Latest treatment plan

I'd stay on Doxy. It kills Lyme better and hits coinfections more apparently.

Mustard Seed said...
I'd stay on Doxy. It kills Lyme better and hits coinfections more apparently.

You think it hits lyme better?

I was only on doxy a few weeks...early on in treatment.

Kat -
If you're having improvements with doxy - you have only been on it for a month...so maybe stay on awhile longer..til the sun comes out - then switch to minocycline.

At some point you'll want to treat the co-s.

ok - I'll stick with doxy until I go back and see him again. I asked him about babs because of the mottling on my arms and easy bruising, so he said to track babs symptoms and we'll talk more next time. He's only seen babs with high fevers.

samento he has me starting 1 drop a day and adding a drop until I hit 30. Does that sound right? Is it really strong?

Also, I just read not to take doxy and Tin together because they can bind, but that's what I've been doing and have had some success, so it will be interesting to see what happens when I'm alternating days.

Kat1000 said...
ok - I'll stick with doxy until I go back and see him again. I asked him about babs because of the mottling on my arms and easy bruising, so he said to track babs symptoms and we'll talk more next time. He's only seen babs with high fevers.

samento he has me starting 1 drop a day and adding a drop until I hit 30. Does that sound right? Is it really strong?

Also, I just read not to take doxy and Tin together because they can bind, but that's what I've been doing and have had some success, so it will be interesting to see what happens when I'm alternating days.

I have babesia and no fevers at all. My babesia symptoms are head pressure, tachycardia, air hunger, vivid dreams, petechae all over randomly.

I decided to try the new med. The pharmacist gave me a week supply and said I can fill the rest if I don't like it. I saw good reasons for doxy or mino, but my goal is to get off the antiobiox so I'm hoping mixing it up helps.

You might herx more simply because the mino crosses the BBB, where Doxy doesn't. Start off slowly and on a low dose, ramp up as tolerated, but don't forget to do a lot of detoxing too, so it doesn't take too long. If you tolerate it well, you'll be up on full doses soon enough.

By the way, the ringing in the ears is due to nerve issues most often, so that's either Lyme or Bart. Babesia doesn't usually produce the ear ringing (tinnitus). I have been using Lion's mane to help heal the myelin sheath of my nerves and my tinnitus, though still around, has decreased significantly.

Having patience while titrating up is one of the hardest things for many of us! But there is a high price to pay for some of us if we don't take our time - I fall into that group, of course! But, do remember that the herbs are synergistic even at low levels!! I hang on to that, and do know from experience that this is true. I can feel better even on low doses of the herbs.

Do watch and compare how fast and bad you sun burn on each (Doxy & Mino), as well as other things. Mino is generally tolerated better, but not always. And do be careful, as depending on how pale your skin is, you may sunburn quite badly in a short time!! I did and I was taking Mino!

And do let us know what you decide to do and how you do on it!!

Ugh! I know what you mean! I'm usually either doing something for treatment or detoxing most of the day. Around 2 or 3 pm, I may have a break, but then it's time to start back again soon.

I'm really glad your doc said that you can switch between the Doxy and Mino!! That way you can find out which one you tolerate better and sunburn less with. I'm pretty pale (if it wasn't for the freckles!), so burn pretty easily, especially this time of year when I haven't been out much yet. Sunscreen time!

Well the fatigue and achiness hit this afternoon. I did the mino yesterday and the tin today. Up to 3 drops of samento. Alka seltzer helped and will try for a bath later. I started doxy 100mg 1x a day, then 2x a day. I think doc was going to increase it, but then he gave me the mino option.

Girlie - sounds like what I read was right, so it is a higher dose of mino. So the herx makes sense.

something is working I feel the best ive felt in a year only time I feel crappy is when I start a new med and that lasts maybe 5 days ive worked 9 16 hour days at my mills shutdown in a row last may at shutdown I could barely do 8 hour days

Doxy doesn't cross the BBB? I always thought it did. That's not good news for me, because I have pretty severe neurob and that's all I've been taking.

I would have thought my LLMD would have mentioned that.

Found this: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3171989/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3651660/

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/10814124-best-oral-antibiotic-that-crosses-bbb

....

I think I might contact my LLMD and ask him to put me on minocycline and see if that makes any difference.

Post Edited (gfields) : 5/2/2017 4:00:45 AM (GMT-6)

Quick update - I've been experiencing pain and twitches again that haven't subsided. The redness in face subsided, but feet and back pain, especially in morning, is very bad again. Twitches and tics back, though not as severe. I'm going back to doxy for now. See LLMD in a couple of weeks.