Appointment booked with Dr H in CA

I received that book yesterday, Insights into Lyme Disease Treatment, and was praying for wisdom as I read the chapters. Dr H's chapter resonated with me. So I looked up where his clinic is and it is 20 minutes from my brother in law's house. Talk about an answer to prayer!
I sent an email to my ND this morning, telling him how I really need a more aggressive approach, I've lost too many years to this disease. I explained my concerns with coinfections (he's never even brought that up really), my worsening neurological and autonomic system symptoms. How all my research has pointed to IV antibiotics for those who have had the disease for longer than a year, neurological involvement, oral abx intolerance and gut damage. I know many of you on here have found healing in other ways but I truly believe in my heart of hearts that I need a strong pharmaceutical approach combined with herbs and supplements. That's why Dr. H's chapter resonated with me.
It's an integrated approach which my ND is trying to do but frankly his treatment has been way too wimpy. I need to start seeing some improvements. And I've read time and again how some people just don't respond to herbs or oral antibiotics.
I will see the PA or ND at the clinic. I am ok with this. I have dealt with endometriosis for years and when I saw an endo specialist, much of the care was done by her NP. But I got the lasting help I needed from that practice.
I'm excited and nervous. The appointment is next Friday, flight is all booked. I'm travelling alone...kind of scared of that portion...but the clinic, the airport and my relative's home are all within 20 miles of eachother.
I'm just afraid that I'm wasting more money or doing the wrong thing.
Why does Lyme have to be so $$$$$. Ugh!!

ChickNorris just to let you know...IV abx can also affect the gut. I'm not sure what the issue was with regard to the oral, but there is still issues with gut flora, etc when using IVABX. So just be sure to continue to tend to your gut health.

I am definitely wanting to take good care of my gut. I don't have an appendix anymore which is one of the reasons I am cautious about oral abx. But my main reason for wanting to at least investigate IV abx is because many of my symptoms are neurological in nature. I don't know how severe they have to be to get treatment. I stopped trying to get help from neurologists many years ago so I've not officially gathered specific diagnoses but I am quite certain had I pursued standard medicine I would have been diagnosed with fibro, CFS, POTS, migraines, neuropathy of some kind, etc etc.
No matter what the treatment, I just know I needed to see someone with more experience so I can feel like I can trust the protocol. I'm a complicated case and my ND here is young but eager to learn. I hope he will be my local Lyme doc still so he can learn even more.

Girlie said...
Chick - I think you will find the thread that I posted a link to very helpful.

Thank you! It was helpful! I am just really nervous. I know you guys get it, after so many doctors appointments...there's that fear that you will get dismissed. I always end up crying during visits too AND the visit is right on the full moon so symptoms should be flaring nicely. lol!

And I KNOW this is irrational but I hate disappointing my doctors. I know my local ND has been trying to help me get better and I feel like it's a personal betrayal that I haven't had any improvements and now I'm seeing someone else. I wanted to get better with him. But my intuition, holy spirit, something has been niggling at me for a while now that I needed to switch things up.
I have had a doctor actually call my home phone after business hours to yell at me for cancelling an appointment so that's where some of that anxiety comes from.

ChickNorris I'm sure everything will be ok. Thing positively 😊

How wonderful that you took this leap! Hoping your new llmd can get things rolling for you.

I added an ND into the mix last year and it was an empowering feeling for sure. Its nice to get a new perspective, demeanor, office environment etc...

How sad that we feel like we are disappointing our llmd's when things don't improve that much. I can totally relate.
There is so much about these diseases that is bizarre, dysfunctional, and disempowering.

Keep us posted on your appointment. All the best to you!

Prayers coming from our house.

I would be more scared of being without my hubby than getting the IV. LOL!!