Lyme arthritis - please help

I would continue Buhner's treatment and continue detoxing. Lyme does migrate to all different parts and it can get worse before it gets better. Keep on detoxing to get those toxins out of you!

Hi Yellow Cat!
Welcome to our community! I"m so glad you found us.

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html

Yes, there are only a few infections that will produce a herx - Lyme and candida being 2 of them. The fact that you are herxing shows that you likely have one if not both of these infections. It kind of depends on your exact symptoms, although differentiating between Lyme and candida herx is difficult.

Do you really "need" to prove you have Lyme, or can you just continue on with treatments?

My Lyme arthritis improved greatly when I healed the first time - but I got reinfected and it's haunting me again.

Do you still have access to your Lyme tests? And would you be willing to post the results here? We can usually help when the results aren't clear. It won't be enough to 'prove' you have Lyme, but can be helpful in determining if you are on the right track.

Detoxing is a major part of our being able to heal, so I would encourage you to make sure that you learn all you can about detoxing, as we all need/tolerate different detoxing methods.

gene mutations, mold exposure and multiple tick-borne infections can all prevent us from detoxing well, but we must be able to get those toxins out of our bodies. We need to detox by several means daily, as detoxing has a cumulative effect - the more you do, the better your body is at keeping those toxins flowing.

For example, I have not had any of the gene mutation testing done, although I do seem to have the same kind of issues as those that do - so I figured it was best for me to assume that I did and work to get my body to detox much better. It took a lot of diet changes as things with my body changed,
I use a foot soak,
dry skin brushing,
Lymph massages as needed,
making sure my bowels moved at least once a day (sorry if it's TMI!)
pushing myself to drink at least 64 ounces of lemon water each and every day,
liver/gall bladder flushes (all natural) as needed,
Apple cider vinegar,
Quercetin,
Alpha Lipoic Acid,
oil pulling with coconut oil and a few drops of tea tree oil,
using Yogi brand detox tea,
taking activated charcoal (when necessary),
and keeping the amount of stress in my life at a bare minimum.

I think there's more I do to detox, but my brain is not working so well today. lol.

You can find some really good detoxing suggestions in the "New to Lyme?" thread that sits at the top of the forum.

And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html

Traveler where did you hear only a few can cause herxing? Off wiki it says leptospirosis, syphilis, brucellosis, bartonellosis, salmonella, coxiella, etc. Theroretically it would seem as if any chronic infection with endotoxicity could cause a herx

Psilociraptor said...
Traveler where did you hear only a few can cause herxing? Off wiki it says leptospirosis, syphilis, brucellosis, bartonellosis, salmonella, coxiella, etc

Exactly, assuming it is correct that would mean things are more complex that most peaple think!

My tests results:
Elisa IgG: 14,2 RU/ml
Elisa IgM: 4,9 RU/ml
Western blott:
band IgG 41 - 60
band IgG 39 - 14
band IgG 20 - 11
other IgG bands below 10
all IgM bands below 5
values < 15 are considered negative, > 26 positive

@blueberrymuffin: I could tell but this will require translation as my results are not in english and frankly speaking I don't know if I'm able to do this myself
In short I have CRP = 28 (reference of 0-5) and erythrocyte sedimentation rate (ESR) = 13. All other tests results were completely fine.

In last two months I've learned a lot about detox. I use sauna, epsom salt, chlorella and active charcoal and yes, this makes a big difference.

I would like to know what is the cause, for me it's quite simple - if we know what's the cause we are able to focus on that cause and proceed with better treatment. Espacially when it's a many month treatment.

I need name of the tests you have done, so your doctor wrote diagnosis "Lyme arthritis". I need it because of my insurance, I am trying to get some part of the treatment covered, because at the moment I pay everything. My insurance told me that Lyme arthritis would be a good diagnose to have. I must pay LLMD, but routine blood work and stuff like they can cover. Can you write them in the language you have them? And I will try to translate it with Google

And about your testing, contact BCA lab, they have a vast range of tests and I am sure they will be able to help you and that some test can be done even though you have treatment. Their lab is located in Gemany, but you can send them your blood sample. First, you call them to send you a test kit, then you go to your local nurse and she draw your blood and after that you send the test kit to Germany. It is an easy procedure.

Yes, thank you.

Band 41 means flagella and no good bugs have tails ...sorry welcome ...one can see spirochetes in blood with microscope ...also one can do stains and verify babesia or bartonella ..see microscope threads

bee venom therapy is using the venom to kill sporochetes in a precise fashion .
you need a bottle of benadryl ,a epipen (just in case) ,3000mg of vit c a day and 10 stings 3x a week ..i do a little more , most next to spine and on arthritic joints .see ellie lobel story or fb group ...one has to ramp up start with 1 the 2 the 3 etc etc ...tweezers and microstings on acupuncture points can be very strong medicine .eva sapi is releasing a paper soon on how effective it is .she recreated the 1997 rocky mountan labs test on mettlin ...mycoplasm can also cause arthritis ..bone ache shin splints was bartonella

blueberrymuffin: below is the test list I made (I used google translate for most of and it seems to do a good job). Let me know if that was helpful

full blood morphology (Leukocytes Erythrocytes Hemoglobin Hematocrit MCV MCH MCHC Platelets RDW-SD RDW-CV PDW MPV P-LCR Neutrophils Lymphocytes Monocytes Eosinophils Basophils)
erythrocyte sedimentation rate (ESR)
Urinalysis: transparency color specific gravity pH glucose Ketones Urobilinogen bilirubin protein nitrites erythrocytes Leukocytes
Calcium overall
Ferritin
ALT
AST
Alkaline Phosphatase
LDH (lactate dehydrogenase)
Creatinine
Uric acid
Glucose tolerance test
Serum Proteinogram
Prothrombin time (PT INR)
APTT (Activated Partial Thromboplastin Time)
CRP (C Reactive Protein)
RF (Rheumatoid factor)
anti-CCP (Anti–citrullinated protein antibody)
CK phosphokinase kinase
TSH
Anti-TPO
Hepatitis type B
HCV antibody
ANA1 (Antinuclear antibodies)
D3 25OH (vitamine D3 level)
various tests for bacteria like lyme, chlamydia, mycoplasma, ureaplasma
various synovial fluid tests (fluid sample taken from knee joint)
MRI of immflamed knee
X-ray of knees, foots, spine, hands to check for visible changes
ultrasonography of inflammed knee and foot (as I remember some of immflamation processes could be seen "live" with this)

Psilociraptor said...
Traveler where did you hear only a few can cause herxing? Off wiki it says leptospirosis, syphilis, brucellosis, bartonellosis, salmonella, coxiella, etc. Theroretically it would seem as if any chronic infection with endotoxicity could cause a herx

True, but how many infections are there and how many cause endotoxicty? A small amount I'd be willing to bet, or there would be more information out there.