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How many veterans of Lyme disease out there

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Lyme Disease
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Posted 4/2/2017 11:38 AM (GMT -5)
I got bit in 2000 was diagnosed in 2001. Had around 5-6 fair ups since. Going through one now. Any veterans out there?
Posted 4/2/2017 11:45 AM (GMT -5)
Are you asking just for those that have been 'in this' for long periods of time? I've been in this for 44 yrs out of my 53 yrs on this earth. I was infected by the age of 7 and had a 2 year period of health before getting reinfected.

So I was infected in 1970, diagnosed in 2007, healed in 2012 (at the end of the year), and reinfected in 2015.
Posted 4/2/2017 12:07 PM (GMT -5)
I fall into the category of "veteran". Have been treating almost 11 years (cringe).

For the last few years I have pretty consistently been in the 85% of normal range with some dip downs. Only on herbs though for the last year which is pretty exciting because in past years after 4 or 5 months on herbs alone I would backslide and have to go back on antibiotics.

I'm sorry to hear you are having a flare up. Do you know what triggered it? Were you 100% prior to the flare up or do you typically have a few symptoms all the time coming and going?
Posted 4/2/2017 12:20 PM (GMT -5)
Here. been fighting since 1984 to get a proper diagnosis. Finally convinced Dr. to test me in late '92, he sent me to another Dr. to read the test, and I was told I my positives were false positives.

Fast forward to 2015 after a year of relapse, I managed to get another test, which ended up being retested because this time I was CDC positive for RMSF.

Years of infection up to now: 33. Years of any kind of treatment: about the last year 1/2.
Posted 4/2/2017 12:57 PM (GMT -5)
I have been dealing with a lot of health issues since the age of 10. Now 39 years old.

Had a rash on my chest when I was younger. Dr. just looked at rash and said that it was probably ringworm.

Tested positive for Lyme Disease February 2015. Started treatment right away with Doxycycline. After 1 year and several months of multiple antibiotics, herbal formulas, and supplements- I had to stop treatment due to severe constant herxing.

Just finished one round of Dr Klinghardt parasite protocol. Getting ready to start a second round.

Don't know if my symptoms are related to attacking parasites or because I am not currently treating Lyme and co infections??

I hate this disease and all of the wonderful symptoms it has given me.

Looking forward to the day when I feel like a human again and can enjoy life.

Best Wishes!
Posted 4/2/2017 3:14 PM (GMT -5)
Probably had since 10 yrs old ...only been treating 1.5 years...bvt rife iv abx helping ...
Posted 4/2/2017 3:21 PM (GMT -5)
I have probably had this for at least five years (possibly longer). Diagnosed with fibro. Then bit July 2016 and finally found out it's Lyme.

My son was bit at around seven, now 14 and just began treatment in November.

Husband probably sick for years but asymptomatic (acutually think he's the carrier). He started treatment in December.

I believe we can all heal. Hang in there!
Posted 4/2/2017 4:05 PM (GMT -5)
It seems stress triggers it more often. No sure if I'm treating it long enough as of last 4 years as I've had 3 flairs. Always need abx because neuro twitching and burning gets bad. I bet most of us long timers have neuro.
Posted 4/2/2017 9:07 PM (GMT -5)
I've had it for 20 years. Been treating for 6 months about.
Posted 4/2/2017 10:43 PM (GMT -5)
Had so many changing symptoms the last three decades, hard to pin point, but had quite a few sx together around '89-'90. Started treating around 2013, some days feel pretty good, but that last 10-15% seems hard to get rid of. "Normal" changes as we get older too, so its hard to tell what the new norm is. As a past athlete, I have high expectations. Oh well.

Like most outdoors people, ticks never freaked me out and I've had many of them crawling on me in my earlier years. So was it long term infection, or repeated re-infection, I'll never know. Prob both.
Posted 4/3/2017 2:19 PM (GMT -5)
Been fighting the "unknown" illness for 25 or so years... unable to have kids due to these issues, and so much more has been stripped away... but I will always keep fighting!

Life is good!
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