Slow Movement

Along with my walking issues, I have somewhat recently developed a slow take off. Its like a stalled and really slow movement, either starting to walk to bending over to get something. I try to go faster, but my brain won't let me. Quite concerning.

Anyone else experience this with this horrible affliction of a disease?

mareish said...
Yes, Hoagie, I have the same problem. Almost seems like my brain can't tell the muscles, etc what to do. Everything is VERY slow, and it feels like there are weights on my legs. Most everything physical is a real effort.
Sorry you are also experiencing it.

Sorry you are going through this as well. It definitely sucks and I'm hoping to regain what I had.

How long have you had this particular symptom and what are you doing for treatment?

I had something like that several years ago that lasted 2 weeks and stopped as suddenly as it started. For me it was more like my thigh muscles froze up and temporarily wouldn't move. Kind of MS-like.

mareish said...
Hoagie, I have had this happening for about a year. I attributed most of it to the significant, migrating foot/knee/ankle pain. The pain causes me to walk slowly and cautiously, BUT the joint pain is greatly diminished and I still have difficulty dragging myself along. I also feel a little unsteady on my feet.

Was on doxycycline for 5ish months and am now on amoxicillin and biaxin.

Thank you for the reply.

Has it gotten any better?

Before I even noticed any slowness or clumsiness in my walking, I injured my left LCL while installing a wifi device on a ladder. It began to heal within the week, but then started aching a few weeks later. Injured it worse about a month after playing volleyball. It was about 2 weeks after that that I noticed that my other leg wasn't keeping time well while playing drums. I had to quit playing the drums. My LCL looks to be fully healed now, but I still favor that leg and my movement has gotten quite clumsy and slow. I can force myself to quicken, but I end up banging into things. Ataxia is what one doctor called it.

Had an MRI last month and found legions on my brain. I tested positive for Lyme, 5 bands. But negative for Bartonella, which I feel I actually have. And probably had since a cat bite that sent me to the ER 5 years ago.

I am treating with Minocycline, Zithromax, and Flagyl. Hoping this hits Bart as well. But if it doesn't I just received some Sida Acuta and Houttuynia to cover it in case my suspicions are correct in that I do have it.

No, no better yet. I am jealous of your sometimes ability to run. I was extremely physically active prior to all of this Lyme nonsense. Now I walk at a turtle pace.

I did test positive for bartonella a couple of times earlier in the year. In July the Bartonella test came back negative. I do anticipate getting better, as areas/joints that were once very bothersome are at about 90%, but new ones keep cropping up. My Lyme test is still IGM positive, so I figure it is the culprit.

Jo -

No, I haven't but will. Thank you!

I do get mine from woodland essence. I am very pleased with their products and service.

Also be sure to detox properly. Including a binder is a good idea, be it activated charcoal or zeolite.

Just take it 2 hours away from ant abx, herbals and supplements. Some use a brain detox, jernigan neuro-antitox 11 cns/pns. and I believe burber/pinella. Again always do your own research and start slow if you choose to do herbals.

The toxins from the die off in our brain can surely keep us having strong symptoms.

Take care, Jo

Hoagie, hubby and I both did HawaiiPharm and healed. I love their products. However, I do believe that SageWomanHerbs is the least expensive. Anyway, it was the last time I checked.

I just stayed with HawaiiPharm because it was working for both of us.

astroman said...

Hoagie said...

astroman said...
I think its your brain in "safety loop mode". It like it knows your temporarily in pain and fragile. - been there.

I really hope that is what it is. But I feel it has to do with the lesions they have found in my brain. It looks like one of them is active. Hoping the abx protocol I am on stops it and I regain my movement back. I go in for another MRI in a month or two. Going to have a sleep study done as well as my wife believes I have sleep apnea, which only compounds my brain issues.

Brain Lesions. I see that wasnt in your OP. Obviously thats a big deal. Have you made a post just on that?

AND- did they MRI your upper spine for lesions? If you have them there, and if you had the $, could get a spinal tap and send fluid to Igenixs or Advanced labs for piece of mind. Personally I hate "not knowing".

I have had an MRI of entire spine. That looks to be OK. I still have yet to see my neuro about the MRI. I had one without contrast before our last visit which showed a few lesions in the frontal lobe. He stated that it looked like I have suffered mini-strokes. However, I do suffer from Migraines, and they can produce lesions. So, he wanted me to get one with contrast. Unfortunately, the MRI with contrast was scheduled just after my last appointment. And being the curious guy that I am, I went and picked up the results myself to try and decipher them.

With the help of a medical dictionary, I have got the gist of what's going on up there. It looks like I have an active lesion in the midbrain. My neuro said he would call me right away had there been something really bad about the results, and this was over 3 weeks ago. So, the only thing I can tell is that he is probably waiting to see if treatment stops the activity of the lesion. The radiologist recommended that I get a followup MRI pretty soon.

At first, I was worried to death. But, since getting these awful symptoms, I have spent too much time worrying already. I've decided to put my faith in my doc, do plenty of research, and stay positive.

Sometimes, I succumb to anxiety and start thinking of worst case scenarios. But, what good is that going to do? I am just making myself, and my family miserable.

This forum has been a tremendous help to me in my time of concern. And I thank God for you all!