We have another new Moderator - julymorning!

Welcome, Julymorning!

Thanks jenny!

Oh, my story is sooo long. I was one of those healthy-as-a-horse people until having major run ins with nymph ticks where I lived. I began having weird problems and running to the E.R. in 1985. Years and years of ridiculous tests and diagnosis' and was labeled with Fibro, which itself wasn't really accepted back then.
Fast forward to around '92, another tick run in putting up a fence in a wooded area, got really high long running fevers, original doc had me tested for lyme, Infectious disease doc said I had false positives. I got sick several times over the years but the worst that I remember happened after arm/shoulder surgery. Running low grade fevers every afternoon, for months at a time. My Internist had the standard tick panel done, and I was positive for Rocky Mountain Spotted fever a year ago last May.

I found this forum, trying to find out about RMSF, and in the process read and heard so many stories about what people were going through with Lyme, and I would sit here and cry, all of my ailments over the years were being repeated by all these strangers! I DID have Lyme! And RMSF, and God only knows what else.

Anyway, my Internist gave me the abx protocol sheet from an LLMD, and I had about 6 months or so of abx. Herxing horribly with the Doxy not having knowledge of the benefits of detoxing. I did have much improvement by the time I was done with the Zithromax, but FLagyl did NOT agree with me and I had to stop taking it. The Doxy sent the Lyme to my brain, FLagyl can get past the brain blood barrier, but the aftermath of the die off did things to my personality I don't want to re-visit.

At this point I am stock piling herbs, still have some abx left over from last year, but just pulled myself through some adrenal fatigue, am currently having some bad breathing issues and am afraid of taking anything since I have no medical support whatsoever if something goes wrong and I end up in the e.r. I'm afraid they'll give me the wrong thing and that'll be the end.

I have much to learn yet about going the herbal route, between all these good folks on this forum, and my S. Buhner Lyme 2nd edition book, I should be well equipped.


As for the forum, I have insomnia so I'll usually be on here late evenings to middle of the night. I am 65 and take a number of breaks during the day and will check in.

Feel free to email me about anything, even if you just need a friend to chat to.

You got this july!

bluelyme said...
Thanks julymornin...have you checked for the cpn for the breathing issues ?

Sorry bluelyme, what's cpn? I don't recall it on the list.

I did find out what I was looking for in Buhner's book in the rmsf section. It is something rickettsia bacteria does damage to. I've read his herbal protocol, there are a few things I'd not heard of and will have to look into getting.

AT this time I'm researching vascular coagulation and whether or not it has any bearing on the breathing problem.
I'm still wanting to blame the large white mass inside one of my sinus cavities for harboring large amounts of bacteria and other damaging things that has made a thick trail down through my throat and esophagus.

Honestly if it weren't for that I believe I could function quite normally again, within the limits of my pain control.


Oh, and thank you for the welcome bluelyme, and 3humpedcamel.

We all make a great team, and I thank all of you for the help and encouragement given me along the way. It's all been very inspiring and I'll do my best to try to give it back 10 fold.


UGH! If I would just remember to not post in the quick reply, that leaves off my signature.

Post Edited (julymorning) : 10/21/2016 11:54:31 PM (GMT-6)

bluelyme said...
See www.cpnhelp.org ..itnis a opportunistic infection .most of the population has it ..it is polymorphic systemic intercellular bugger too ...it is implecated in copd ,ashma ,ms and others ...

Ok, thanks bluelyme, I'll get back to you after reading it.


I just checked what wiki said about it, and their (wiki's) information is either outdated or incomplete. Buhner picks up on the endothelial dysregulation in his book starting in chapter 13, my unlucky number, it seems.

I'll look up your specific link tomorrow.

Post Edited (julymorning) : 10/22/2016 1:05:09 AM (GMT-6)

Welcome to the Mod Squad, julymorning!

Thanks so much for joining us! You bring a wonderful perspective that benefits all.

Congrats! :)

Congrats and thank you!!

julymorning, I have a few questions about your Lyme journey. what exactly happend when you took Flagyl? Why did you need to stop? Have you tried Tinidazol instead?

Julymorning,

I appreciate you telling your story. I think it helps others. I too had the isolate/easy to anger. I think it's the die off and the body being too weak to deal. Glad you stopped the Flagyl. I hope you are on the road to getting better. Please keep updating us on your herbal protocol.

Blueberry I do a mixture of essential oils that are for lyme: clove, cinnamon bark, thieves, frakincense, oregano. I put them in a base of coconut oil and rub all of soles of feet. I really believe they pull bacteria down and away from brain. I know they are doing something. I had two giant callouses in the middle of each food. Nothing would get them to go away. I had them since I was a child and a healer told me that it was from both my parents smoking (and they did). Anyway they are both completely gone. And it wasn't the CO since I have put ever cream, callous stuff on them for years.

You cannot imagine how happy you've all made me with these welcomes, thank you's and congrats.

My email is always enabled if anyone wants a private conversation about an issue, feel free to contact me!

I am absolutely not near as knowledgeable as our other Mods but I have a sympathetic 'ear' and can share Lyme stories. Between Traveler and I we have amassed 70 years of them.

Gosh that sounds horrible. With myself my years were interspersed with many long comparatively good stretches too though.