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Pretty sure it's Babs/Bart

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Posted 4/12/2017 12:36 PM (GMT -5)
I keep researching what can cause light sensitivity and went back and looked at the lyme/coinfections symptoms chart. And there it was...Babs and Bart can cause light sensitivity and most of the other symptoms I'm having right now.

One of the reasons my LLMD put me on Biaxin is because he suspected Bart and Babs. He send it would probably shake them up....I guess it just took a little longer than I thought it would. It also makes sense because the severe light sensitivity seems to happen every 5 days or so (which is the cycle for Babs).

And now I just want to cry. It's always one step forward, a billion steps backward.
Posted 4/12/2017 12:50 PM (GMT -5)
Hi pmm73 -

I'm so sorry you're struggling. This is such a hard journey.

I also had light sensitivity and several other weird eye issues while treating. It's hard to say which infection caused it, for me, as I had several issues going on.

Most of it improved significantly, until recently. I'm nearing my end of 4 yrs of treatment, the last 2 have included antibiotics. I started a biofilm-busting herb in Dec. and BAM!! Nearly all my old sx returned, including the eye issues. It's much better now.

Please be sure your detox protocol is excellent, you need to get what you are killing out of your body and most of us struggle with that. Lots of good info here for that.

It's totally understandable to be upset, but just remember that setbacks are a VERY normal part of this treatment and can sometimes indicate that you are, in fact, killing what needs to be eliminated and this does mean overall progress. And - you're not alone!

-p
Posted 4/13/2017 4:25 PM (GMT -5)
pmm73 - I'm wondering how you are feeling today. Hope it's a better day for you!
Posted 4/13/2017 5:16 PM (GMT -5)
Hey its going to be Ok and its alright to feel sad or discouraged. I feel that way sometimes too. The important thing to remember is that you are treating these infections and progress will come.

We might have setbacks but just stay focused on your treatment, detoxing and the thought that you are doing the best you can. Healing does take time, just keep putting one foot in front of the other....and keep marching to the better days ahead.

Take care and I'm wishing you the best of healing and lots of sunshiny days ahead too. Sincerely, Jo
Posted 4/14/2017 8:29 AM (GMT -5)
Thank you all for the kind words smile

Right now, the head and neck stuff isn't constant; some of the things I take do give relief for a few hours but then it comes back. You're right, goshawk....I need to focus on the positive!!

I've been so worried about having to go through the severe head pressure/pain again (the first time it was about a month of pure hell...I was so afraid to sleep because I didn't think I'd wake up) that I'm probably making myself more stressed. I'm going to focus on preventing my neck muscles from tightening -since that's what makes my head worse-, detoxing, and staying a step ahead of it.

Wishing you all happy healing and good days too! You're all such wonderful people!! xoxo
Posted 4/14/2017 9:46 AM (GMT -5)
Hang in there Pmm!!! I'm so very sorry! I get the light sensitivity off and on too, and it's definitely NOT fun! Along with that is the headaches from being sensitive to the light!

Remember to protect your eyes though - wear sunglasses outside, and inside if you are that sensitive that day! I do!!!

If the head pressure comes back, please do consider trying Kudzu root. It's been wonderful for my head pressure.
Posted 4/14/2017 10:42 AM (GMT -5)

Traveler said...
Hang in there Pmm!!! I'm so very sorry! I get the light sensitivity off and on too, and it's definitely NOT fun! Along with that is the headaches from being sensitive to the light!

Remember to protect your eyes though - wear sunglasses outside, and inside if you are that sensitive that day! I do!!!

If the head pressure comes back, please do consider trying Kudzu root. It's been wonderful for my head pressure.

I've been wearing hats at work to help with lights!

I was on kudzu root for a while but when I met with my new LLMD for the first time, we went over all the supplements/herbs I was taking and he wanted me to stop everything because he thought I was herxing at the time. He was right - after 3-5 days of no herbs or supplements, I was fine. Since then, I really just take what he tells me to and never went back on a lot of the stuff I was taking (ie kudzu root, milk thistle, JK, etc etc)
Posted 4/14/2017 11:12 AM (GMT -5)
So, are you taking anything in place of the milk thistle? You really do need to protect your liver, as we only get one of those.

I would encourage you to ask your doctor again about restarting the kudzu root and the milk thistle (again, unless you are taking something else that will help protect and detox your liver).
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