In treatment and when not herxing....

Euphoric! When I was in treatment and had no symptoms (I did not herx) I was euphoric. And, then I would tend to overdo something and pay dearly for it in the subsequent days.

I had to learn to be the tortoise.

But when I felt "normal" I just wanted to run and play.

PeteZa said...
Euphoric! When I was in treatment and had no symptoms (I did not herx) I was euphoric. And, then I would tend to overdo something and pay dearly for it in the subsequent days.

I had to learn to be the tortoise.

But when I felt "normal" I just wanted to run and play.

The question: "When in treatment and not herxing...how do you feel?"

You keep saying you didn't herx...you also didn't have symptoms - unless you overdid it?

I don't yet have the benefit of treatment helping anything so I either feel bad, or really bad. Lol! But on days when my headaches are down to a low 2 or 3, I feel like a new woman. Everything else still hurts so I can't go gangbusters but it does lift my spirits tremendously!

I've gone through this too. I actually went through this before ever starting treatment.

We joked for a fairly long time about me being pregnant, (in my 60's), because that's exactly what it felt like.

Now I know that nausea and vomiting are symptoms of quite a few of the infections.

Purr, I was SYMPTOM free for a little over 2 months but still taking all my supplements and herbs. Then I got sick. I knew it was not flu or lyme symptoms. I don't know how to explain that. I know my body rather well and this was entirely different. That is when I quit all herbs. I was scared that everything would all come back and each week I relaxed a little more. Lyme messes you up to where you question feeling well all the time when you do get to remission. You constantly are in fear that lyme will come back. So anything makes you wonder.

Do we ever get a negative lyme test? I have not tested. It is way to expensive and unreliable. I imagine that I will have lyme forever. I will never give blood to anyone. My immune system will keep it indiscernible by me. In other words, no symptoms.

Many people have viruses and bacteria inside them and they never have symptoms. Many people are bit and get lyme and it is a long time before they get symptoms.

I can't tell you to quit the herbs. I was so scared to quit and see what happened. It was unknown territory. I wondered if I would have to titrate up all those herbs again -- good grief, that was scary.

Just as an aside. I got up to 2 droppers full of Japanese Knotweed at the end of my treatment. When a stressful ordeal happened and I could feel my lymph node starting to swell, I took 2 droppers full of J/K and I did fine. This was months after stopping J/K. But, that is me and I definitely do not recommend anyone else trying that. I have always said that taking J/K was like drinking water to me - except for the benefits. My inflammation went away immediately.

I rarely have any good days. I have been treating since 2012 and had about 10 of them. Those days were heaven sent. It's a reminder of how you used to be. Because of methylation problems my LLMD doesn't treat fully. He states my body can't take it. Working on my methylation cycle has brought problems, too. So, I am going to treat using Buhner's protocol. I have slid back to the beginning of feeling so bad and it ticks me off to no end.

So, another question......is anybody their infections knowing they have methylation problems???????

Lightlife, I was bit April 29, 2015 and had no symptoms March 2016. I quit herbs the end of July 2017.

I did the routine of many doctors and tests and finally got to my first LLMD in August. he gave me abx and I got so sick to my stomach. I began herbs Sept 28th. This was Beyond Balance herbs from my second LLMD and then I started self treatment on Buhner's but still did the Beyond Balance herbs.

Purrrsiankitty said...

Girlie said...
PurrsianKitty:

"My last test a few weeks ago showed a double++ infection in band 83. So obviously, there is still something going on. "


You can't use the WB to determine if you're in remission. Your body can continue to produce antibodies long after the active infection is resolved.

Resolution of symptoms...plus a couple of months...

..and at first sign of symptoms returning...back into treatment.

. Yep, it kind of verified what I already knew. Guess as faulty as tests are to determine infection, they are faulty here also. Makes you wonder why anyone gets tested lol

For diagnosing, the WB can be very useful. And the PCR can be useful if it shows positive anytime.

If I hadn't tested positive for Bartonella via PCR last October, after a year of Bart treatment, I may have stopped treating ...it gave me confirmation that it is still active infection.
But that was a PCR test...not an antibody test.

The WB is good to use when diagnosing...but not for gauging when we're in remission.

PCR is useful when it's positive...but useless when it's negative.