more, my anxiety was beyond ridiculous. And I refuse to feel bad about taking something to help with it. Taking Xanax kept me from a very dark place - perimenopause issues worsened by undiagnosed Lyme. When I decided to quit, I took a lot of magnesium and B-vitamins, all of which help with the nervous system, plus melatonin. In my case, I just decided I didn't want to be on them, so I just worked on living without them and stuck to my plan. I wish you well, I really do!! Just be kind to yourself. The last thing you want to do is judge yourself and cause yourself more guilt and suffering. We've been through enough of that.

Recently, I started an herb called Motherwort which is very helpful. Maybe check it out?

I am tapering down about 1/6 of a .25 mg every 10 days or so. I am currently just under .75 mg. I have been as high as 2.5 mg. They never have taken away the anxiety. I tried Klonopin and it made me very depressed.

I need to look into Motherwort.

I am encouraged that the anxiety was under control once Lyme and the co-infections got controlled.

I had a hysterectomy about 10 years ago and have been all over the place trying to get hormonally balanced. I am not on any right now and MA be doing better. I am gradually increasing NatureThroid.

Thanks for sharing!
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