Where to go for MCAS support?

Hi Friends,

So my 3 year old has MCAS. We're still in the process of finding out of she has lyme. In the mean time, the MCAS has pretty much put our whole lives in a tail spin. I know a lot of lyme friends also have MCAS. Where are all of you wonderful folks going for support? Healing Well doesn't seem to have a Mast Cell board.

Thanks!!!!!

I did a little searching Jingles. I'm not sure how active this is but there is a group for pediatrics /www.rareconnect.org/en/community/mastocytosis-and-mast-cell-activation-disorders

There are a lot of support groups on Facebook. Some are listed under Mast Cell Activation Syndrome and some are under Mast Cell Activation Disorder.

Sending positive and healing thoughts to you and your little one.