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Lyme Disease
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Posted 9/18/2017 6:15 PM (GMT -5)
I dont know if things will ever be perfect but it feels good to knock down symptoms because there used to be so many. To get to a point where you have more answers than questions is priceless.

For those with more questions than answers hang in there and ask away. Tomorrow as well as this forum is not promised. Don't take it for granted. Don't let fear keep you on the outside just lurking and looking in. It is warm inside.

I have learned and grown so much from participating. Time and again I learned valuable options that I would not have considered on my own.

If I hadn't gotten sick and failed to interface with all of you, would I have accidentally near solved my quarter century long chronic back pain issue?

I wish it wasn't disease that brought us together but I can count my blessings that it did. The gratitude surely trumps the feelings of "Why Me?"

You've all helped me accomplish healings without the assistance of doctors who have mostly failed me all of my life. How amazing is that?!

Now that the inflammation has been nearly eliminated I can focus more confidently about healing the issues that remain and figure out why my body cannot retain magnesium and fix it.

You are all selfless as well as special and I can never thank you enough! You have made me the best that I can be!

*with tears in my eyes.
Posted 9/18/2017 6:22 PM (GMT -5)
Awww, CA - Now I'm feeling all warm and fuzzy.

(tears, too)

I'm pretty sure I would still be floundering around in the dark with disease if I hadn't stumbled across this forum and the ever-so generous Traveler hadn't emailed me.


I'm so happy for you that you have made such gains with healing.
A lot of hard work you've put into it.
Posted 9/18/2017 7:14 PM (GMT -5)
I am so grateful for this forum and it's members. I will never forget how alone ,scared and desperate I felt when I first reached out just over a year ago.

and chickenarise....I'm so glad you are doing better, and keep fighting.

You are an amazing person and I am so thankful for all you have shared here, and all that you have helped.

Your knowledge and support have been a lifeline for many of us.

Thanks and take care, Jo
Posted 9/18/2017 7:41 PM (GMT -5)
I was just thinking today (after hearing someone very casually blow off checking for ticks with "yeah I did a lot of yard work in the brush/woods, probably got few... oh well.") that all my new-found activism and warning is falling on deaf ears. You just DON'T GET IT until you literally get it.

With that in mind, my focus would be in helping those who DO have it. Like in these forums where the madness and anxiety and scary stuff can be discussed and calmed, and actual proactive advice can be given.

I'm going to write myself a note for the future, to REMEMBER how bad it was and how much I needed but didn't get; then when I'm well, to help others physically with the things I never dared to ask for. People don't think of Lyme as a crippling disease and jump in with support the way they do with cancer or pregnancy.

How I wish someone would take the time to learn about my diet, and cook for me, with all my sensitivities, from scratch, or share their garden bounty. Or make sure there's something for me at their party so I don't have to decline out of sheer kitchen exhaustion. Or go on an expensive organic market run for me. To mow my lawn and weed the garden, especially since I'm afraid of grass now. To clean my bathroom because it's gross and I don't have energy to get rid of the scum.

Lymies have unnoticed needs that they are too embarrassed or even exhausted to ask for. I have a special privilege of knowing what it's like. WHEN I get through this, I do not want to forget.
Posted 9/19/2017 1:04 AM (GMT -5)
You did all the hard work Chicken, the forum just pointed you in the right direction. Congrats on moving toward where you want to be.
Posted 9/19/2017 8:11 AM (GMT -5)
Hey!! So glad your inflammation is down, and that you are now thanking all members!

I thank YOU too, for participating!!! I did love some of your posts!
wink
Posted 9/19/2017 9:15 AM (GMT -5)
Great to hear things are looking up, it's such a great feeling!
Jason
Posted 9/19/2017 10:40 AM (GMT -5)
I agree CA. I feel very alone sometimes because no one really understands what I'm going through, but I know the folks on here do.

I feel one of the hardest things about this disease is we don't "look" sick. I knew something was wrong last year when I felt 30 years older than I am. I wish I had found the site sooner, but then it was fairly luck that I stumbled onto a lyme diagnosis. Well, I consider myself lucky know this forum too.
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