Again, probably not correct spelling of this drug. DR. prescribed rifamprin today but I have been reading where other drug is needed for combo? Am allergic to tetrocycline. Bactrim perhaps?

You could do biaxin or zithro or bactrim. both go with Rifampin.

Take the biaxin or bactrim (or whatever abx you choose) for a while first and see how you do before adding in the Rifampin.

I was clinically diagnosed with bart...and after over a year of treating it...I was positive via PCR blood test.

Yes burning --- lots of burning...nerve pain...had twitching it resolved...and also had weakness (had to stop driving for a bit) - weakness is getting better..much better.

I have Bart. Had terrible twitching in both legs which is minor now. I had weird butt pain with itching which is mostly gone. My biggest problem now is bilateral nerve sensations in my calves and strange horrible shin pain in my left leg. It is the worst at night after i have been on my feet for a while. This is part of my SON from Bart.

I also get weird burning in my thighs which Rifampin makes worse, but I am willing to accept that if it means the meds are working.

Sorry it should say sfn for small fiber neuropathy.

I did Rifampin with Doxy then Biaxin both seemed to work well together. Also did rifabutin and bactrim also seemed to work well together.

So I see lots of folks that have Bart talk about 'burning'. Now what does that feel like? I definitely have nerve pain but I wouldn't describe it as a burning sensation nor would I say its acute sharp pain but very debilitating. I also don't have weakness or shaking or twitching. Thanks.

It's hard to describe, Rikky. It does feel like burning...don't know how else to describe it.

It's searing. It's the worst pain I've ever felt...yes, worse than contractions during childbirth. (not that you would have experienced that...lol.

I haven't really been tired since I got sick...no fatigue - just weak.
My nervous system has really been affected.

Twitching, weakness, nerve pain, shivering, vibrating.

Our doc plans to give DD zithro with Rifampin (no 'r' after the p... I think you're thinking of Pamprin... lol) for presumed Bart. Deep bone pain and generalized weakness were some of her first symptoms. Then she had more nerve pain. Now she has a mild tremor in one hand.

Hang in there Girlie!

tcoach1,

My doctor had prescribed me Rifampin only for a few months and then added zithromax. Do you live in NJ by any chance?
Also, I have a lot of muscle twitching and some boring muscle pain.

Girlie said...
It's hard to describe, Rikky. It does feel like burning...don't know how else to describe it.

It's searing. It's the worst pain I've ever felt...yes, worse than contractions during childbirth. (not that you would have experienced that...lol.

Hi Girlie,

Did you say you had shin pain? If so, I'm curious if it gets worse with the more activity you do? Mine seems to be exaserbated the more I am on my feet.

Girlie said...
oddity - shin pain was not one of my symptoms - before treatment and during treatment for the first couple years of lyme and bart.

Then when I switched my dosing of rifampin from 300 twice to 600 once daily..I got burning pain on my left shin.

it subsided after a week or two...

And no, mine didn't get worse with activity.

Thank you. Just curious.