Nightmares on Mepron - anyone?

The Intraconazole is an anti fungal - I believe it's prescribed for Yeast (Candida)
I'm wondering why Diflucan wasn't prescribed - that's usually the one we see most.

/www.drugs.com/pro/itraconazole.html

Metronidazole is Flagyl - it is the one with a Black box warning (bladder cancer mice/rats)

It's commonly prescribed for cyst busting.

never had any dreams/nightmares being on mepron and i've been on it a few times for months at a clip. everyone is different so.

Oh Lostcoast that sounds terrible. My son it gets it that way too. It breaks my heart.

We already have this awful disease, why should healing it be so terrible.

Girlie, wishing you sweet dreams tonight.

Thanks for the abx. info. - husband was on diflucan/flagyl/vanco. from Dec-mid-March.

This is new batch. Now I'm worried about the black box warning. Yikes.
I don't feel good about this stuff.

And of course, as with everything in the land of Lyme, were going to be on this stuff for a long time. So I'm really hoping all this unpleasant stuff is a die off reaction that will diminish in time. Not a long term side effect of the mepron itself.

As I raise a glass of yellow goo....cheers to hope!

Only time I have ever had vivid nightmares was after anesthesia. Sorry! I dont know much about this, but hope it gets better.

No, it didn't make my lips and tongue go numb...

Mepron was a nightmare for me. I was ok for a week and then I became very anxious very fast. I had a 7 hour flashback where I vividly remembered everything about an experience that I apparently really blocked out. I got something like maybe diskinesia where I couldn't stop moving, tossing/turning, pacing. And then the real golden moment was when my vision developed splotches, like a paintbrush flick type splotch of mepron yellow across my field of vision. It stayed there for a month. You couldn't see it in my eyes but everything I saw had a yellow splotch over it until it slowly faded away.

I think I saw one person somewhere mention that they experienced the yellow vision but otherwise it doesn't seem typical. I think that person told me it used to be listed as a side effect but I never saw it listed anywhere. I actually contacted Glaxo Smith Kline to ask about it and they were not surprisingly unhelpful. They wanted to know the lot # of my bottle which seemed like they thought maybe I got a bad batch... idk.

I remember when a friend went to India they said that the antimalarial drugs caused them to experience something like a waking nightmare. The guy was awake and walking around but also somehow dreaming at the same time. I asked him to clarify but I didn't really get more details than that. I guess that's kind of similar to what my flashback was though I wasn't walking around reexperiencing it or anything. It was just a very very vivid memory. Technically mepron is an antimalarial drug so that might be common I guess.

swivel38 said...
I also heard that Mepron takes about 2 weeks to fully saturate your system and become an effective dose... .

Really? I haven't heard that.

I just finished one week of pulsing M/W/F....

MS - I guess it will take even longer on the pulsing protocol I am on...jeez.

I read that the reason we take it for 4 to 5 months is because that's the life of the red blood cell. We have to get past that as that's where the Babs is?

So, 2 tsp twice daily will quicken that, right?

Rikky1 said...
Dr. J in DC pulses mepron (along with many other things) so you are on mepron 8 days out of every 21 for the first few cycles then you go to 8 days out of every 28. If he wasn't getting such a high success rate with his patients i'm sure he'd change it up so not so sure how much stock i'm going to put into Schaller's work. Schaller has done some great work in the lyme arena but not everything he says is gospel.

Well, some LLMD's also prescribe 2 tsp twice daily...and that would make up for some of the days missed if they are pulsing.

Yes, I do believe Dr. J. would change it up if he wasn't getting success. He's been doing this pulsed approach for many years...I read a post from something like 8 years ago...that he was pulsing then...

Mustard Seed said...

Girlie said...

Rikky1 said...
Dr. J in DC pulses mepron (along with many other things) so you are on mepron 8 days out of every 21 for the first few cycles then you go to 8 days out of every 28. If he wasn't getting such a high success rate with his patients i'm sure he'd change it up so not so sure how much stock i'm going to put into Schaller's work. Schaller has done some great work in the lyme arena but not everything he says is gospel.

Well, some LLMD's also prescribe 2 tsp twice daily...and that would make up for some of the days missed if they are pulsing.

Yes, I do believe Dr. J. would change it up if he wasn't getting success. He's been doing this pulsed approach for many years...I read a post from something like 8 years ago...that he was pulsing then...

Girlie, for what it's worth, my LLMD suggested pulsing Mepron for me, 4-5 days a week, then 2 days off while I continue other antibiotics.

She also suggested that the 1 tsp twice a day dose is a minimum. She was actually going to triple that amount, but settled on doubling it to prevent my insurance from having a super freakout. Frequent liver tests are obviously mandatory.

I've decided to do the M/W/F that I've read Dr. J. does.

I am at the 1 tsp twice daily at this point...I found it quite 'strong' ...so on my second 'round' (after my one week off) I will ramp up to 2 tsp twice daily...
The max dose I've read about is 2 tsp twice daily...never heard anyone taking 3 tsp twice daily...yikes!

I'm taking it with minocycline, azithromycin, Enula, and Artemisinin. Using Xylitol and Lactoferrin for biofilms.
Just ran out of my cyst buster (tinidazole) - hoping that the week off will let them 'come out'...or I will have to go online and order some...unless my LLND agrees to prescribe.

Mustard Seed said...
What are your symptoms like on the Mepron?

Nightmares stopped.

My symptoms seem to be the same as when I was on Rifampin...so now I'm really confused.


burning nerve pain - thoracic.
shivers - like up and down my spine.
and funny head stuff - pressure...foggy feeling.


Oh, and I think it's giving my diarrhea. Within a half hour of taking it...I'm running to the bathroom.
Maybe it's the big amount of fat i'm dumping into my body....I don't know.

This is going to be real inconvenient.
I'm supposed to go on a bus trip in May...that's not gonna work.