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More weird symptoms...Migraine, Lyme, or POTS?

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Posted 2/5/2017 11:06 AM (GMT -5)
Most of my more severe symptoms seem to still be in my shoulders, neck, and head. Aside from the neuro/cognitive stuff, this is what's happening:

-severe bouts of vertigo (sometimes even when lying down or just moving my eyes or watching fast movement of an object or on tv)
-nausea
-can not stand up for long periods of time without feeling need to sit; I either get dizzy or lightheaded or sudden bowel urgency/diarrhea (sorry if TMI!)
-head tilt
-pain in base of my skull and sometimes feel like my neck gets stuck for a minute (with sharp, grating pain)

I thought maybe it was a migraine, but is it possible to have a migraine every day??
Does anyone else have C1/C2 (cervical spine) arthritis because of Lyme?
Anyone else with bowel urgency? There is definitely a correlation between standing up and my GI issues. What's that all about?? (I didn't even think about it being related until a coworker who has early lupus mentioned how standing up too fast makes her dizzy/lightheaded and have diarrhea!)

Sorry if this post seems abrupt or scattered....still not doing great with words and thoughts.
Posted 2/5/2017 11:26 AM (GMT -5)
I have a migraine/headache pretty much every day. But the pain isn't arthritis like, I get that too in my neck, the grinding. But the migraineish type pain causes throbbing in the base of my skull and wherever else in my head it has settled as well as nausea.
I also think I have lyme induced POTS. I get very lightheaded when I stand up. Very winded with things like going up the stairs or even just getting dressed. It doesn't cause GI issues in me. I often have to stand up quickly because of urgency, not the other way around.
Posted 2/5/2017 4:28 PM (GMT 0)
Yes, it's possible to have a migraine every day - but there is usually an underlying cause. My hubby has gone for years at a time with daily migraines - but it's due to his severe issues with his cervical and lumbar vertebra.

But, it sounds more like your nervous system is on overdrive.

I have a ton of issues with my C1 & C2 when I have these infections - only mild issues when I don't have these infections. I believe it's due to the muscle spasms and increased inflammation in my case.

My bowel issues are almost always exactly opposite of yours though.

I think you are doing pretty well with words and thoughts, Pmm!!! Hang in there!
Posted 2/5/2017 11:47 AM (GMT -5)
Vertigo occasionally without any warning, batches for a few days then relief for several more. GI disturbance daily, though not continuous. It seems like either the herbs or the doxy flushes the weakened portion of my mirobiome periodically. (Great. Vertigo hits while I'm typing this. Hard to watch a spinning screen...) The neuro also presents in cycles; not so much for a few days then stupid for a few. It's like a continuous war going on inside of me with one side (my body) winning a few battles then the other side (the bugs) retaliating. In the meantime the battle field is really getting torn up.
Posted 2/5/2017 11:49 AM (GMT -5)
The C1/C2 thing is definitely a newer symptom and it seems to be getting worse. All I think of is "how am i going to afford xrays and scans, etc etc to figure this out?"

Is it worth going back to my chiropractor? I usually ask him NOT to adjust my neck...it makes me too nervous.
Posted 2/5/2017 11:53 AM (GMT -5)

OldSalty said...
Vertigo occasionally without any warning, batches for a few days then relief for several more. GI disturbance daily, though not continuous. It seems like either the herbs or the doxy flushes the weakened portion of my mirobiome periodically. (Great. Vertigo hits while I'm typing this. Hard to watch a spinning screen...) The neuro also presents in cycles; not so much for a few days then stupid for a few. It's like a continuous war going on inside of me with one side (my body) winning a few battles then the other side (the bugs) retaliating. In the meantime the battle field is really getting torn up.

I'm sorry, OldSalty. It's really not fun at all, is it.
Posted 2/5/2017 11:57 AM (GMT -5)
Going to your Chiro would have to be up to you. I have a really good one (uses drop tables instead of twisting most of the time, as well as other techniques), but if I'm in a period where I'm having a lot of muscle cramping, spasming and such, I don't go - even though that's when I need him the most. It simply won't "hold" though, so I just get through those times, and as soon as the muscle thing eases up, I generally make 2 or 3 appts with him to get a bit of relief.

It's possible that if your thoracic discs are 'out', that by getting them back in place will relieve the tension enough to ease the C1 & C2 - but my Chiro has always told me that the C1 & C2 are really hard to deal with because they are so close to the skull.

And, I have to ask, are you sure you have actual arthritis in the C1 & C2? If so, then I would stay away from a Chiro. But, that's me. There's already damage there, and so I would be much more inclined to find other ways to deal with it.

You can search out Astroman's posts about how to release muscles/fascia. That helps me deal with things a lot more often than a trip to the Chiro's office.
Posted 2/5/2017 12:12 PM (GMT -5)
Trav, I'm not sure about anything anymore! lol It feels like arthritis...but I guess it could be anything lol

I'm trying to figure out the connection between the C1/C2 pain, bowel urgency, and vertigo. Or even if it all has the same cause.

Going to the store or even walking my dog are starting to become difficult because of all of this.
I've been working this whole time, even through some of the crappiest of days. I'll be darned if I become homebound now because I get dizzy and have to poop!! (LOL...it just seems funny when you word it that way!)
Posted 2/5/2017 12:16 PM (GMT -5)
pmm73: Not really. I do have some good days and hope that they coincide with nice weather. On the good days I have illusions (hallucinations?) that I could go back to work (retired lgc) then the waves come back and realize that not only I can't, but that it would be dangerous. Ladders, roof tops and vertigo are NOT a good combination. Much less while using power tools.
Posted 2/5/2017 12:16 PM (GMT -5)
LOL! It does!! And - it's good to have a giggle over what we go through. It can really help us get through!

One step at a time. You can have your doctor do a bone density test on you. Mine insisted it needed to be done on the thigh bone (because changes can easily be "seen" by the machines on the long, large bone), but maybe there is another test, or maybe that one will be covered under insurance, if you have any.
Posted 2/5/2017 12:20 PM (GMT -5)
Has a biological dds ever checked you out?
Posted 2/5/2017 12:45 PM (GMT -5)

magoo2 said...
Has a biological dds ever checked you out?

NO! But I do have some fillings. Do you think it's related??
Posted 2/5/2017 12:58 PM (GMT -5)
I'm thinking you might want to consider an Upper Cervical Chiropractor.
That is what they do - adjust the C1. No cracking, no twisting...

I have been seeing one for many years....many years prior to lyme. My appointments are $45. I go every 6 weeks for an evaluation..if i'm not needing an adjustment...no cost. (I don't know if all UC chiros do that).

The initial appt is more expensive though...because they X-ray your spine/head...and do measurements.

My mom had bad headaches for many, many years...and she was the first in our family to go to a UCC. It resolved her problem...so that's when I started going...and then my son later on.
I didn't have headaches...can't remember why I initially went...

They believe it also affects the CNS - so could also help your dizziness, migraines...

www.nucca.org/what-is-nucca/



www.foxnews.com/health/2015/10/05/upper-cervical-chiropractors-offer-hope-pain-sufferers.html[
Posted 2/5/2017 1:00 PM (GMT -5)
Thanks, Girlie! I'm going to look into it now! xo
Posted 2/5/2017 1:03 PM (GMT -5)
I have been getting migraines every day for the past few weeks. A lot of the "aura" stuff happening, which just adds to the neurologic funhouse of lyme. My neck has been stiff and tight. (Is the concencus that C1 and C2 are migraine producers?)

I am also ending up with a lot of heart beat irregularities right now.... When my heart skips beats, it often makes me cough. I had been told that this can be a reset mechanism by the body and possibly a mechanism of the vagus nerve. . In the past, I have thought that this is vagus nerve induced and will happen a lot when I get a hiatal hernia - (pressure in that area) When the heart skips beats, I get really gassy. The vagus nerve feeds the heart and stomach, as I understand.... I read something about vagally induced heart rhythm problems and gas but I can't find the article......My theory is when the vagus nerve gets irritated, these other things act up.. (perhaps could cause diarrhea too? I would think... is the vagus nerve being affected by lyme, inflammation, or neck misalignment??

I am having TONS of cognitive problems right now....so also sorry if I sound like I am blithering......
Posted 2/5/2017 1:05 PM (GMT -5)
For some people, a root canal 'gone bad' can be a real issue, but not everyone with Lyme has these issues - even if you have "bad teeth". I grew up with fillings in nearly every tooth (not the front teeth), and lost them all to either breakage or infection in my mid 20's - through mid 30's and had full dentures by the age of 36.

I had several root canals while I was still trying to convince dentists that my teeth weren't worth trying to save, and yet I never had any - dang it! My brain is not working well enough to remember the word!!! - any issues/infections that continued (LOL! not the phrase I was looking for, but all I can come up with right now! Sorry!).

We do have to be careful to not assume that just because fixing one thing helped us tremendously, that it's not what everyone with these infections needs. We, as responsible adults, need to carefully check out each recommendation and make sure that it's something that we actually need to follow up on. We have had members that have followed other's advice to their own detriment before, and I HATE when that happens!! So check everything out carefully.
Posted 2/5/2017 1:08 PM (GMT -5)
I've tried so many alternative things for my migraines, none of it has worked at all so my last hope is rigorous and aggressive Lyme treatment will help. I hope and pray it does! But if your dizziness and headaches are a new thing, it certainly can't hurt to give things a try!
Some find help with acupuncture, chiropractic work, massage therapy, essential oils. I do love peppermint oil for my headaches, just feels refreshing and eases the nausea.
Posted 2/5/2017 1:08 PM (GMT -5)

pmm73 said...
Thanks, Girlie! I'm going to look into it now! xo

I know it sounds like quackery...and if I hadn't seen the effects it had on my mom...I probably would never have tried it.

I stopped going for awhile...and when my son was in kindergarten...I was showing him how to do forward and backward rolls (as in gymnastics) - and my back started to hurt...not my neck though...but my mid-back.
I hadn't been to the chiro in several years (you're supposed to go every so often to make sure you're still 'in line') - I wasn't sure he could help me because my spine was actually sore to touch

One appointment...pain gone. I was amazed. He did not touch my thoracic spine...didn't go near where the pain was...

So, if the C1 (atlas) is off-balance...it's a chain reaction...down the spine.
Posted 2/5/2017 1:12 PM (GMT -5)
AHA!!! I finally found the word (thanks to Julymorning!!!) cavatations!! Dental cavatations are not something we all have, even if we have had some fairly serious dental issues.

Sorry for my confusion!!
Posted 2/5/2017 1:32 PM (GMT -5)

AK said...
I have been getting migraines every day for the past few weeks. A lot of the "aura" stuff happening, which just adds to the neurologic funhouse of lyme. My neck has been stiff and tight. (Is the concencus that C1 and C2 are migraine producers?)

I am also ending up with a lot of heart beat irregularities right now.... When my heart skips beats, it often makes me cough. I had been told that this can be a reset mechanism by the body and possibly a mechanism of the vagus nerve. . In the past, I have thought that this is vagus nerve induced and will happen a lot when I get a hiatal hernia - (pressure in that area) When the heart skips beats, I get really gassy. The vagus nerve feeds the heart and stomach, as I understand.... I read something about vagally induced heart rhythm problems and gas but I can't find the article......My theory is when the vagus nerve gets irritated, these other things act up.. (perhaps could cause diarrhea too? I would think... is the vagus nerve being affected by lyme, inflammation, or neck misalignment??

I am having TONS of cognitive problems right now....so also sorry if I sound like I am blithering......

AK, you are making a lot of sense! I did read about the vagus nerve (I just remembered lol). And mine does seem to be affected. Could it be Lyme or Bart affecting it? Who knows for sure. I also found this link which I think is very interesting.

www.chirocorrection.com/montclairuppercervical/
Posted 2/5/2017 2:14 PM (GMT -5)
Not a lot of information with that link, pmm73.

Is that a location near you..?
Posted 2/5/2017 3:50 PM (GMT -5)
PMM73-it certainly could be. I would clearly it worth getting checked out by a biological dds. A biological dds will consider the jaw part of your body and not just a mechanical hinge. So they will consider any reactions that might occur from placing anything in your jaw. They certainly wont use silver almalgam which is 50% mercury.
If that's what you have in mouth you may google what mercury is and does to body-Dr. Mercola hhas some good articles on the subject
Metal fillings can cause all sorts of issues.
If you replace them or get more be sure to get a blood test to make sure you aren't allergic to various
materials a dds would place inside of your jaw 24-7.
The jaw is often the overlooked key

Post Edited (magoo2) : 2/5/2017 1:56:17 PM (GMT-7)

Posted 2/5/2017 5:23 PM (GMT -5)
The vagus nerve, or tenth cranial nerve, is the longest and most important nerve of the parasympathetic nervous system (it belongs to the neurovegetative system) as it regulates the functions of almost all of the internal organs. The vagus nerve innervates the larynx, the pharynx, the upper part of the oesophagus, the part of the external hearing apparatus, the heart, the lungs, the stomach, the intestine and even several muscles.
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