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Break in treatment and still so horribly fatigued

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Posted 3/3/2017 12:50 PM (GMT -5)
My llmd has suggested I take a month off cowden's to get my nausea, vomiting and diarrhea issues improved. My nausea is better, still having some diarrhea issues but that is somewhat better. Still not much of an appetite, still love chili, of all things and eat plain yogurt, berries and bacon (no nitrates)

My lack of energy is astonishing. I've experienced fatigue before with a chemotherapy named folfox. That was nothing compared to this experience.

Seriously, weeks ...no months of this... does this happen?

Detoxing with a gallon of water plus Cowden herbs. Dry brushing, I have a detox bath tub.

I can't think of anything else except I'll bring up mthfr with doctor.

Thanks😚
Posted 3/3/2017 12:59 PM (GMT -5)
I've forgotten, (naturally), about your B12 and Vit D levels.

Also, how does your o2 levels check out when you're at the Doc's getting vitals? Any air hunger/shortness of breath that seems abnormal?
Posted 3/3/2017 1:05 PM (GMT -5)
I understand the chili part - LOL! Same here. I believe it's us craving foods that will help us - the chili pepper in chili is really healthy in many ways - not to mention the beans and other ingredients that go into chili. Right now, I'm sooo hooked on this new recipe for pork and chili stew!! Ha ha ha!! I put double the amount of chilies in it and LOVE it! Although it does cause a bit of a burn and we all sweat happily while saying "Hmmmmm!" LOL!

The shear exhaustion and malaise that can be present is astonishing! Especially when Lyme and EBV are both actively partying inside of us. Have you tested for EBV? How long ago was it? Does your doctor address this as well as other viruses too?

And, I'm sure you will not be surprised that I'm now bringing up your detoxing (LOL!) - Is that all you are doing for detoxing? Maybe it's also time to reevaluate your detoxing routines?
Posted 3/3/2017 1:09 PM (GMT -5)
Hi sweet July,

Just had complete bloodwork done. All vitamin levels were good.

Had a yeast test done. Results still out.

I don't have any air hunger problems until I think of them "yawn". No shortness but a bit of chest pressure, like bronchitis most of the time. 😑
Posted 3/3/2017 1:09 PM (GMT -5)
Oh - and yes, that extreme fatigue has lasted for many, many months for me. But that was before I took my health into my own hands and started treating for both Lyme and EBV. Now as long as I'm on a high enough dose of Lysine (for EBV), I don't deal with that severe fatigue.

Also, Babesia can cause a lot of fatigue. It infects and 'bursts' red blood cell - the ones that carry oxygen to our lungs and through out our bodies. So if we are struggling to get enough oxygen, one of the symptoms is fatigue.
Posted 3/3/2017 1:14 PM (GMT -5)
You know Traveler, my Doctor yesterday wouldn't even let me open my mouth about the possibilities of where my breathing problems might originate from. I sure hope the Pulmunologist I am going to see is more open minded. I have a sinking feeling that venture is going to be a waste of time.


Sorry for the highjack PK!
Posted 3/3/2017 1:27 PM (GMT -5)

Traveler said...
I understand the chili part - LOL! Same here. I believe it's us craving foods that will help us - the chili pepper in chili is really healthy in many ways - not to mention the beans and other ingredients that go into chili. Right now, I'm sooo hooked on this new recipe for pork and chili stew!! Ha ha ha!! I put double the amount of chilies in it and LOVE it! Although it does cause a bit of a burn and we all sweat happily while saying "Hmmmmm!" LOL!

The shear exhaustion and malaise that can be present is astonishing! Especially when Lyme and EBV are both actively partying inside of us. Have you tested for EBV? How long ago was it? Does your doctor address this as well as other viruses too?

And, I'm sure you will not be surprised that I'm now bringing up your detoxing (LOL!) - Is that all you are doing for detoxing? Maybe it's also time to reevaluate your detoxing routines?

try stevia in chili. Yum!

Detox .... Burbur. Pinella. Sealantro, sulfa Detox..parsley, (cowden)

My Detox tub bubbles toxins from pores. 45 minutes every other day.

Also Alamax cr and trifortify orange glutathione

I can't do a lot of lemon because of ic.

Yes was tested for ebv in July 15 ...surprisingly it was negative. Llmd never brought up retesting ....

My blood counts are always good. Don't seem to have babesia symptoms but do have bart.
Posted 3/3/2017 1:33 PM (GMT -5)

Traveler said...
I understand the chili part - LOL! Same here. I believe it's us craving foods that will help us - the chili pepper in chili is really healthy in many ways - not to mention the beans and other ingredients that go into chili. Right now, I'm sooo hooked on this new recipe for pork and chili stew!! Ha ha ha!! I put double the amount of chilies in it and LOVE it! Although it does cause a bit of a burn and we all sweat happily while saying "Hmmmmm!" LOL!

The shear exhaustion and malaise that can be present is astonishing! Especially when Lyme and EBV are both actively partying inside of us. Have you tested for EBV? How long ago was it? Does your doctor address this as well as other viruses too?

And, I'm sure you will not be surprised that I'm now bringing up your detoxing (LOL!) - Is that all you are doing for detoxing? Maybe it's also time to reevaluate your detoxing routines?

I'm going to bring up other viruses with doc. I believe I recall her saying that some of the herbals in cowden address viruses. Not that that means anything right now😑
Posted 3/3/2017 1:35 PM (GMT -5)
Good to know that you aren't dealing with those other things on top of what you already have!

It could be "just" Lyme - I know that it can get pretty bad for me and others as well at times. Your body is telling you that you don't have the energy to be doing much of anything without compromising other things, so do please listen to your body and don't push too hard.

And, I'm so sorry! I know what it's like to deal with that stuff!

I don't put any kind of sweetener in my chili - the guys here would likely flip if I did! LOL! They love it the way it is. And, I use a lot of stevia anyway on a daily basis. LOL!
Posted 3/3/2017 1:46 PM (GMT -5)

Traveler said...
Good to know that you aren't dealing with those other things on top of what you already have!

It could be "just" Lyme - I know that it can get pretty bad for me and others as well at times. Your body is telling you that you don't have the energy to be doing much of anything without compromising other things, so do please listen to your body and don't push too hard.

And, I'm so sorry! I know what it's like to deal with that stuff!

I don't put any kind of sweetener in my chili - the guys here would likely flip if I did! LOL! They love it the way it is. And, I use a lot of stevia anyway on a daily basis. LOL!

Traveler, do you think I should be retested for ebv?
Posted 3/3/2017 1:53 PM (GMT -5)
Only if they can't find what's causing the extreme fatigue - it could be "just" Lyme. But, if they try several things and come back with "we don't know", then if it was me, I'd be pushing for testing for all sorts of viruses if I was in your position.
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