HealingWell
Search Close Search
☰

HELP ! HELP! Need help finding LLMD in St. Louis, MO.

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted Yesterday 12:35 AM (GMT -5)
Hi everyone I'm new here been having symptoms for 3 years and finally tested positive for Lyme disease. I have literally been thru hell in these 3 years I beg u guys please help me out with my situation I am desperate. I need to test for coinfections too. Unfortantly my kids and wife are all having symptoms but my wife tested negative for Lyme disease by taking WB thru lab corp. I need to test my kids and wife for Lyme disease as well and coinfections thru igenx and lab corp for coinfections but doctoros and ID are so ignorant and think I'm mental I'll or psychological stresses out which I am neither . This is why I need a LLMD doctor in the are that can test us and treat us. I need advice as well what treatments are best herbal or antibiotics and for kids as well. Please people I am begging you I am lost and me and my wife and kids health is getting worst
We have Chronic loose stools, chrOn if clearing of throat which is annoying , joint pain, muscle , joint cracking, mouth ulcers, my kids are skinny not gaining weight, they get like ulcers on but cheak the other day, I am balding really bad, me and wife have yellow hands like stains and so much other symptoms to list . Please if you guys have the moment to email me or reply to me a list of LLMD in my area or any that can help if maybe by phone or skype and they can have me and my family take tests and get treatment that would be great. God bless everybless me and good luck
Posted Yesterday 1:31 AM (GMT -5)
Hi Gotserved84 - welcome to our community!

I am so sorry your whole family has lyme disease...but i am glad you found us here.

Where do I start?

I don't know how much you're wanting to spend on testing your family...but if you want the best bang for your buck, then I suggest the Igenex Western Blot IgM and IgG - it will be $210 for each family member.

You can order tests kits from Igenex and they will mail them to you. Then have a Dr. sign the lab req's...and take to a lab for the blood draw. It can be any Dr. - a Naturopath, MD, Chiropractor...can all sign.

www.igenex.com/Website/

If you can't get a Dr. to sign the lab reqs, then there is another option...you can go through TrueHealthLab - no Dr. necessary.

www.truehealthlabs.com
It does appear to be more costly that way, though.

You can get the tests done now and take the results to your first LLMD appt....OR wait until you see the LLMD and get him to sign off on the lab req.

To find a LLMD in your area, please start a new thread titled: "Looking for LLMD in/near______" and fill in the blank.

In addition to getting recommendations from forum members, you can also email me and I will see what I have listed for your area.

There are herbal protocols you can do, as well. Buhner's is a popular one on this forum, Cowden is another.

We encourage all new members to read through the thread at the top of the page titled: "New to Lyme?..start Here!" It's packed full of useful information.

I am glad you found this forum - this is a great group - lots of knowledge and support here...
Posted Yesterday 1:35 AM (GMT -5)
Hello! Welcome to the forum!

Please, check out the "New to Lyme?" section, if you would. It can be a lot to throw at someone, but there's worthwhile information there. Sift through what you can. Also, do consider staying around for the long-term, as recovery can be a lengthy process, and it's more than just taking herbs or antibiotics to kill the infections. Your bodies need support as well.

But, of course, you need to start getting the bacterial load down. I can't speak on antibiotics, because I haven't been able to use them extensively.

Herbs, and for kids, you could try Cowden's protocol, Buhner's, look up "HealingWell Chronic Tonic," then start making teas out of those herbs, or look into essential oils. There are a few posts listed on here with some protocols, and there is a Facebook group called Lyme and Essential Oils with a protocol posted to their page. It's a start, but nothing is instant, or without its puzzles to put together.

My apologies for the poor experiences with healthcare "professionals," and ill health that's brought you here - it's terrible, but do stick around, and someone will eventually come along to get you sorted with a list of MO-area LLMDs. It might not be 'til morning, though. It's bedtime for a lot of people.

I wish I could truly help you, but I'm still trying to figure things out for myself.

Stay strong. Keep the faith. It's real tough on you and your family, I know, but you're where you need to be, and you're gonna start trying to get better now.

We'll be here for you what we can.

~<3

Sorry for reiterating some of the same information as Girlie, but typed it up, and thought I'd try and help a little bit for once.
Posted Yesterday 1:50 AM (GMT -5)
With testing, I just suggested the lyme testing...you can do the coinfections as well, but they are even more inaccurate/unreliable than the lyme testing.

You might want to wait for the LLMD appointment and see if he wants confection testing done.

The Lyme WB is a good place to start.

For the children, you should seek out a Pediatric LLMD.
Posted Yesterday 8:10 AM (GMT -5)
For my money the best Doc in the world is in St. Louis-Simon Yu.
He wrote the book called Accidental Cure
Posted Yesterday 9:45 AM (GMT -5)
Hi Gotserved,
Welcome to our community! I'm so glad you found us.

​If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.

​ And, here's another good place to find helpful detoxing routines: ​http://www.tiredoflyme.com/detox-methods.html​​

​

For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you can send me an email by clicking on my screen name or the small blue envelope under my screen name. I have contact information for some LLMD's in your area.​ ​Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your location.​

You can email the Tick-Borne Disease Alliance at
​[​​url]​medicalinfo@tbdalliance.org​ for LLMD referrals

You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/


​ ​
And www.LymeDoc.org

You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.ilads.org/lyme/treatment-guideline.php
✚ New Topic ✚ Reply