Desperate for Advice

I've been on 300mg Zithromax daily and 100mg x 2 of Minocycline for about two months. I've slowly been getting more fatigue, urine frequency and urgency, and in the last two days some nausea that I haven't had until now.

I was seeing a LLNP where I live, but she wasn't very helpful and sent me to other practitioners- almost like my case was too complex for her to handle - after seeking a second opinion in May with another LLMD she decided to release me from her care. "If someone else is managing your Lyme, I'm not."

So, I sought someone else to do my annual physical. That person doesn't want to do a full blood draw on me because I just had one about 8 weeks ago.

Today I went to MedExpress with the hopes that I could convince them to check blood for me, and the doctor refused. He told me that my liver and kidneys could be under strain as a result of the long term abx-I already know this - but his excuse for not doing the blood work after me point blank asking for it was because I needed continuity of care at my gp 's office. Sigh.

How are you guys handling blood draws? Does your GP do them, and how did you convince them to do so? If your LLMD orders them, does insurance pay for them?

My LLMD is on vacation this week (only practitioner in the office), so now I'm left trying to decide whether to err on the side of caution and stop abx until Mon when I see her or continue taking drugs that could be doing damage.

Just spoke to someone last night that has been dealing with this disease for maybe 15+ years, and he regrets his two years of abx usage. Isn't sure it truly helped him any more than a holistic approach of managing diet, stress reduction, supplements, exercise and earthing. So confusing.

Doctor this morning was very concerned about the two months straight of abx, but not concerned enough to run the blood work. Feeling like a leper again.

Thoughts or suggestions greatly appreciated!

Denver1

Bumping my own thread!

Mike - I hear ya about MedExp, but can I tell you that two of the doctors there have been infinitely more compassionate than my other practitioners have been, and one was even willing to treat me when no one else here would. I just got unlucky today that neither of them was there.

Girlie - i can't get anybody to agree to do the bloodwork since they aren't the ordering physician. No one wants to touch me because I'm being treated by someone else. My LLMD is well over 2 hours away, and despite her functional medicine training, I believe she's not going to be amenable to switching to herbals since she's speculating I've had this a very long time.

I've also attempted to email her about alternative ideas to things and she avoids the questions.

Honestly, Ive always been someone who values the truth, so I answered the questions about the meds I was on at MedExp. If I hadn't done that I could have demanded the blood work. Is this disease going to push me to change even one of my core values?

I've always been an honest person, as well...BUT when it comes to my life...I make exceptions.
If I have to tell a lie to save my life...then I will.


I compare it to this story:

If a thief came up behind you at the bank - ATM - grabbed your card as you were walking away and asked your PIN number - would you give him a fake one or the real one? (let's say he's unarmed)
Would you feel bad lying and giving him a fake one?


I have felt the power of this disease - to cripple me...and I am in life-saving mode.

Having said that - you had no idea when you wrote down the meds you were taking - it would have that reaction.
...the test should have been done BECAUSE you were on antibiotics for two months...he's got it backwards.
and it could be illegal not to write down the meds you were taking?

You shouldn't have to lie...that's just wrong...i'm sorry this is happening to you.