Posted 1/5/2017 4:51 AM (GMT -5)
I was wondering if anyone has an opinion on the latest symptom I am having.
I went to an ENT about a month ago (big mistake). I was having trouble with my voice and hearing. So I went to get a scope to see what was going on with my vocal cords. Anywhoo...for the dr to look at my cords he sprayed something up my nose, to numb it so he could put the camera up my nose and down to my vocal cords. I had no idea he was going to spray, he just came at me with this wand and up this burning liquid went into my nose and head. No warning. I feel like I was assaulted.
First thing, within seconds I felt really awful and strange, like I wanted to jump out of my skin but I didn't know why I was feeling that way as I had this procedure before and had no problems whatsoever. The nurse must have seen a look go across my face cause she immediately says, oh honey, you may feel very jittery and nervous/agitated from the spray. Gee, I think, thanks for the warning, too late, because had I known I would feel that way I would have declined the procedure, since I battle anxiety with this lyme and I had a very long drive home in torrential downpour. ( I have been having brain stuff too so I was not very trusting of myself on the road with getting lost and tired). The anxiety/jittery feeling lasted all day and into the next morning, just couldn't shake it. This time the pain from the scope up into my nose during the procedure nearly made me jump out of the chair. It was excruciating. It was everything I had to not scream and or faint. I have a high tolerance of pain, at least I used to before lyme, I had 3 babies with no meds or anything during delivery. I actually felt no pain with my babies being born. Now I can't stub my toe without feeling like I need to be airlifted to the closest level 1 trauma unit.
So then on the ride home, my nose cavity, like the tissue immediately inside one side of my nose was painful, and causing me a headache. Within a few hours the pain was going down into my front tooth. This pain inside my nose and into my tooth lasted 3 weeks. Then I got a few days of relief, followed by pain into the tooth but not in the nose. After a few days of that, the pain was back inside my nose and travels up my nose (inside area like my sinuses) and up into my forehead. I cannot touch the inside of my nose at all. It feels inflamed and angry and even a tissue gently touching it feels like a torch has been lit.
I feel like the spray he used burned the lining immediately in my nose on one side and I have irritated the nerve. Does this sound plausible? I have a ton of nerve issues anyway and now this. So it has been a month of this pain. I am at my wits end with it.
I won't call the ENT about it because he was really rude to me. I am quite angry at myself for allowing him to speak to me the way he did about my lyme diagnosis and that lyme would not take my voice away. He saw my vocal cords not moving and bowing when I tried to make a sound but denied it was from lyme. He said they aren't paralyzed, but my llmd was quite annoyed with that assessment and feels if they aren't moving they are paralyzed. He shook his head in disgust. I agree. I guess I need to go easier on myself on how angry I am for allowing to be spoken to so rudely and dismissed with my hearing loss and voice loss. Since I really can't talk, I couldn't defend myself so I just hightailed it out of there just about crying and I really do not want to contact this dr again.
I have been using sensodyne toothpaste because the gums above my one front tooth and the one next to it are all inflamed now. I never have issue with my teeth or gums, but after this incident they are red and angry. I also have an essential oil that I have been rinsing with to reduce inflammation, and it helps for all of about 5 minutes and then the pain is back.
I just started with a new llmd and see him again on Wednesday (6 days from now). I have been on maintenance antibiotics for the past 4 weeks and prior to that took 4 weeks off of treatment. The time off and maintenance abx were due to the horrible herxing that I was not getting over. The llmd felt needed a break before IV treatment starts, to get some of my symptoms to calm down. I need to get started on the IV treatment but with this my symptoms are not calm at all, and I am fearful that I will need to wait longer if I can't get this under control.
I am not sleeping again at night, no amountt of sleep aids is working now. It is 4 in the morning here and I am up with tooth and sinus pain and of course the anxiety that I am now going through because of it all. I haven't slept more than 2 or 3 hours a night for the past week. Ugh.
My anxiety stems around a few questions and worries in my head. 1. Is this just sinus pain or is it the lyme in my sinuses now 2. With my teeth hurting, I fear the lyme is in my gums/teeth. I am terrified to go to the dentist and let them poke around because every dr I have gone to for this and that have only made things worse pain wise. For instance, while getting an echo for my heart, the tech pressed so hard on my chest that I had felt like I was punched in the chest and that pain lasted a year. Yep a year!!! A mammogram sets me back about 3 months pain wise. I had elbow surgery 16 months ago and still have pain from that, the swelling from that surgery took 9 months to go away. Many drs, much poking, much pain. So the dentist poking around in my mouth scares the crap out of me.
Oh yea I also started this past week with an awful metal taste in my mouth. Like it is coming out of my saliva. tastes like I am chewing on tin foil. This taste causes a weird sensation in my mouth that feels like the metal taste is going up into my head. Causing a sharp metal feeling headache. Weird. Can't really explain it.
Any suggestions or insights are ever so welcome! Even if you all only want to talk me off my anxiety ledge, that would be great too. hahah
So I guess I should fill in what I am currently taking so maybe someone can see if there is something I can do to help calm this down.
Omnicef
minocycline
vit e
vit d
vit c
resveratrol
curcumin
probiotics
fish oil
mag malate
kefir
gluthianone (sp)
multivitamin
detox: combinations of these everyday. Depending on how I feel I choose different ones
burbur
pinella
lemon water
acv
epsom salt baths
dry brushing
Thanks you everyone!