Hi,
On vacation between primary school and high school I was bitten by the tick. At the beginning of high school when I was 16, the first signs of Lyme disease appeared. Then I had no idea that a large red spot on the thigh was the symptom of this disease, that is erythema wandering. The numbness of my right leg, which sometimes appeared at night, disturbed me but did not trigger an alarm, I lived my active life and ignored problems from unknowledge.
Later I had more signs. Normal functioning prevented me from seeing my vision problems. I was at several ophthalmologists who said that "you have no fault". They did not want to hear that I saw through the fog, sometimes so thick that I could not read. Periodic headaches appeared. All symptoms appeared and disappeared but I never really functioned as a healthy person anymore. When one Sunday, at that time, I left the church walking in front of the crowd, I felt bad, I was overheated, weak and I could see a little, going to the exit from the fence of the church all turned to my head and I fell down and lost consciousness, some people stopped and some were avoiding me, it was not important ... Then we knew with our family that something was wrong.
I started to walk to neurologists, they often did an EEG study and they said it was ok. At that moment when I fell ... I went to the hospital for 1 week observation and study cycle. Nothing was found and it was stated that I have migraine. Later the symptoms were repeated and the migraine tablets, written by the doctor, did not help. I went to the next specialist doctor and then to the next and the next ... and in total it gathered at that time 10th of them. I reflected on them non stop with diagnosed migraine. In the meantime, I was leading an active teenager's life. I went to school, had girls, went to the parties and played basketball. Everything I did was done more by my heart than physically because the symptoms of my illness did not go away and the erythema migrated constantly appeared in another place.
I am a high man and basketball was in my blood, I did it quite well. I got to the club and I trained 4 times a week and on Sundays I played matches. It did not take long, after about
half a year of intensive training I stopped catching the ball because my hands were shaking so intensive that I had to finish my career. The doctors once said "migraine". Many times in my life I was told that I was smart but lazy. My "laziness" was impotent and it was also a symptom of the disease, first I could not do something and then did not want to, and what I did I did because I really had a lot of willingness to live and act. I had problems concentrating, I passed hundreds of tests and exams because I was teachable.
In 2005, in addition to the standard symptoms for me, there were strong headaches that paralyzed me. I went to the neurologist again, this time the doctor sent me to a magnetic resonance because he said it would give a fair picture. He said that ... "MR showed demoralization changes in the course of Sm". When I read this score I was happy at first because there was nothing I could understand. Then I typed it up on the internet, which told me that this score means multiple sclerosis. I did not know anything about
it at the time, and certainly not that the demilitarization was a symptom of many diseases. The doctors interpreted the result at that time in only one way, the result was a sentence. It sounded like the end of the world. I was covered with tears, later I was taken to the hospital and I was given the first solu-medrol steroids in life. I felt well after them and thought that this illness was not the end of the world, so I continued my active life.
In 2007 I became a mgr of economics. From that moment I became active professionally. After graduation I became an assistant auditor and checked the correct documentation of the companies. Again, the disease prevented me from continuing this work because I stopped seeing. Once again, I became a specialist in raising European funds. My company did not come out then, it fell.
In 2009 I became a credit analyst of the largest Polish bank. At the beginning of 2013 I set up my own accounting office and quickly I have developed enough to maintain a family. Often in my life I was suspected of being drunk. This was another symptom of diarrhea so I repeated the hospital treatment. Incorrect diagnosis resulted in abnormal treatment, and I, by 2013, received 32.5 liters of solu-medrol steroids and many Metypred tablets. Maybe medicine once will understand that the treatment of lyme disease steroids is a killer and maybe it will abandon it. In the meantime I started a family, in 2009 I got married and have 2 daughters aged 4 and 7 years old.
In 2013, there were serious physical problems, and in July 2014 I started moving in a wheelchair I'm still on. Academic medicine in my treatment proved so incompetent that it aroused my rebellion. I have not touched today, since I was in a wheelchair, no medicine. I had alternatives - herbs, supplements, bioresonances, vitamins, diet, rehabilitation, spending a lot of money ... it had to pass three years before I was ready again to try antibiotics. I have heard that ILADS is the most effective antibiotic, which has been proven in my case, for many years. I dreadfully rejected it because the antibiotics should be taken for 2 years every day and it is killing the body. I found something else, the another antibiotic Cefriaxon Mip that I will be taking for 3 months, has been successful in treating a person I know and I would like to try.
I have not mentioned yet that my professional and personal life has fallen apart. Today I have no money for further treatment. Next I believe that I will walk and live healthier than ever
A few months ago my situation was stabilized financially and housing. The situation has changed. My ex-wife who gave me support, got tired and ordered me to move out. I could not refuse this request. Thanks to the support of my relatives I have a new place to live now. I'm missing money for expensive treatment and rehabilitation,
Please, share this information about
me and my situation with others. I promise I will inform you about
the development in my treatment. Lukasz
Post Edited By Moderator (Girlie) : 7/31/2017 10:44:11 AM (GMT-6)