Help! Save me from relapse

Hello, I have had Lyme disease for nearing 15 years. I was diagnose early and treated aggressively with intravenous antibiotics at the time of infection but I never got completely well and would have periods of time that I was quite sick and eventually it effected me neurological. about 5 years ago I found a LLMD who is also an herbalist. I went on a cocktail of antibiotics for several months and started the Buhner Protocol at the same time. I had two good, almost symptom free years before I began to relapse at which time I again went on the cocktail of antibiotics but only for one month, then followed it with pulsing flagyl and the Buhner herbs. Within a year I had a very bad relapse. I went back on the cocktail of antibiotics and started the Buhner herbs daily again. It took me 6 months to get well but I did. Unfortunately now only two months later I fear I am beginning to relapse already. I have had a stiff neck for a couple of weeks, before that my achillies tendon was hurting. My wrist is bothering me a bit. I have those random pains that come and go and I have a feeling of sort of a crawly feeling on my skin sometimes that feels almost like a chill. The treatments I am using now are the Buhner Protocol / Cats Claw and Knot weed as well as King Chlorella. I Rife for both Lyme and co infections. I watch my diet and do not eat wheat and very little dairy. I eat fermented foods daily. I exercise / walk daily and do yoga a couple times a week. I have also been taking med cannabis oil cbds 3 times a day for 5 months. The medical cannabis seems to keep my blood pressure down and I sleep great for the first time in a decade. So, my question is this. Do any of you have any suggestions as to how I can fend off another relapse. The pharmaceutical antibiotics were even more hard on me this last time and I expect may have caused some neuo toxicity as I had memory issues and balance problems. It took me three months after I was off of the antibiotics to start to feel well again and I am still dealing with digestive issues even taking probiotics. I am sorry this is so long but I figure you need to see the whole picture to be able to suggest anything. Thanks for any input, I appreciate it.

I have remained on the Buhner Protocol, at least the Cats Claw and Knot Weed. I take 2 capsules of each 3 times a day. I was only off of them for about 6 months and even then I was pulsing them alternately with the flagyl because that was what my LLMD had suggested to try to keep me in remission. I have been on the Buhner herbs for 5 years now. Is there something else in the Buhner protocol that I should be taking? Thank you for your input.

Thank you for the welcome and for the information. I will do some reading!

I would suggest not pulsing the knotweed and cats claw. That logic applies mostly to abx and it might be valid for someone who hasn't had success, but knotweed and cats claw are doing a lot more than straight killing. And a lot of things that work best when maintained on a daily basis. So you were on them at the time of relapse? Did you stop anything else before the relapse? For example maybe you kept the knotweed and cats claw but dropped the abx? Ideally you don't want to drop anything until several months of remission or longer. Because what ever you are taking at that moment you achieve remission is holding back the most hardy and persistent of the organisms you're dealing with. So when you drop the abx you're opening that safety gap again for them to come out and feast. If you're worried about long term abx maybe you can go 100% herbal and use something like houttuynia or cryptolepis or just higher doses of knotweed. Something with a good safety profile so that you can hold your max dose well after remission.

Or what traveler is saying is relevant too. All parasitic organisms cause some level of immune suppression in order to survive. So their impacts on Lyme disease can be synergistic. If you have other infections from your tickbite, or are breathing in invasive molds or mycotoxins from your home or work environment, or you eat really bad and have "leaky gut" these can all make it harder to heal, in theory.

LOL! Without more details (sorry) there are a lot of possibilities!

Welcome, marshasstudio


I also wonder if you were treated for the co-infections - particularly Bartonella and Babesia?

And did you treat to symptom free...PLUS a couple of months?

Welcome to the forum. You've been given great advice, comments, and suggestions. Just wanted to welcome you.

Welcome marshastudio.
How often are you rifing?contact or plasma?
Bartonella can replicate every 24 hrs an hits the gastro rather hard ..
sida acuta and andrographis may be good killers also smilax and artminsin has been good to me .
Also consider bvt .i am making gains consistantly with herbs rife and beevenom.
and whether its myco ,bacterial ,fung@l or viral venom doesnt take names justkicks butt.
www.honeybeehealers.com

I agree with possible co-infections.

However, I just want to add that you may be dealing with Biotoxin illness. This is the endless circulation of toxins that never get eliminated. You feel like you are experiencing the same symptoms of an active infection, but in fact, its just old toxins. You have been in treatment for so long. Everything is stored in the fat cells. Whenever you exercise, things get released. I suggest you start a binder protocol. Do modified citrus pectin / charcoal /clay... a couple of times a day away from meds. This will help get the toxins out permanently. I started doing this in July and feel like I'm making real progress. I only have very minor herxing at this point.

You could get tested for HLA gene and MTHFR which would indicate poor toxin elimination.

Welcome, Marshasstudio!
Yes you can have major flairs or relapses when you are doing everything right! Things happen that act as triggers, such as stress and bodily changes like menopause. My body chemistry changed with the change and I feel like I am back to square- one maybe two, lol. But I do know a lot more in the 10 years I have been doing this.

Rawls says even on treatment you can have fairs. He says to look for triggers. you might have some unhealthy practices or just normal life. Too much screen time - you could be sensitive to the radiation from devices. Weather triggers flairs. Work and family stress can set you back. There are others.

Ive learned it is not just about what antibiotics you take or which herbals. There is a whole lot more to this. It starts with a healthy immune system ( I am not referring to whether or not you get colds - I rarely do! not even the flu). Make sure your gut is healthy from all the antibiotics - your story and mine is similar. And eat good foods. Not sugars/carbs that do nothing more than feed the bacteria and yeast. Also make sure you are using high enough doses. I found that I wasn't.

I hope what you are reading here is helpful. These are kind helpful friends on this forum. Everyone is different because we are all created uniquely. Stick with it and you will likely discover some good tips that will help your particular situation.

Thank you, mpost. I appreciate your comment.

marshasstudio said...
Thank you Purple Tulip, When I first got Lyme 15 years ago I was going through menopause at that time. I was a crazy mess, was it the Lyme or the Menopause I would ask myself. Now... I am through menopause by years and I ask, is it old age or is it Lyme. LOL. Thank you very much for your input. I appreciate it.

"It's alway something" (Gilda Radner's words)

My teacher began bvt at 66 and is working now at 71...she runs circle around me ...i went from feeling 90 to only 75 now