Interesting info to share from today's LLMD appt

So my LLMD is fairly convinced my major issues which will not go away no matter how long/what I take is my immune response. Sure I'm continuing to take abx but my immune system has got to be modulated to not cause the severity of symptoms I'm experiencing.

We're trying LDN again going 4.5mg. If after a month no progress I'm adding in CBD Oil. Did some research on it seems pretty safe.

He also mentioned UVLrX is starting up again and his patients (of which there are many) are seeing 30-70% improvement in symptoms. He's also been adding Colloidal Silver IV's and seeing good results as well.

LDI may be in the cards as they've really fine tuned it over the last 12-24 months.

I was going to say LDI...It can promote tolerance so your immune system doesn't go wacko. Even if there's a small amount of bacteria (assuming we all never really get rid of it) your immune system could still be going crazy.

Good luck...Hoping the things you mention above work for you! Sounds like a good plan. I love having a good plan of attack.

Rikky your doc sound progressive and good ...the one think that calmed my vasculitis ,was iv curcumin and rocephin ..both anti-inflammatory. ..the curcumin can be gotten from a compounding pharm in az and works in cancer tx if he will order it .it really calmed my cytokine storm...

Rikky, good options all around. I've done 2 rounds of LDI. The first round good response. Second round...horrible.

CBD oil sounds great. It was offered to me, but haven't tried it.

I like anything with UV...UVLrx, UVBI...can't go too wrong there.

Haven't tried the LDN. Filled the script never used it. Lol

Let us know what you decide to do next.

Didn't get to the IV silver while in FL, but all the patients who had gotten to that level of care said that once they started that that's when they began to feel their best.

Girlie said...
Krimpet - Did you have symptom relief after the first round of LDI...but not the second?

Did you do the same dosage...and how many weeks after the first?

I'm curious about it.

I wonder if it would be better going directly through Dr. Vincent. I've watched the videos...and I wonder if my LLND would be as good at knowing whether to raise, or lower the dose...etc.

I had better energy and I just felt good the first time. That lasted about 7 days. But here's the thing. My doctor and I discussed giving me the EBV first round. Now when I saw him again about 5.5 weeks later , he had it written in my files that he gave me something else. I'm like what?????? So then he says well let's just do a booster of EBV at the same dosage and see what response we get. Well I didn't feel good at all.

So personally I'm not sure how well versed this doctor is in LDI. If I try it again I really don't think it will be with him. As you pointed out, I don't think he knows enough about raising, lowering, etc. My other doctors office does it and I think they are much more experienced in that. My 3rd doc doesn't use it. He used the LDA and he didn't get good results so he decided not to even pursue LDI.

I am wondering what LDN is.... ? Thanks