My out of body episodes

I just started Doxy (200mg/day) last week and have been having what can best be described as out of body episodes. My body goes numb, I become disoriented and confused and cannot speak. When these episodes are severe, my muscles in my hands and feet contract and I cannot move or speak--when I do I studder. These episodes are scary and exhausting and have given me a bit of social anxiety because I'm scared of having one in public!

Anyone else experience this? Could it be anxiety related to Lyme?

I think that has been referred to on here as "de-realization". It can happen with Lyme, not necessarily just from Doxy.

My first guess it's an ammonia build up and or toxic die off of bacteria. What are you doing in the way of helping your body detoxify? We have many excellent suggestions in our intro section.

www.tiredoflyme.com/detox-methods.html

Yep!! Ha ha ha!!!

Stress impacts my symptoms pretty much immediately.

my nervous system gets ramped up...and then pain sets in.

Just doing the income tax return this past year...I was having some trouble with my calculator and adding up some expenses...and sure enough, i got flustered...and then there was no turning back....nerve pain set in...


Regarding detox - are you taking a binder?

Lpenkower,

Sorry you are dealing with that. I didn't exactly that on Doxcy. but I did have terrible anxiety, vivid nightmare type dreams, and I would have trembling, my husband would hold me and they would subside. This was at the beginning of my diagnosis and taking the Doxcy. I have never had it since stopping Doxcy. It also didn't happen the entire time - probably the first month.

Good luck.

Yes I get almost the same thing. My hands and feet tighten up a bit. I feel like I don't want to speak and my body feels like it literally just powered down. I would describe as de realization as well. I have no idea why it happens. I feel like it could be from a herx. I know my llmd said my whole nervous system is completely out of whack. My sympathetic and para sympathetic are the furthest out of sync they could be. He tests it with a stress test heart type monitor. I will ask the actual name when I go back.

How often do you get it? I get it on and off and I guess it could be more so when I am really run down, but that is a lot lately, so not sure. I do think it has something to do with die off.

Leah

HahaI just saw the slap myself....going To try that next time!

Hahaha...that's how I feel!

I just tried to research it a little and I think it is a heart rate variability test. It is for autonomic nervous system. They put a halter around you like a band you would wear running...and then you lay down and breathe deep for a few then you sit up then you stand up. The whole while it is monitoring the beats and the responses. Mine was really bad :( I already have POTS but he said my whole nervous system is really bad. I will ask for the actual name.

And yes I feel fine one minute or for me fine is like the flu nd hungover, but I am able to talk and sit up and converse....and then it just hits me and I feel like I can't do anything. Things do go numb on me all the time but once in a while my hands and feet do lock up or become really really heavy.

Let me know please if your doctor figures out what could cause this:)

Leah

When I get that "powering down" I say the wind up key in my back just quit again.

"The wind up key in my back just quit again." LOL!

Great visual. Mine is making that running low sound right now...

Thanks everyone! This has been really helpful. For a minute there I thought I was going crazy and it was the result of something I was doing or not doing. No more traveling for me for awhile. Going to sit tight and let my body heal.