Help for my cousin

physedgirl09

Veteran Member

Joined : May 2017

Posts : 801

Posted 6/24/2017 9:58 AM (GMT -5)

Hey guys,

Ok so my cousin has been sick for years. She's been tested for everything under the sun and in the end she diagnosed with fibromyalgia.she also had to have her gallbladder removed last year
.talking with her, I noticed she has very similar symptoms as me. I asked her if she's ever been tested for Lyme disease. She said yes but it was negative. I asked her to send me her results.

Western blot:
Lgm 23 present.
Lyme disease Ab quant lgm 3.20 High.

Is this enough to send her to an llmd!!! Poor thing has been suffering for years. Her infectious disease Doctor keeps saying negative

Traveler

Elite Member

Joined : May 2007

Posts : 36573

Posted 6/24/2017 10:06 AM (GMT -5)

Yes, this is more than enough for her to see a LLMD and start treatments. Band 23 is Lyme specific.

Have you seen the listing of possible ways to find a LLMD? We may be able to help her find a doctor, depending on where she lives.

FWIW - many with Fibro actually have Lyme. It was one of my misdiagnoses as well.

physedgirl09

Veteran Member

Joined : May 2017

Posts : 801

Posted 6/24/2017 10:10 AM (GMT -5)

Thanx traveler. I'm actually gonna send her to my llmd! Your awesome btw

Traveler

Elite Member

Joined : May 2007

Posts : 36573

Posted 6/24/2017 10:39 AM (GMT -5)

Good idea!! That way you know the doc and can help her! Don't forget to suggest she join our community too though!

And thank you for your very kind words. They mean a lot to me!

Caramba

Veteran Member

Joined : Aug 2016

Posts : 626

Posted 6/24/2017 4:50 PM (GMT -5)

almost every one here has nearly the same story, it's surreal.

20 x Western Med Docs: you don't have lime

Until we find the one LLMD or we diagnose ourselves: you have Lyme, for sure.

I'm glad your cousin will be on a path to healing!

physedgirl09

Veteran Member

Joined : May 2017

Posts : 801

Posted 6/24/2017 5:24 PM (GMT -5)

Yeah it's not that I'm happy I got diagnosed, but I'm happy that I put two and two together and I could help her. She has been suffering so so much.

bluelyme

Veteran Member

Joined : Nov 2015

Posts : 6219

Posted 6/25/2017 2:43 AM (GMT -5)

She had a postive absolute and no treatment ..uhhg..my cousins wont test or treat...keep us posted

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