Rough night.😓

Oh Ashleyann,
I understand how you feel and it is so frustrating fighting these infections.

There are many ups and downs and it can take time to find the right path to wellness ... since you feel uncertain about your treatment, I would voice these concerns with your llnd and see if they can offer more choices or explain more about your specific symptoms and the treatment plan they believe will help.

I cant believe its fall already, I live In Massachusetts. The leaves here have already started falling off the trees and I even had ice on my windshield the other morning. Yes apples, pumpkins and cider, it is that time of year.

I would try to plan an outing with your family and just take it easy and maybe only do a shorter time out instead of all day. Maybe apple picking one afternoon and getting pumpkins another day.

Well I wish you the best and there is hope to get better and have your life back to normal again.
Keep treating and keep telling yourself I am going to get better, I will beat this thing.

Take care, Jo

No I'm not familiar with Dr. H, I see an llmd in south east New Hampshire. I am very pleased with her and glad that I had decided to switch llmd's back in July.


Connecticut is beautiful to this time of year, my in laws live in Litchfield county. Enjoy it while we can because snow will certainly be here soon too.

Take care, Jo

I know how you feel. My son and I have talked about going to a corn maze for months and now that it opened I can't take him. I haven't even had energy to take him out to ride his bike.

We'll make it up to them when we can, and we'll all enjoy it that much more.

Hang in there. Many of us are going through the same thing. It's a roller coaster ride.

Two weeks ago I finally felt good enough to work out after now having done anything for four months! Managed to get two bikes rides in over 20 miles each. Then the next week came and I felt like dying. Two weeks later, I still feel like I'm dying. Seeing the neurologist tomorrow and my LLMD next week. I think an MRI and lumbar puncture are next! Oh the fun.

Misery loves company!

Ashley - those are my symptoms - extreme head pressure in temples, eyes, base of neck; swollen glands under chin, sometime hoarse. It's the intracranial pressure that levels me. I'm very active and have a demanding job with other side activities with some travel coming up that I'm dreading but have to do.

I know Lyme and its associated infections can create this head pressure but every time I get this sick I think something else is brewing (brain tumor or related). As I said, I'm seeing my headache/neurologist tomorrow as my LLMD wants him to order the MRI and lumbar puncture as it would be easier.

I've been off ABX for two days and going back on tomorrow with Minocycline being one of them which increases head pressure. Having these two days off has been great as the pressure is lower but definitely still prominent. Waiting for my LLMD to get back to me to determine if she wants me to continue with the Mino.

There will be easier days. Hang in there as I know it can be hard and many people are right there with you!

I was checked by an ophthalmologist and my neurologist who found no issues with my eyes - nor do I have vision issues (just pressure). I hope it does not get worse.

One other symptoms I forgot to mention are muscle twitches all over. They happen very frequently and I'm wondering if they are from the IH or some other cause due to Lyme.

I just stopped two weeks of Minocycline, Rifampin and Ceftin - with Tinidazole on day 7 and 14. Tomorrow I start two weeks of daily Minocycline and Rifampin with Bactrim DS on M,W,F and Tinidazole on day 7 and 14.