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Posted 1/1/2017 7:42 PM (GMT -5)
I feel like I should be starting to see some small improvements by now. But my joints are worse, muscle aches still come and go, I'm crankier, feel nervous easily, struggle with sleep and subsequently, energy, migraines are still a weekly fixture, my feet hurt. The only thing is maybe my more daily pressure headaches and light sensitivity has improved. I guess that's something. But now that I mention it they will be back. Lol!
I am having a hard time getting all my support treatments down. My sense of taste is very sensitive and some of my herb stuff like my adrenal one I gag even when I just THINK about taking it. I have always hated meds or pills or herbal remedies of any kind because the taste. I'm even picky about what generic ibuprofen I can handle due to the taste of the coating. So all this pill swallowing herb chugging is a nightmare.
I'm sick of myself. I see my doc next week. It will be nearly two months on doxy and LDN and 3 months on samento and banderol.
Posted 1/1/2017 8:00 PM (GMT -5)
Chick,

I'm sorry that the healing is slow.

Do you track symptoms? It helps on bad days to look back and see the good days.

Are you only taking samento and banderol? I take Stephania, Wobynzyme PS and Eleuthero and my arthritic/joint pain and brain fog cleared up - as did the 'blues'. My energy also stays pretty steady. Of course, this week I'm falling apart so not a good week for me to give advice.
Posted 1/1/2017 8:01 PM (GMT -5)
Chick - three months total isn't a real long time.

Are you continuing on abx? If so, it's time to add to doxy now...or switch and then add to the new one in a month at latest.

You don't want to do mono therapy.
Sorry if you've already been told this in another thread.
but, I don't want you to miss that piece of information.
Posted 1/1/2017 8:32 PM (GMT -5)

Girlie said...
Chick - three months total isn't a real long time.

Are you continuing on abx? If so, it's time to add to doxy now...or switch and then add to the new one in a month at latest.

You don't want to do mono therapy.
Sorry if you've already been told this in another thread.
but, I don't want you to miss that piece of information.

Is it considered monotherapy if I'm taking samento and banderol with the dozy? My doc told me dozy would go after the active spiros and that the herbs would target the cystic and whatever the third form is that I can't recall right now.
Posted 1/1/2017 8:40 PM (GMT -5)

Huddie said...
Chick,

I'm sorry that the healing is slow.

Do you track symptoms? It helps on bad days to look back and see the good days.

Are you only taking samento and banderol? I take Stephania, Wobynzyme PS and Eleuthero and my arthritic/joint pain and brain fog cleared up - as did the 'blues'. My energy also stays pretty steady. Of course, this week I'm falling apart so not a good week for me to give advice.

No, I take doxy too and my adrenal blend has eleuthero in it but... the taste.... shudder. I have glutathione, mitochondria support, DIM and calcium d-glucarate for my high estrogen, migraine supplements, thyroid meds, natural sleep blend, Probiotics, and methyl folate too. Probably forgetting something. Lol!

I used to track symptoms but it made me obsessed and depressed about how badly I feel day in and day out. I stopped and I am able to forget about it sometimes.
Posted 1/1/2017 8:48 PM (GMT -5)
Ya consider bvt and rife ...i didnt have gains til iv abx ...
Posted 1/1/2017 9:01 PM (GMT -5)
For the chugging ones here's what I do: Disclaimer, I realize that juices, diet sodas and what have you are on the "no list". BUT, like everything else, a couple of tablespoons of tasty liquid 'contraband' to help swallow nasty tasting herbs, etc., seems to be worth it to get it down without gagging. Chase it all with water or lemon water to move any trace.

For herbs or liquids that have an unappetizing smell, do something to shut off your nose.

If you can't smell it, chances are you can't taste it.

Pills that are hard to swallow go down with the tiniest bit of honey diluted with a bit of warm water.
Posted 1/2/2017 12:08 AM (GMT -5)

ChickNorris said...

Girlie said...
Chick - three months total isn't a real long time.

Are you continuing on abx? If so, it's time to add to doxy now...or switch and then add to the new one in a month at latest.

You don't want to do mono therapy.
Sorry if you've already been told this in another thread.
but, I don't want you to miss that piece of information.

Is it considered monotherapy if I'm taking samento and banderol with the dozy? My doc told me dozy would go after the active spiros and that the herbs would target the cystic and whatever the third form is that I can't recall right now.

Your Doc may be right...after reading your response, I did a search and did see some threads about samento and banderol taking care of cyst and biofilms...so you may be fine with that protocol.

Do you know what the plan is...will you be switching doxy to something else?
Posted 1/2/2017 12:11 AM (GMT -5)
Often people get much better after working with a biological dds? Several docs spoke of this at the lyme summit. Dental can be the missing piece.
Posted 1/2/2017 5:00 AM (GMT -5)
The science on samento and banderol eliminating cysts is kind of shady IMO as is nutramedix as a whole. I'm not saying they don't have medicinal properties and help some people out but most herbalist agree cats claw should have TOA and otoba has very little documented scientific or historical use. My first suspicion would be to start there and pick an herbal protocol with a little more backing to it if this ones not cutting it. Stephen buhner has a really flexible and neat protocol that is well designed. Misty meadows makes one called chronic tonic that has helped out at least one member here tremendously. It uses some of the core herbs as Buhners protocol as well as other well researched/widely used plants. Heiner freuhauf has his own protocol that takes a Chinese medical perspective and again it's got some overlap with buhner and the others. All of these practitioners appear to me to be passionate in their craft and build upon millennia of traditional wisdom with modern understandings whereas cowden gives me the snake oil vibe of a doctor trying to make a buck off the herbal renaissance. But I don't want to knock what might help someone else. That has just been my feeling and since you're not seeing benefit it might be time to move on
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