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Anyone taking minocycline to help with Bartonella?

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Posted 3/30/2017 1:01 PM (GMT -5)
So my PA is replacing my cipro with minocycline due to neuropathy and tendinitis issues. Cipro was the drug I was hoping would turn the corner on my bart (foiled again!).

I don't know if Minocycline does anything for Bart + I've already been on it for 7 months prior so not too happy about this switch.

Has anyone made strides against Bart using mino? Any other drugs besides Rifampin/Cipro/Levaquin/Bactrim that has done well for you? Thanks.
Posted 3/30/2017 1:10 PM (GMT -5)
It's been used, but usually with something else. You're going to get more answers to this, but don't forget to try the search function for past experiences. There's a bunch in there by just typing mino and bart.


Weird that he would switch you back to Mino after not having success with it earlier.

Speaking of search function, I saw recommendations for throwing some herbs at it with the abx. Like Hout. and/or Hawthorn.
Posted 3/30/2017 1:15 PM (GMT -5)
You could add dapsone to your list as something to try. Pairs good with mino/rif. I'm nervous about it and haven't exhausted all options.
Posted 3/30/2017 1:42 PM (GMT -5)
Rikky - I know someone who used Mino with Rifampin and omnicef and got to symptom free.
Bart was main infection...but this person also did treat Babs for a few months.

There's been one relapse...but is back to symptom free again...after another few months of abx again.

You already know this - the bart guru used Biaxin with Rifampin -
He says it can take well over a year to put bart down.


Does your Dr. prescribe Rifabutin? Is that an option?

Remember this is a new 'approach' you're doing...maybe same meds...but different protocol...
Posted 3/30/2017 2:03 PM (GMT -5)
I used Minocycline, Plaquenil, Rifampin a few years back with some good progress before weaning off Rx to herbs only and relapsed.

right now I'm pulsing Ceftin and Bactrim 2 week on, 2 weeks off

Have you ever tried A-Bart?
Posted 3/30/2017 2:07 PM (GMT -5)

tickbite666 said...
I used Minocycline, Plaquenil, Rifampin a few years back with some good progress before weaning off Rx to herbs only and relapsed.

right now I'm pulsing Ceftin and Bactrim 2 week on, 2 weeks off

Have you ever tried A-Bart?

This is my combo (mino/plaq/rif) but haven't been on it long. How long were you on it?
Posted 3/30/2017 2:08 PM (GMT -5)

tickbite666 said...
I used Minocycline, Plaquenil, Rifampin a few years back with some good progress before weaning off Rx to herbs only and relapsed.

right now I'm pulsing Ceftin and Bactrim 2 week on, 2 weeks off

Have you ever tried A-Bart?

tickbite - are you seeing results with your bart symptoms - using Ceftin and Bactrim?
Posted 3/30/2017 2:09 PM (GMT -5)

k07 said...

tickbite666 said...
I used Minocycline, Plaquenil, Rifampin a few years back with some good progress before weaning off Rx to herbs only and relapsed.

right now I'm pulsing Ceftin and Bactrim 2 week on, 2 weeks off

Have you ever tried A-Bart?

This is my combo (mino/plaq/rif) but haven't been on it long. How long were you on it?

usual doses: 100 twice daily mino and 300 twice daily riffy?

no pulsing...though, right?
Posted 3/30/2017 2:29 PM (GMT -5)
i'm with a new LLMD and new protocol so i'm trying not to let my 2 years of experience with meds and combos affect my thinking too much.

the protocol i'm on is from Dr. J. first week of what they call a 'cycle' is Amoxicillin/Bactrim. second week is Amoxicillin/Minocycline. also on a bunch of anti-malarial stuff but those are the abx's.
Posted 3/30/2017 2:32 PM (GMT -5)
K07

3/10/15 to 4/1/15: Coartem (last dose taken 3/26/14 am), Nystatin
2/6/14 to 3/6/14: Doxycycline, Plaquenil, Rifampin, Nystatin
11/23/13 to 2/5/14: Minocycline, Plaquenil, Rifampin, Nystatin
11/9/13 to 11/22/13: Minocycline, Plaquenil, Rifampin
10/30/13 to 11/4/13: Minocycline, Plaquenil, Parastroy,
10/20/13 to 10/29/13:Minocycline, Parastroy
10/11/13 to10/19/13: Diflucan, Parastroy
9/21/13 to 10/6/13: Coartem

Girlie,

Probably seeing more improvements from the anti-virals than the Ceftin/Bactrim pulse. I'll see my LLMD in a few weeks and see what needs to change. I had the flu last week of Feb, then 6 days of vaca on Hilton Head, and felt 95% great for the next two weeks. Got a small Bart rash last weekend that I haven't had since early January and this week some of my chronic sx are increasing.
Posted 3/30/2017 2:42 PM (GMT -5)
Dr. J does use Rifampin but i would imagine he won't be mixing it with my anti-malarials since you can't take it with mepron.
Posted 3/30/2017 2:42 PM (GMT -5)

Girlie said...

k07 said...

tickbite666 said...
I used Minocycline, Plaquenil, Rifampin a few years back with some good progress before weaning off Rx to herbs only and relapsed.

right now I'm pulsing Ceftin and Bactrim 2 week on, 2 weeks off

Have you ever tried A-Bart?

This is my combo (mino/plaq/rif) but haven't been on it long. How long were you on it?

usual doses: 100 twice daily mino and 300 twice daily riffy?

no pulsing...though, right?

Working up to that. Still on mino 50 mg/2x and rif 300mg/1x. Adding second rif on Sat.
Posted 3/30/2017 4:03 PM (GMT -5)

k07 said...

Girlie said...

k07 said...

tickbite666 said...
I used Minocycline, Plaquenil, Rifampin a few years back with some good progress before weaning off Rx to herbs only and relapsed.

right now I'm pulsing Ceftin and Bactrim 2 week on, 2 weeks off

Have you ever tried A-Bart?

This is my combo (mino/plaq/rif) but haven't been on it long. How long were you on it?

usual doses: 100 twice daily mino and 300 twice daily riffy?

no pulsing...though, right?

Working up to that. Still on mino 50 mg/2x and rif 300mg/1x. Adding second rif on Sat.

How are you feeling on the half doses?

BTW - does your LLMD tell you to start slow? Mine doesn't usually...but when I did that combo, he wanted me on half dose mino for a bit (I think it was only a week)...but didn't want me to start Rifampin until 4 weeks later (and half dose - but maybe that was more about my liver enzymes...he had me test them before going to full dose)
Posted 3/30/2017 4:49 PM (GMT -5)
No, he actually didn't tell me to start the rif at 1x a day. I did because I was scared and of course know too much! I've surprisingly been fine. Haven't felt much different. We'll see how it goes when I add in second dose. I felt nothing with starting the mino/plaq too.

One very strange thing with the rif that I also had with bactrim is that I get "morning sickness" type hungry! Once I eat I'm fine. This lasted about a week with bactrim. I gained like 5 lbs!

Sorry for the hijack Rikky. Now hopefully someone else on mino can chime in (-:

Post Edited (k07) : 3/30/2017 3:53:57 PM (GMT-6)

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