Feeling Terrible and Concerend

Hello everyone,

As most of you know I have been treating Lyme for around 7 months now and I feel like I am now declining after seeing some improvement early on.

I started treatment with a month of doxy, then 3 months of cefdinir and biaxin and I started seeing improvement, but then plateaued. My LLMD then switched to minocycline and biaxin and I started adding in herbs - (the ones listed in my signature). Since all of this I still was not feeling better. The brain fog and lightheaded/pressure feeling in my head along with the fatigue almost make it impossible to get to work every day. And while I am at work I can barely function.

Since I was still plateaued my LLMD wanted to stop the mino and biaxin and start me on JUST tinidazole 500MG twice daily for three weeks which I started last Saturday. Since I have started that I feel like I am even more sluggish, tired, fatigued, and my brain fog/dizzyness/headpressure is terrible..

This is just scary to me and I have no idea what I should do at this point. I am sick of being sick and I feel like after 7 months of treatment I should be improving. I feel like there must be some other piece that I am missing.. Does anyone have any suggestions?

Yes - Mychoplasma and Chlamydia Pnemoniae. I tested negative for babs and bart, but through a strange lab that was probably not reliable.

Cordyceps is good for mycoplasma, I was told.

Buhner says this -- In general Chinese skullcap, cordyceps, isatis, houttuynia and sida acuta will take care of most of the problems but that is just a shorthand for the whole thing.....

If you add in skullcap you might as well add in red sage - Buhner likes those working together for lyme. So you will be working on the myco and the lyme at the same time. That is the beauty of Buhner's protocol. Many times just the basic protocol is working on the lyme and the co infections at the same time. I honestly believe that is what happened in my case.

However (caveat here), I don't think I was chronic when I treated and this fact may make a huge difference.

That skullcap will be fine. I used it too.

I think there are some places that do combo herbs for lyme. My concern for those is this - what if you are allergic to one of the herbs? How will you know which one?

But I must say, I have not heard of anyone on the combo herbs that had an allergic reaction YET.

Bill Rawls' has Vital Plan. I have not tried it nor have I heard much about it. You could ask in a new thread. Or even ask about other combo herbal plans. I have checked out the ingredients and they look awesome. Detox is even included in his pills.

PeteZa said...
That skullcap will be fine. I used it too.

I think there are some places that do combo herbs for lyme. My concern for those is this - what if you are allergic to one of the herbs? How will you know which one?

But I must say, I have not heard of anyone on the combo herbs that had an allergic reaction YET.

Bill Rawls' has Vital Plan. I have not tried it nor have I heard much about it. You could ask in a new thread. Or even ask about other combo herbal plans. I have checked out the ingredients and they look awesome. Detox is even included in his pills.

I am reading Bill Rawls' book now and am intrigued but think I will stick to my individual supplements for now. I may do a cost analysis to see which way is cheaper at some point.

My twitching in my eye lid is coming back (after being gone since starting treatment) and has been going on for two days now.. You think that the tinidazole is stirring things up a bit? Does that hit both Lyme and cysts? What herbs/supplements would be good for the twitching?

Girlie said...
Time to have a discussion with your LLMD about Bartonella and/or Babesia treatment. What are the plans?

Does he eventually treat those...and at what point in your treatment?

After 7 months of Ceftin, biaxin, mino, I'm surprised you are on just Tinidazole (twice weekly) Usually there is another antibiotic prescribed with it to kill off the spirochetes that come 'out' when the Tini busts open the cysts.

That may be another reason you're feeling worse.
(Not necessarily a herx)

Maybe the LLMD's plan is to bust open the cysts for a couple months...and then add in some other antibiotics to mop them up?
I would have a conversation with him.

I am seeing her next wednesday so I will definitely talk with her about all of this. I really wish she would pulse stuff, but she doesn't. The only reason I am sticking with her is because my insurance now considers her In-Network so it is super cheap for me. She is making me do Tinidazole twice a day every day for three weeks then I am assuming she will add back in antibiotics.

She does a lot of things really strange in my opinion.. seems like she sticks to "old school" treatment methods. What is a good antibiotic combo that you think I should maybe suggest?

My LLND had me treat lyme only for a year bfore switching to Bartonella.

That is way too long IMO - you can treat Bart and Lyme at the same time.

Maybe your Dr isn't planning on treating you for Bart or Babs?

I don't want to sway you to abx over Herbs - I just was giving you options if you do treat Babs or Bart.

CSA is good for Babs and the Sida Acuta is good for Bart.
You might want to consider JK as well and/or or Houttuynia.

Edit: I see you're already taking the JK