HealingWell
Search Close Search
☰

Unrelenting Lyme/Bartonella Headaches -- Has anything worked for you?

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/16/2017 10:31 AM (GMT -5)
Hi,

I'm taking azithromycin, amoxicillin and A-Bart for Lyme and Bartonella. Most of my symptoms are neuro and related to Bartonella (treated Lyme first and many Lyme symptoms are gone, though I know it's not easy to tease out which are which). I will transition from A-Bart to rifampin once I have reduced my Bart load.

My worst symptom is a daily, unrelenting headache. I go to bed with it and wake up with it. It's generally in the front of my head, around my eyes, near my temples and sides to about my ears. I have tried everything to reduce the pain, and nothing has touched it. My herxes only make it worse, so I am working on detox.

For folks with similar headaches -- has anything worked for you? Has anyone tried A-Inflam or liposomal glutathione? Any other anti-inflammatory products that you swear by? I'm at wit's end with these headaches, and I know it will be a few months before the medications make a big difference. I'm even considering coffee enemas as as friend said that helped her with these headaches...

Thanks for any ideas!
Posted 3/16/2017 10:33 AM (GMT -5)
I tried Kudzu and had good success with it. Others have recommended that here.
Posted 3/16/2017 10:37 AM (GMT -5)
Treating babesia has helped with my daily headaches. I still get migraines quite often but the daily pain and pressure has improved some. I take crypto-plus for babesia.
Also blue sage and silphitrin for neuro detox
Posted 3/16/2017 11:29 AM (GMT -5)
I tried Burbur Pinella drops I saw on this forum and it has helped mine. I also find that for me even though I realize it's not great for us, coffee has helped at times.

I have a friend who also says the coffee enemas are amazing. I bought a home kit but haven't tried it yet.

Hope you feel better soon

VCL
Posted 3/16/2017 11:29 AM (GMT -5)
Caffeine and/or Excedrin migraine helped immensely.

Patty
Posted 3/16/2017 11:47 AM (GMT -5)
Bee venom has helped my auto immune encephalitis (brain swelling ) and foggieness and alinia helped also (adc has it )
Posted 3/16/2017 5:00 PM (GMT -5)
Thanks to you all. It's such a rollercoaster. I made a ton of progress on Lyme, and thought I was near the finish line, only to have Bartonella then rear it's head. Now I feel 10 steps back from where I started. It's so hard to stay positive. Best wishes for good health for all.
Posted 3/16/2017 5:23 PM (GMT -5)
I'm sorry you're experiencing this. My daughter had severe daily headaches for a very long time. It was about half way through the treatment of Babesia that they improved hugely. She is still in treatment, specifically for Lyme now, and the headaches are gone. If she does get one though, it's mild.
Posted 3/16/2017 5:59 PM (GMT -5)
Japanese Knotweed and Red Root helped my brain inflammation and swollen lymph nodes in my head.
Posted 3/16/2017 6:22 PM (GMT -5)
B99, I'm happy to hear that your daughter is making progress! That's great news! It's hard to believe you're ever going to work your way out of this when you're stuck in the middle of it and the symptoms are overwhelming. I'm trying to keep the faith.
Posted 3/16/2017 6:28 PM (GMT -5)
Yes, pressure headaches are often the result of babesia, not bartonella. Bartonella is the culprit in ice pick type headaches and migraines. I get both! Lucky me! haha! But seriously, it may be time to consider babesia if the head pressure continues.
Posted 3/16/2017 6:36 PM (GMT -5)
I know exactly what you mean. It's been a lot of work and worry for all of us, and hardest for her. The headaches were always with her, never let up. Keep the faith! Stay positive. Look forward. You can get better.
Posted 3/16/2017 7:08 PM (GMT -5)
Thanks, B99. Family support is so important. Your daughter is lucky to have you in her corner.

ChickNorris. First, great name. I should have been more creative. smile Second, I get the ice picks, too. I had the Bartonella "stripes" (my term), so we know I have that one. Babesia is a possibility, I'm sure. There's no end to the fun. Hope you're hanging in there.
Posted 3/16/2017 9:28 PM (GMT -5)
I had very good success with Excedrin and a hot pack on the pain for about 20 minutes. The heat made me have a bart rash appear which stayed for a little less than 2 days, but worth it to get away from the pain. I get sudden, debilitating headaches in the back of my head where it meets my neck. They just hit me like a ton of bricks and make me want to weep. Horrible stuff....I feel for you. The good news is that I rarely get them anymore. I've had to load up on benedryl on a few occasions to get to sleep and away from the pain and that worked but made me useless for a few days, too, since I'm such a light weight with medications. Again, worth it to get away from the pain.

Hope that gives you a few more things to try.

Jenny
Posted 3/17/2017 7:12 AM (GMT -5)

ChickNorris said...
Yes, pressure headaches are often the result of babesia, not bartonella. Bartonella is the culprit in ice pick type headaches and migraines. I get both! Lucky me! haha! But seriously, it may be time to consider babesia if the head pressure continues.

Its not that simple, and symptoms can overlap depending on how inflammation presents. For instance here's a pressure headache case that ended up being Bartonella:

lymemd.blogspot.ca/2014/04/new-onset-chronic-daily-headache-in.html?m=1
Posted 3/17/2017 9:03 AM (GMT -5)
Is it a feeling of too much pressure in your head type of headache? If so, kudzu root has done wonders for me and others here for relieving that pressure feeling.
Posted 3/20/2017 4:30 PM (GMT -5)
I get really bad headaches at night. I do most everything mentioned. I saw on one post that someone took Benedryl. So I tried it and it helped amazingly. It doesn't work all the time, so I have to mix things up.
✚ New Topic ✚ Reply