Muscle Wasting and the 3 B's

Is muscle wasting more common with any single co-infection than the others?

Or is it more commonly a Borrelia thing?

Can't seem to find any answers.

Thanks Traverler and Mustard Seed for this post. I'm having this problem and my LLMD didn't have a clue. I'm seeing a new LLNP soon so I will bring it up.

My pain migrates but it is staying in my arms, shoulders, and neck. Sometimes I can barely use my arm and other times it's fine. So weird. I am trying to rub it out and that really seems to help.

Yes it's recoverable.

I think the key is to not give up.

I know a lady who was in her 60's and had LD for many years - I think maybe since childhood.

She treated for 3 1/2 years - stopped abx - I think it's been close to a year now and she's still doing great.

I think - what if she had stopped at 2 1/2 or 3 years? Just gave up at that point? You can't give up because maybe tomorrow is the day you will turn the corner.

She didn't see improvements until something like 2 years into treatment.

I had a pretty good day today - pain wise - but not sure if it's just because I'm now taking Gabapentin. I'm second guessing the decision to take it.

Village Crazy Lady said...
If you're having less pain why are you second guessing it?

Sorry - I didn't explain.

I just started a new protocol a few weeks ago for babesia ...and now I'm thinking I should have held off on the Gabapentin.
I don't know if the good day with less pain is because of the Gabapentin...or is it because the new treatment is working.

Thanks for the help everyone.

Blue I'm going to have some questions for you about bee venom in a few months, thinking about trying it, my neighbor has bees.

Girlie, thanks for the story, makes me feel better about no improvement after 18 months treatment.

I wish there was a way to difinitively know what's causing my muscle wasting. My legs look like I have MS or ALS or something.

I've added Collagen too and my Mother has started hgh, I always wait to see how something goes for her.
She's heard really good thing about hgh for muscles and more.

Hope everyone had a great day!

I didn't even think to ask her how it's being given, I'll talk with her more about it Sunday and I'll warn her about the side effects.

Thanks Girlie

What does everyone do for the pain that it causes? Mine is getting so bad I can't get any relief. I'm taking supplements for Bartonella and Lyme and am seeing a new LLNP in June. My old LLMD didn't seem to know anything about it.

But until then I can barely use my arms they are so weak and they ache terribly. I take gabapentin for my neuropathy but it doesn't seem to make any difference with my arm pain.

Traverler, yes I am taking that too, it doesn't seem to make any difference. I am open to anything. I have tried Tramadol which was too hard on my liver. I take 3200 mg of Gabapentin for my neuropathy which that doesn't seem to help with my muscle pain.

I take Corydalis 10:1 extract which doesn't seem to help much either. I have medical marijuana which helps by relaxing so much I fall asleep. I have kratom but it really stopped working for some reason, so I'm taking a break from that.

Epsom salt baths help but I have to keep getting in and out every couple of hours. I also take infrared sauna which helps but I can only take one 3very other day.

I never even thought about looking up pain herbs in my Buhner book. I'll do that now. It's just getting kind of scary. I try to use a stretchy band to try and keep up the muscles but a lot of the time it's just too painful. I can't wait til I see my new doctor.

Thanks so much!

Laker7491 said...
What does everyone do for the pain that it causes? Mine is getting so bad I can't get any relief. I'm taking supplements for Bartonella and Lyme and am seeing a new LLNP in June. My old LLMD didn't seem to know anything about it.

But until then I can barely use my arms they are so weak and they ache terribly. I take gabapentin for my neuropathy but it doesn't seem to make any difference with my arm pain.

How much Gaba are you taking? If it's a low dose...maybe you can raise it?

I've recently started it...and I'm on 300 mg twice daily now..took me a few weeks to get to that amount.

I've had a couple of really good days lately - pain greatly diminished. I'm wondering if it's the Gaba ...or the babesia treatment working. Bad timing on my part to take the Gaba soon after Babs treatment started.

This morning I woke up with burning pain...so this will be a good test for the Gabapentin.

Girlie said...

Laker7491 said...
What does everyone do for the pain that it causes? Mine is getting so bad I can't get any relief. I'm taking supplements for Bartonella and Lyme and am seeing a new LLNP in June. My old LLMD didn't seem to know anything about it.

But until then I can barely use my arms they are so weak and they ache terribly. I take gabapentin for my neuropathy but it doesn't seem to make any difference with my arm pain.

How much Gaba are you taking? If it's a low dose...maybe you can raise it?

I've recently started it...and I'm on 300 mg twice daily now..took me a few weeks to get to that amount.

I've had a couple of really good days lately - pain greatly diminished. I'm wondering if it's the Gaba ...or the babesia treatment working. Bad timing on my part to take the Gaba soon after Babs treatment started.

This morning I woke up with burning pain...so this will be a good test for the Gabapentin.

How's your pain, Girlie? Hope it improved during the day.

The original post title mentions the "3 b's"...silly me thought it referred to b vitamins since its deficiencies thats ultimatley CAUSING the muscle wasting. I also have noticed an INCREASE in muscle wasting since startbof treatment two years ago.

Magnesium yes of course to relieve acute symptoms-someone mentioned having to get in-&-out of epsom salt bath= the magnesium helps temporarily...

A GOOD B-complex by Metabolic maintenece, and a product called 'core' by biopure-it contains manganese, molybdenum, b-6, chromium, magnesium, zinc, BIOTIN, and taurine.

But y'll likely know about the importance of a good B-complex!