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Posted 8/20/2017 8:34 AM (GMT -5)
I take this great product called Memory Pro by Pure Encapsulations. It has Aceyt L-Carnitine, Phosphatidylserine, Ginko, Vipocentine, Bacopa, Tumeric, Lemon Balm and Japanese Knotweed. It really helps with my cognitive functioning.
Posted 8/20/2017 9:09 AM (GMT -5)
Hoagie, I would not borrow trouble. If your doctor calls you at night or on the weekend, then you worry..... He would call if he saw anything life threatening.
Posted 8/21/2017 12:06 PM (GMT -5)

Girlie said...
I think it's the infections and also the toxins from the infection dieoff.

That's a bit what i was thinking as well since I had just started abx that morning.

Thanks Girlie!
Posted 8/21/2017 12:11 PM (GMT -5)

cr3ativegirl said...
I take this great product called Memory Pro by Pure Encapsulations. It has Aceyt L-Carnitine, Phosphatidylserine, Ginko, Vipocentine, Bacopa, Tumeric, Lemon Balm and Japanese Knotweed. It really helps with my cognitive functioning.

I'll look into that. I am already taking so many vitamins, herbs, abx, and supplements, I don't know if I can add any more. I probably drink a quart of water getting everything down in the morning. Which isn't a bad thing as I used to never drink enough water. This at least keeps me hydrated.
Posted 8/21/2017 4:23 PM (GMT -5)

PeteZa said...
Hoagie, I would not borrow trouble. If your doctor calls you at night or on the weekend, then you worry..... He would call if he saw anything life threatening.

I try not to, but with my symptoms progressing a bit, I can't help it. My vision seems to be taking a turn for the worse. I am hoping this is all the abx killing the lyme creating havoc up there and it will all clear out in time. But who knows. I feel like I'm progressively wasting away.
Posted 9/5/2017 7:34 AM (GMT -5)
Will my current treatment hit Bartonella as well? See original post.
Posted 9/5/2017 11:41 AM (GMT -5)

Hoagie said...
Will my current treatment hit Bartonella as well? See original post.

How long have you had symptoms?


The reason I ask, is generally Bartonella needs something 'more' than what you're taking (minocycline, Azithromycin plus Flagyl).
Rifampin or Rifabutin is standard (some take one of the Fluoroquinolones - but I wouldn't because of the black box warning)


Having said that, I do know a few people who treated their bartonella with a tetracycline (mino or doxy) with a macrolide (biaxin or azithromycin) and healed.
They were clinically diagnosed with bart...so who really knows for sure if they did indeed have bart.
And these people I'm referring to didn't have their infections for years - 'only' months.

The majority of people do need Rifampin/Rifabutin (or a fluoroquinolone)
Posted 9/5/2017 12:54 PM (GMT -5)

Girlie said...

Hoagie said...
Will my current treatment hit Bartonella as well? See original post.

How long have you had symptoms?


The reason I ask, is generally Bartonella needs something 'more' than what you're taking (minocycline, Azithromycin plus Flagyl).
Rifampin or Rifabutin is standard (some take one of the Fluoroquinolones - but I wouldn't because of the black box warning)


Having said that, I do know a few people who treated their bartonella with a tetracycline (mino or doxy) with a macrolide (biaxin or azithromycin) and healed.
They were clinically diagnosed with bart...so who really knows for sure if they did indeed have bart.
And these people I'm referring to didn't have their infections for years - 'only' months.

The majority of people do need Rifampin/Rifabutin (or a fluoroquinolone)

Symptoms started about 4 or so years ago. But, just recently put two and two together. As I stated in a separate thread, I was bit by a stray cat in 2012. Had to go to the Er due to swelling, pain, and a red line going up my left arm from the bite on my hand. Shortly after I developed back pain, muscle spasms in calves, and a chronic itch in my foot. They eventually went away. But, since starting the antibiotics for Lyme, they have come back with a vengeance. And I cannot walk very good.

I believe the tick bite last year really got the bart going and now have brain lesions, vision problems, mood swings, brain fog, migraines, gait disturbances, etc... The problem is that my bart test came back negative. However, if I got it 5 years ago, I am chronic. And we all know how difficult it can be to detect a chronic infection of this sort.

I was on Galaxy's website over the weekend. They have some stories of people who have been diagnosed and treated for bart after being misdiagnosed. Apparently, Galaxy is the premiere lab in the country for Bartonella testing. But, they are so expensive. And while my doctor does treat Lyme, he is not a traditional LLMD. He will not treat the bart since the test came back negative. I am thinking of getting an LLMD, but I shudder at the pricetag as the dr I am seeing now accepts me insurance. I have already ordered some Bart specific herbs referred on Buhner's website. But, who knows.... maybe I can talk my dr into adding Rifampin.
Posted 9/5/2017 2:21 PM (GMT -5)
I think I may have been re-infected by my kitty in the spring of 2016

I treated bart from Sept, 2015 for over a year. I did a PCR test in the fall of 2016 - after a lengthy bart treatment and was positive. (Not a known lab)

My kitty had a tragic thing happen in the spring of 2016 - he suddenly became paralyzed in his back legs and in tremendous pain one evening...dragging his back legs...and screaming (a sound I have never ever heard coming from a cat before - and I've had a lot of cats in my life).
I had him in my arms while calling the emergency line at the Vet's office...and he grabbed onto my right wrist and clamped on with his teeth.
The Vet met us at the clinic and he said he had Saddle Thrombus - which is a blood clot that comes from the heart and travels down the back..but when it reaches the juncture and splits into two - for each leg...it gets lodged...cutting off the blood flow to the legs.
He advised us to have him put down...because they rarely recover from this...and are in tremendous pain.

This kitty was one of those 'special' ones - that you come across once in a lifetime...a little redhead who followed me around like a dog. I was beyond upset.

The vet said he had undiagnosed heart disease.

The bite in my arm - swelled up and was very red...and ugly...and the infection was growing by the next morning.
I went to the Dr. and he gave me some antibiotics for it..and drew a line around it - with instructions that if it hadn't improved in 24 hours, I was to go to the E.R. for IV antibiotics.

At that point I was taking breaks...messing with my treatment...not even thinking about bartonella. (stupid, I know)

And...then 5 or 6 months later, I had the PCR positive for bart.

So, I am thinking this little kitty had bartonella and re-infected me...and that coupled with my messing with my treatment...allowed this new infection to grow.
I don't know for sure...but it's a possibility.
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