What to ask my doc?

I go in for my one month followup on Tuesday. I am one month into treatment and feel pretty much the same. Have had one really bad herx but the rest of the time I've felt as I always feel, super fatigued all the time, insomnia, non restful sleep, migrating aches and pains in my muscles, joints and bones, burning pain, migraines, brain fog... I don't even know if I even did herx or if it was just a run of the mill awful migraine attack. I've had plenty of those in the past for no good reason.
I just feel like I'm making no progress. Here's what I'm taking:
DIM
Calcium D Glucarate
Methyl-folate
Migralief (magnesium, B2 and feverfew)
Mitochondrial NRG (included curcurmin, resveratrol, B's, ect.)
Samento
Banderol
Pinella
Burbur
Armour Thyroid
Benedryl (to sleep)

Should I be feeling at least SOME improvement no matter how minimal at this stage? I feel like the only thing that has changed is the color of my pee with all those B's!

julymorning said...
IMO, you are herxing with those symptoms. What are you doing to help your body detox?

I would agree if those symptoms hadn't been present prior to starting treatment. All of those were there before I started taking anything, they were actually what drove me to the docs. They haven't gotten any worse.
As for detox, the burbur and pinella and Epsom salt. But again, none of those things make any difference. The burbur and pinella make me feel gross just because they taste like chlorine.

Does hot water or massages make you herx?

I know people who dont herx on antibiotics but herx on herbs and others who dont herx on herbs but herx on antibiotics. Everyone is different.

jennydancingfish said...
Does hot water or massages make you herx?

I know people who dont herx on antibiotics but herx on herbs and others who dont herx on herbs but herx on antibiotics. Everyone is different.

I am always at temperature extremes. So I get bone chillingly cold and the only thing that will warm me is a hot bath. Then I inevitably get overheated, ect. I don't think that's a herx. I am not looking to herx but I am looking for some type of upward trend, even if slight.
I'm just lying in bed with another migraine, tired of feeling bad and wondering if I'm on the right path to healing. Is there any tests I should ask my doc to check for?

I would ask him the exact thing you asked us and see what he says. See what he suggests, but I'm betting he's going to say what Girlie said.


I could be way off base, but in my decades of symptoms without 'treatment', I felt like that sometimes, and more so the last 2 1/2 years. In my understanding, a Jarisch-Herxheimer Reaction is a reaction to a large amount of 'bugs' killed. It's your immune system trying to deal with the toxins. To me, the feeling sometimes is exactly like when I am 'coming down with something', and probably running a fever, but not necessarily have a fever, I've found.

You can encounter circumstances that can cause a large die off of organisms, without being on abx or herbs directed at killing Lyme. A hot shower, overheating your body working...probably many things that inexplicably create an unfavorable environment for them, thus killing them.

IDK. I'm trying to teach myself that I should look for the most obvious causes so that I don't drive myself crazy overthinking, which is a bad habit of mine.

ChickNorris said...
I think my nerves are just going nuts. I need to calm them down somehow. I am pretty sure I am experiencing occipital neuralgia along with my regular migraines as well as all the other nervous system symptoms.

I do the same thing julymorning, over analyze everything and second guess my choices. Lol!!

I hear ya on the 'nerves are just going nuts'.


...and I also over analyze everything, second guess choices...
Just did it with the LDI. Now I don't think I'm going to take it...after staying up late last night watching Youtube videos...on it..