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Why am I still so tired?

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Posted 6/29/2017 10:51 AM (GMT -5)
Feeling tired started about two years ago. I was just tired. Thought I was depressed. A year ago, I officially started my Lyme journey. In November, I started taking lyme killing herbs. The herxes got so bad, I had to stop and re-start. I'm now taking it VERY slowly, getting up to full dose on each herb before I start a new one. It's slow going for sure. Right now I'm working on AL-Complex.

Here I am, still unable to wash dishes. Spending most of my day in bed or on the couch. I had a bad headache this week, but I've also been extra tired the last couple of weeks. The only new things I've started are glutathione, CoQ10, and BT-Detox (Byron White). I suppose the BT-Detox is making me tired, but I really need to get my energy up. I'm so sick of this. It's been years.

Is this normal? You'd think with the dietary changes, all the supplements I'm taking (good vitamins), I'd feel like a champ. I go to sleep every night at the same time, I eat rather well. I just don't get it. I feel like I'm getting weaker. I have a hard time doing any kind of exercise. I tried 5 minutes of light yoga and it just about knocked me out.
Posted 6/29/2017 10:57 AM (GMT -5)
Is the BT-detox the only detoxing you are doing? If so, I would encourage you to add in more detoxing routines. We need to get every detox pathway working that we can.

Also, have you been tested for viruses? While Lyme and company does cause fatigue, many viruses can make that fatigue much worse. For me, it's my EBV that really makes the fatigue a lot worse.
Posted 6/29/2017 11:06 AM (GMT -5)
have you checked?

1) Anemia
2) Hypothyroidism
3) Vit D deficiency
4) Mytochondrial Dysfunction
...

Asides from Lyme we need to check our other systems and help those along during treatment.
Posted 6/29/2017 11:23 AM (GMT -5)
Mold can also be an issue😞
Posted 6/29/2017 12:24 PM (GMT -5)
I was very tired the entire time I was fighting lyme. It takes a toll on the body. Your immune system is working hard to overcome this disease.

I would sleep practically all day and all night. Or I would nap like 3 times. I was always tired and could barely do anything. My house was so dirty when I had lyme. It was all I could do to keep the laundry done and quick, fast meals.

I am sure that my adrenals, thyroid and every other system in my body was exhausted. No, I did not do any testing. I listened to my body and slept. BUT I also treated very consistently and detoxed. I ate very healthy too.

We are all so different.
Posted 6/29/2017 12:46 PM (GMT -5)
I am on meds for thyroid (NatureThroid) and have supplements for adrenals, Vit D, everything. Far as I know I'm not anemic. As for Mitochondrial Dysfunction, I don't even know what that is.

I really don't want to think about mold. We live in an old building that was rehabbed into lofts about 10 years ago. I have had mold exposore in my life (bad from a flood when I was 5 and a really leaky apartment in my '20s) and I've been tested...recently...have not gotten results yet.

Peetza, how long did it take for your energy return? Has it? I'm one two years of fatigue and only 1 year of being treated. I know it's slow, I just want to get out of the house once in a while. On Sunday we had breakfast, went to the bookstore, and then for coffee. I was ZONKED the entire next day. I hate that. I just feel like after a year of being a good girl I'd feel a lot better than I do. And I know I'm not killing as much lyme as I could be. Ugh. This really is a slow boat to China.

Oh and yes, I"m detoxing. I do dry skin brushing, charcoal, lemon water, lots of regular water, green juice, L-Drain, and epsom baths about twice a week when I have the energy. Last night I did 1 tsp of epsom salt in water and that seemed to help some.

Post Edited (10LymeB) : 6/29/2017 11:51:12 AM (GMT-6)

Posted 6/29/2017 1:15 PM (GMT -5)
Mitochondrial Dysfunction is difficult to diagnose using conventional Drs and clinics. The specialists in this are are childrens clincs, (they test and treat adults with it too) since most are born with it.

Although my Genova test suggested possible mito issues and showed chemical breakdown of muscle tissue, I DONT have it per conventional testing. (??)

I did a lot of testing including 400 gene mito tests. I needed special approval for testing and acceptance into the clinic. Got help in the form of a grant to do it too, they were very helpfull in that part, as they thought I had it to.

Today: My health cotinues to get better, two years after ABX. I keep upping the weights at the gym, no kid anymore either. I am still tired too, but able to increase muscle strength easily these last three months.
Posted 6/29/2017 6:13 PM (GMT -5)
Hi 10LymeB,
Sorry your having a rough time. Hope It gets better soon.

You said you only use 1tsp of Epsom salts in the bath, I use about 2 to 3 cups of Epsom salts in the bath. You might try increasing your amount slowly and see how it goes.


In Buhner's book he has a formula for chronic fatigue. It's on pg 239 of the 2nd edition of Healing Lyme.

It might be worth a look and see if that helps.

If you don't have the book just let me know and I will write out the formula . He states that it is very specific for reversing long term chronic fatigue.


Take care, Jo
Posted 6/29/2017 9:33 PM (GMT -5)
"I am on meds for thyroid (NatureThroid) ..."

Please test your Free T4 and Free T3. Mid-range results are a good place to aim for, then fine tune. Sometimes Naturethroid can elevate Free T3, which can cause unrelenting exhaustion.

Also, low B12 can accompany thyroid issues, and will also cause exhaustion and neuro symptoms. A simple blood test will tell you much. Many people with B12 levels below 500 are symptomatic. US lab ranges state 300 - 1100 is acceptable, but everywhere else in the worls people who test below 500 are treated.
Posted 6/30/2017 2:46 AM (GMT -5)

caramba said...
have you checked?

1) Anemia
2) Hypothyroidism
3) Vit D deficiency
4) Mytochondrial Dysfunction
...

Asides from Lyme we need to check our other systems and help those along during treatment.

lyme and bartonella and babs are very much intercellular..it wasnt until 18 months could i lift things again .i lived on bee pollen and ginsing ...
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