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5 days off abx

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Posted 2/8/2017 4:51 PM (GMT -5)
using myself as a guinea pig since i've been on abx almost daily for 2 years and seeing Dr. J in DC in a few weeks want some additional info on symptoms etc.

hard to unwind what to make of my returning symptoms. some came back on day 3, others day 4, one of my favorites (not) the chronic sore throat returned today on day 5. i'm wondering could these symptoms really be caused by the lyme bacteria since its got a 21-30 day lifecycle? i know the immune system could be kicking in more due to no abx to compete with but i still think i'm dealing with something like bart and/or babs given the quick return of symptoms.

has anyone else had symptoms return within days that are pretty sure attributable to lyme?
Posted 2/8/2017 5:28 PM (GMT -5)
Sorry, Rikky - I;m not much help.

My symptoms are all over the map - flares, herxes....

When I'm on abx and when I'm off...


I just every so slowly lose one symptom...and it every so often makes a reappearance for a few days....or longer.
Posted 2/8/2017 5:35 PM (GMT -5)
At this point I'm trying to blame everything on crap related to the Lyme, or Bart, or one of the other co-infections, and toss in EBV for good measure.

I'm pretty well lumping all of them together and trying to get my immune function up to snuff while taking random jabs at whatever is causing any of it. That's not a bit helpful to you, and I'm sorry.

I think we need more people in remission around for their input. Not that their path would work for any of us...I'm just saying..
Posted 2/8/2017 8:12 PM (GMT -5)
Bart got my throat with candida, glad you are seeing dr j try n enjoy the break
Posted 2/8/2017 8:38 PM (GMT -5)
thanks for nuthin everyone LOL. i've been doing rifabutin/mino/bactrim 4 days on 3 days off since early december. before that i was daily and even before that i was on 2 other abx with bactrim.

i think for experimentation i'm going to restart my rifabutin/minocycline only and do it every other day. since i know neither of these hit babesia (and bactrim does) i can maybe unravel a bit where symptoms are coming from. hey its my body and i can experiment if i want to! ;o)
Posted 2/8/2017 8:42 PM (GMT -5)

Rikky1 said...
thanks for nuthin everyone LOL. i've been doing rifabutin/mino/bactrim 4 days on 3 days off since early december. before that i was daily and even before that i was on 2 other abx with bactrim.

i think for experimentation i'm going to restart my rifabutin/minocycline only and do it every other day. since i know neither of these hit babesia (and bactrim does) i can maybe unravel a bit where symptoms are coming from. hey its my body and i can experiment if i want to! ;o)


Hey, that happens sometimes. Maybe we're all in a fog at the same time here. Thus my alluding to, without actually saying, 'Blind leading the blind sometimes' my last comment.
Posted 2/9/2017 10:17 AM (GMT -5)
i think we all need a break from abx once in a while. there's no way to judge your body's response to dealing with whatever still ails you unless you remove the 'artificial support' so to speak. i tried going off the abx's for a week back in july and it was tough before i started up again. this go round its better so maybe the bug load is finally wearing down. then again who knows!
Posted 2/9/2017 10:32 AM (GMT -5)
We can't judge by when our symptoms return, as there is simply no way to know what type of a "schedule" the bacteria are on. Did you stop your abx when the Lyme had just "cycled" in your body? Or was it close to time for them to do so anyway?

If your symptoms are becoming overwhelming, or seriously interfere with your daily activities, then I would encourage you to restart the abx so you can "make it" to the appt. I'm sure that Dr. J knows how to deal with patients that have been in treatments that haven't been working for them.
Posted 2/9/2017 11:12 AM (GMT -5)
Are you taking some supporting herbs while being on the abx break?
Posted 2/9/2017 12:38 PM (GMT -5)
i don't have any noticeable lyme cycle symptoms and this is over 2 years of treatment so no help there. i'm thinking babs and/or babesia maybe something i don't know about causing the quick return of symptoms. that makes more sense at least to me.

i'm only taking a few supplements i'm trying to simplify the experiment ;o) oh i'm still on plaquenil twice daily going on 7 months now.

i'm going to restart rifabutin/minocycline saturday and do every other day. i'm 2 weeks out from my first Dr. J appointment so not much time to play around.

for rifing i'm only running an 11 day terrain protocol (no killing sets). it's basically a system detox including heavy metals, blood, liver, kidneys, lymphs, etc.
Posted 2/9/2017 1:14 PM (GMT -5)
Rikky - in prep for dr. J's initial consult - it would be a good idea to write down the protocols you've been on in the past two years.
You probably have this documented already...
Posted 2/9/2017 2:29 PM (GMT -5)

Rikky1 said...
i don't have any noticeable lyme cycle symptoms and this is over 2 years of treatment so no help there. i'm thinking babs and/or babesia maybe something i don't know about causing the quick return of symptoms. that makes more sense at least to me.

i'm only taking a few supplements i'm trying to simplify the experiment ;o) oh i'm still on plaquenil twice daily going on 7 months now.

i'm going to restart rifabutin/minocycline saturday and do every other day. i'm 2 weeks out from my first Dr. J appointment so not much time to play around.

for rifing i'm only running an 11 day terrain protocol (no killing sets). it's basically a system detox including heavy metals, blood, liver, kidneys, lymphs, etc.

Rikky I forgot you do rifing also. Bluelyme mentioned it on a recent post and I've been thinking for some time that it would be good to have information for members on rifing. Something that could be saved and disseminated or saved to "New to lyme". I know this is something that I'm considering but wouldn't know where to start.
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